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1.
J Clin Endocrinol Metab ; 109(3): 771-782, 2024 Feb 20.
Artigo em Inglês | MEDLINE | ID: mdl-37804088

RESUMO

CONTEXT: Pain is a poorly managed aspect in fibrous dysplasia/McCune-Albright syndrome (FD/MAS) because of uncertainties regarding the clinical, behavioral, and neurobiological underpinnings that contribute to pain in these patients. OBJECTIVE: Identify neuropsychological and neurobiological factors associated with pain severity in FD/MAS. DESIGN: Prospective, single-site study. PATIENTS: Twenty patients with FD/MAS and 16 age-sex matched healthy controls. INTERVENTION: Assessments of pain severity, neuropathic pain, pain catastrophizing (pain rumination, magnification, and helplessness), emotional health, and pain sensitivity with thermal quantitative sensory testing. Central nervous system (CNS) properties were measured with diffusion tensor imaging, structural magnetic resonance imaging, and functional magnetic resonance imaging. MAIN OUTCOME MEASURES: Questionnaire responses, detection thresholds and tolerances to thermal stimuli, and structural and functional CNS properties. RESULTS: Pain severity in patients with FD/MAS was associated with more neuropathic pain quality, higher levels of pain catastrophizing, and depression. Quantitative sensory testing revealed normal detection of nonnoxious stimuli in patients. Individuals with FD/MAS had higher pain tolerances relative to healthy controls. From neuroimaging studies, greater pain severity, neuropathic pain quality, and psychological status of the patient were associated with reduced structural integrity of white matter pathways (superior thalamic radiation and uncinate fasciculus), reduced gray matter thickness (pre-/paracentral gyri), and heightened responses to pain (precentral, temporal, and frontal gyri). Thus, properties of CNS circuits involved in processing sensorimotor and emotional aspects of pain were altered in FD/MAS. CONCLUSION: These results offer insights into pain mechanisms in FD/MAS, while providing a basis for implementation of comprehensive pain management treatment approaches that addresses neuropsychological aspects of pain.


Assuntos
Displasia Fibrosa Óssea , Displasia Fibrosa Poliostótica , Neuralgia , Humanos , Displasia Fibrosa Poliostótica/patologia , Imagem de Tensor de Difusão , Estudos Prospectivos , Displasia Fibrosa Óssea/patologia , Neuralgia/diagnóstico , Neuralgia/etiologia
2.
Children (Basel) ; 10(10)2023 Oct 01.
Artigo em Inglês | MEDLINE | ID: mdl-37892307

RESUMO

Building on growing evidence supporting virtual reality (VR) interventions for pain management, this study describes the process of developing vReal-School (vRS), a VR-based school simulation for children and adolescents with chronic pain and associated school impairment. Following guidelines for developing user-centered VR interventions, initial phases of intervention development focus on understanding and incorporating patient and clinician perspectives when designing this digital health tool. Phase I entailed focus groups with patients undergoing intensive interdisciplinary pain treatment (IIPT). A total of 19 participants across four focus groups shared their experiences related to dealing with pain at school and provided initial feedback on the concept of a VR-based school simulation. In phase II, we pilot-tested a vRS prototype and collected patient and clinician feedback via mixed method approaches. Phase I results highlight four themes related to pain in school, including physical/environmental challenges and solutions, academic challenges and solutions, peer interaction challenges and solutions, and teacher interaction challenges and solutions. These themes guided the development of our vRS prototype. Nine patients and eleven treating clinicians then engaged with the vRS prototype and provided feedback via semi-structured interviews and validated self-report measures. The results indicate high levels of patient engagement/immersion (mean total score of 17.0 on the Child Presence Measure). Qualitative feedback from both groups identified positive aspects of vRS, including finding the simulation realistic and easy to use and offering ways to address school functioning goals that are not otherwise feasible in the IIPT setting. Areas for improvement included integrating more physical movement as well as increasing the number of scenarios and the level of demands of the tasks available. Both patients and clinicians found vRS to be useful in the IIPT context and relevant to treatment goals. This user input will guide subsequent iterations of intervention development.

