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1.
Am J Hosp Palliat Care ; 33(2): 150-3, 2016 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-25376226

RESUMO

The Bereavement Program at the National Institutes of Health (NIH) Clinical Center was established in 2005. The program makes contact with the next of kin on 4 occasions postnotification of death. The objective of this analysis was to evaluate program effectiveness for those individuals who we successfully made contact with on all 4 occasions (N = 39). At 12 months postnotification, the majority viewed the NIH as a source of support (56%), and the frequency of positive emotional ratings increased (59%). There are limitations to this analysis, and biases may be present. In sum, this analysis serves as an example of a successful hospital-based bereavement program that enrolls patients who have been treated at the institution in any capacity who are also patients enrolled in institutional review board-approved research protocols.


Assuntos
Luto , Amigos/psicologia , Administração Hospitalar/métodos , Avaliação de Programas e Projetos de Saúde , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Criança , Pré-Escolar , Emoções , Família/psicologia , Feminino , Humanos , Lactente , Recém-Nascido , Masculino , Pessoa de Meia-Idade , National Institutes of Health (U.S.) , Sujeitos da Pesquisa , Apoio Social , Fatores Socioeconômicos , Estados Unidos , Adulto Jovem
2.
J Pain Symptom Manage ; 50(5): 724-9, 2015 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-26166183

RESUMO

BACKGROUND: Spirituality is a patient need that requires special attention from the Pain and Palliative Care Service team. This quality improvement project aimed to provide spiritual assessment for all new outpatients with serious life-altering illnesses. MEASURES: Percentage of new outpatients receiving spiritual assessment (Faith, Importance/Influence, Community, Address/Action in care, psychosocial evaluation, chaplain consults) at baseline and postinterventions. INTERVENTION: Interventions included encouraging clinicians to incorporate adequate spiritual assessment into patient care and implementing chaplain covisits for all initial outpatient visits. OUTCOMES: The quality improvement interventions increased spiritual assessment (baseline vs. postinterventions): chaplain covisits (25.5% vs. 50%), Faith, Importance/Influence, Community, Address/Action in care completion (49% vs. 72%), and psychosocial evaluation (89% vs. 94%). CONCLUSIONS/LESSONS LEARNED: Improved spiritual assessment in an outpatient palliative care clinic setting can occur with a multidisciplinary approach. This project also identifies data collection and documentation processes that can be targeted for improvement.


Assuntos
Pacientes Ambulatoriais , Cuidados Paliativos/métodos , Espiritualidade , Adolescente , Adulto , Idoso , Criança , Pré-Escolar , Clero , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pacientes Ambulatoriais/psicologia , Pacientes Ambulatoriais/estatística & dados numéricos , Garantia da Qualidade dos Cuidados de Saúde , Adulto Jovem
3.
Qual Health Res ; 23(9): 1155-67, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-23863850

RESUMO

Some cancer survivors report positive subjective changes they describe as "life transforming." We used a grounded theory approach to identify the content, underlying process, and identifying characteristics of self-defined "life-transforming" changes (LTCs) reported by 9 cancer survivors. To actualize their hopes for improvement, participants used a self-guided process centered on pragmatic action: researching options, gaining experience, and frankly evaluating results. Many participants discovered unanticipated personal abilities and resources, and those became highly useful in coping with other challenges apart from cancer. This made the increased personal abilities and resources "life transforming" rather than being substantially limited to reducing cancer-related problems. The action-oriented features and processes of LTCs seemed to be more fully described by experiential learning theory than by posttraumatic growth and coping. Supportive intervention to facilitate positive change processes could decrease suffering and enhance positive psychosocial and spiritual outcomes for cancer survivors.


Assuntos
Adaptação Psicológica , Acontecimentos que Mudam a Vida , Neoplasias/psicologia , Resiliência Psicológica , Sobreviventes/psicologia , Adulto , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Recidiva Local de Neoplasia/psicologia , Recidiva Local de Neoplasia/terapia , Neoplasias/terapia , Cuidados Paliativos/psicologia , Pesquisa Qualitativa , Autoeficácia , Papel do Doente , Espiritualidade
4.
J Hosp Palliat Nurs ; 14(3): 184-188, 2012 May 12.
Artigo em Inglês | MEDLINE | ID: mdl-24826082

RESUMO

A distressing complication for patients and families, gross hematuria at the end of life challenges hospice and palliative care clinicians to utilize skills in medical and nursing management, communication and clarification of patient goals, and relief of symptom burden. Massive hemorrhage in the genitourinary tract can radically alter the terminal trajectory for patients and necessitate intensive interventions aimed at promoting comfort. Here, a case of gross hematuria in an adult hospice patient serves to broaching decision-making challenges and management strategies.

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