3.
Clin J Pain ; 39(7): 307-318, 2023 07 01.
Artigo em Inglês | MEDLINE | ID: mdl-37341690

RESUMO

OBJECTIVES: The COVID-19 pandemic required intensive interdisciplinary pain treatment (IIPT) programs to shift to virtual models of care. This study used a multimethod approach to examine outcomes of a pediatric hybrid IIPT program (50% in-person treatment and 50% synchronous video-based telehealth) and assessed staff experiences while treating within this model. MATERIALS AND METHODS: Patients (M=14.73, SD=2.04; 79% female) reported pain intensity, functional disability, and psychological factors (anxiety, depressive symptoms, fear of pain, pain catastrophizing, social functioning) at admission, discharge, and short-term follow-up. Differences in treatment outcomes at discharge and short-term follow-up between patients who participated in the hybrid IIPT model (n=42) during the pandemic and those who participated in the traditional in-person model before the pandemic (n=42) were examined. Quantitative assessments of staff burnout and perceived effort and qualitative assessments exploring staff perspectives about the challenges and advantages of the hybrid IIPT model were gathered. RESULTS: Youth in both groups made significant improvements across the majority of treatment outcomes; however, the hybrid group reported higher levels of pain at discharge and anxiety at follow-up. The majority of IIPT staff reported moderate to high levels of overall burnout, and almost half reported high levels of emotional exhaustion. Staff highlighted various challenges and benefits associated with treating within the hybrid model. DISCUSSION: When considering telehealth as a treatment tool for youth with complex chronic pain, it is crucial to leverage its benefits while addressing its challenges for patients and providers.


Assuntos
COVID-19 , Dor Crônica , Telemedicina , Adolescente , Humanos , Criança , Feminino , Masculino , Pandemias , Resultado do Tratamento , Dor Crônica/terapia , Dor Crônica/psicologia
4.
J Pain ; 24(4): 706-715, 2023 04.
Artigo em Inglês | MEDLINE | ID: mdl-36592646

RESUMO

Youth with complex regional pain syndrome (CRPS) commonly experience mechanical allodynia and disability. Assessment of mechanical allodynia is typically binary (present or absent), making it difficult to assess the quality and degree of mechanical allodynia before and after treatment. This study developed and validated the Pediatric Tactile Sensitivity Test of Allodynia (Pedi-Sense) to provide an easy way for rehabilitation clinicians to evaluate mechanical allodynia before and after intensive interdisciplinary pain treatment. The 6 Pedi-Sense items demonstrated adequate internal consistency reliability (CR) at admission (CR = .956) and discharge (CR = .973), reasonably fit the hypothesized linear model of stimulus intensity (P < .0001), and significantly loaded onto a single latent factor, mechanical allodynia (P < .0001), at admission and discharge. Pedi-Sense scores significantly correlated with disability (rs = .40; P = .004) and pain catastrophizing (rs = .33; P = .017) at admission. The Pedi-Sense appeared responsive to intervention as participants' total scores improved by 1.44 points (95% CI: .72, 2.15) after IIPT interventions that included daily tactile desensitization. However, test-retest and interrater reliability and the specific contribution of desensitization treatment to the overall success of multi-modal pain rehabilitation still needs to be evaluated. PERSPECTIVE: This article presents the development and preliminary validation of a novel clinical assessment of static and dynamic mechanical allodynia. The Pediatric Tactile Sensitivity Test of Allodynia (Pedi-Sense) allows rehabilitation clinicians to easily evaluate mechanical allodynia at the bedside with minimal training and simple equipment to guide desensitization treatment in clinical settings.


Assuntos
Síndromes da Dor Regional Complexa , Hiperalgesia , Humanos , Criança , Adolescente , Hiperalgesia/diagnóstico , Reprodutibilidade dos Testes , Dor , Síndromes da Dor Regional Complexa/diagnóstico , Medição da Dor
5.
J Pain ; 24(6): 1069-1079, 2023 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-36646401

RESUMO

No validated measure for pain self-efficacy in children and adolescents is currently available in the German language, and existing English versions have limitations. This study used a thorough development process to create the Scale for Pain Self-Efficacy (SPaSE) in both German and English languages. Scale development was based on self-efficacy theory, adapting items from existing self-efficacy measures, and review of patients' perspectives. The final version of the 11-item SPaSE was created with expert discussions and testing of content validity, comprehensibility, and construct validity. The validation process consisted of exploratory factor analysis, testing of item characteristics, internal consistency, and sensitivity to change in 2 German samples of children and adolescents with chronic pain (study 1: outpatient sample N = 150, inpatient sample N = 31). Cross-validation in a U.S. sample (study 2: N = 98) confirmed the 1-factor structure, the sound psychometric properties and reliability of the SPaSE. Sum scores of the SPaSE were negatively correlated with pain-related disability, pain intensity, passive pain coping strategies, and emotional distress, in line with previous research. The valid and reliable SPaSE can be used in clinical practice to monitor pain treatment progress, advances the field of pain self-efficacy research in Germany, and opens the door to comparative research in German and English samples. PERSPECTIVE: This article presents psychometric properties of a newly developed measure of pain self-efficacy in children and adolescents that is available in both German and English language. This measure could be used in both research and clinical practice to measure treatment progress and outcome.


Assuntos
Dor Crônica , Autoeficácia , Humanos , Adolescente , Criança , Reprodutibilidade dos Testes , Inquéritos e Questionários , Idioma , Dor Crônica/psicologia , Psicometria
6.
Clin J Pain ; 38(11): 651-658, 2022 11 01.
Artigo em Inglês | MEDLINE | ID: mdl-36075895

RESUMO

OBJECTIVE: An extensive body of research has highlighted the impact that parent/caregiver factors have on functioning and treatment outcomes among youth with chronic pain. However, parent/caregiver expectations in pain treatment have been largely understudied, despite strong evidence that treatment expectations are associated with treatment engagement and overall outcomes in nonpain populations. Accordingly, the primary aim of this investigation was to preliminarily examine the manifestation and measurement of parent/caregiver treatment expectations in an intensive interdisciplinary pediatric pain treatment (IIPT) setting. METHODS: Participants in this study (N=328) included children and adolescents who attended an IIPT program for chronic pain between August 2013 and March 2020 and their parent/caregiver(s). Outcomes examined include parent/caregiver self-report of treatment expectations for their child upon admission to the IIPT in addition to pain-related and psychosocial factors at admission and discharge. RESULTS: Findings revealed a high level of expectations (ie, belief that the treatment will be helpful) on average, with higher parent/caregiver expectations associated with poorer functioning at admission to and discharge from the IIPT program. CONCLUSION: Extremely high treatment expectations among parents of more disabled youth may be indicative of unrealistic hopes or the "need" for IIPT to help their child; tempering parental expectations with psychoeducation about IIPT goals and realistic outcomes may indirectly improve treatment outcomes for their children. Future research should examine the potentially unique and important role that treatment expectations, of both parent/caregivers and their children, may have in overall IIPT outcomes.


Assuntos
Dor Crônica , Adolescente , Cuidadores , Criança , Dor Crônica/psicologia , Humanos , Motivação , Pais/psicologia , Resultado do Tratamento
7.
J Pediatr Psychol ; 46(5): 570-577, 2021 06 03.
Artigo em Inglês | MEDLINE | ID: mdl-33515037

RESUMO

OBJECTIVE: Conceptual links between perfectionism and chronic pain have been proposed yet minimal empirical data exists. Poor sleep is associated with high levels of perfectionism and is common among youth with chronic pain. This study explores associations between perfectionism and sleep quality in adolescents with chronic pain while considering levels of functional disability. METHODS: Adolescents (ages 12-18) with chronic pain (N = 423) completed baseline measures of self-oriented perfectionism (SOP), socially prescribed perfectionism (SPP), sleep quality, and functional disability as part of routine clinical care at an outpatient chronic pain clinic and a pain rehabilitation day treatment program. Multivariate multiple regression assessed associations between perfectionism (SOP and SPP) and sleep (falling asleep/reinitiating sleep, returning to wakefulness, and going to bed). Two moderation models explored how relations between perfectionism (SOP and SPP) and sleep quality (total score) varied depending on level of functional disability. All analyses controlled for clinic setting. RESULTS: Results indicated SPP was associated with more difficulties across all sleep subdomains in adolescents with chronic pain, while SOP was unrelated to sleep quality. Associations between perfectionism and sleep quality were dependent on functional disability; perfectionism was most strongly associated with worse sleep quality for adolescents with less functional disability. CONCLUSIONS: This study highlights the relationship between perfectionism and sleep quality in adolescents with chronic pain and suggests that perfectionistic youth with less disability are at the greatest risk for sleep problems. Longitudinal research is needed to understand how perfectionism, sleep, and disability interact over time in youth with chronic pain.


Assuntos
Dor Crônica , Perfeccionismo , Adolescente , Criança , Fadiga , Humanos , Sono
8.
Artigo em Inglês | MEDLINE | ID: mdl-32641234

RESUMO

BACKGROUND: Somatic symptom and related disorders (SSRDs) and pain are highly comorbid in the pediatric population. Little is known about the prevalence of pain and factors that may predispose and perpetuate pain in hospitalized youth with SSRD. OBJECTIVE: To describe the prevalence of pain and widespread pain symptoms in hospitalized youth with SSRD and describe differences between patients who endorsed limited (1-4 sites) versus widespread (5-8 sites) pain. METHODS: Retrospective chart reviews were conducted of pediatric patients with SSRD seen over a 32-month period at a tertiary pediatric hospital and assessed by the psychiatry consultation service. During admission, patients completed the Childhood Somatization Inventory, which assessed pain and other physical symptoms. Descriptive statistics, one-way analysis of variances, Pearson's χ2, stepwise linear regressions, and internal consistency analyses were used. RESULTS: Of the 219 patients (aged 8-18 y), 97% reported pain symptoms, and of those reporting pain (n = 213), 48% reported widespread pain. Patients with widespread pain had greater rates of comorbid depression (P = 0.012), neglect (P = 0.016), family psychiatric history (P = 0.013), diagnostic tests/procedures (P = 0.012), and prescribed opioid use (P = 0.016), when other medical and demographic factors were considered. When compared dichotomously to youth with limited pain, there was no difference in prevalence of medical conditions; however, patients with widespread pain had higher rates of trauma and stressor-related disorders (P = 0.017), sexual abuse (P = 0.031), emotional abuse (P = 0.041), and prior child protective service involvement (P = 0.011). CONCLUSIONS: Pain symptoms and widespread pain are common in medically hospitalized youth with SSRD, with unique psychiatric and psychosocial factors associated with widespread pain.


Assuntos
Sintomas Inexplicáveis , Adolescente , Criança , Hospitalização , Humanos , Dor/epidemiologia , Prevalência , Estudos Retrospectivos
9.
J Pediatr Psychol ; 46(3): 351-362, 2021 03 18.
Artigo em Inglês | MEDLINE | ID: mdl-33325522

RESUMO

OBJECTIVE: Several factors are known to impact response to the intensive interdisciplinary pain treatment (IIPT) program described in this study, yet no research has explored the role of perfectionism. This secondary data analysis explored direct and indirect relations between perfectionism and functional disability (primary outcome) and pain severity (secondary outcome) after IIPT, with pain catastrophizing and fear of pain as mediators. METHODS: Youth (N = 253) aged 8-21 with chronic pain and associated disability completed pre- and post-IIPT measures of self-oriented perfectionism (SOP), socially prescribed perfectionism (SPP), pain catastrophizing, fear of pain, functional disability, and pain characteristics for routine clinical care and this nonrandomized trial. Eight mediated models were run for the two predictors, two mediators, and two outcomes. RESULTS: Pretreatment perfectionism (SOP and SPP) led to greater reductions in pain catastrophizing over the course of IIPT, which resulted in lower pain severity (ß = -.02 [CI = -0.07, -0.01] for SOP and ß = -.02 [CI = -0.06, -0.003] for SPP) and less functional disability (ß = -.06 [CI = -0.13, -0.01] for SOP and ß = -.06 [CI = -0.14, -0.01] for SPP). Independent of pain catastrophizing, pretreatment SPP was directly associated with more posttreatment functional disability (ß = .16 [CI = 0.05, 0.27]). Fear of pain was not a mediator. CONCLUSIONS: Findings suggest perfectionism has the potential to negatively impact IIPT outcomes. However, when perfectionistic youth with chronic pain learn to manage pain-related distress, they benefit. Results highlight the importance of assessing for and treating perfectionism and pain-related distress in youth with chronic pain.


Assuntos
Dor Crônica , Perfeccionismo , Adolescente , Adulto , Catastrofização , Criança , Dor Crônica/terapia , Humanos , Resultado do Tratamento , Adulto Jovem
10.
Clin J Pain ; 35(12): 967-974, 2019 12.
Artigo em Inglês | MEDLINE | ID: mdl-31513055

RESUMO

OBJECTIVES: Various academic factors are known to influence pain and somatic symptoms in adolescents, but the roles of academic goal orientation, school motivational climate, and school engagement are unknown. This study examined how these understudied academic factors are associated with adolescent pain and somatic symptoms and whether sex moderates the relations. MATERIALS AND METHODS: High school students (n=90) from a high-achieving community completed questionnaires assessing academic variables, various pain characteristics, and somatic symptoms. RESULTS: The majority of adolescents (67%) experienced pain and somatic symptoms in the past month, with 56% reporting multisite pain and 58% reporting at least 1 severe somatic symptom. Headache and abdominal pain were the most frequently reported "most bothersome" pains, and pain was rated, on average, as moderately severe, typically occurring several times per month, and was primarily chronic in nature (duration, ≥3 mo). Higher levels of ego goal orientation and perceived performance motivational climate were associated with more somatic symptoms, and ego goal orientation was also associated with more intense and frequent pain. Alternatively, greater school engagement was associated with fewer somatic symptoms. Task goal orientation and mastery motivational climate were unassociated with all pain and somatic symptom outcomes. DISCUSSION: This study demonstrates that adolescents from a high-achieving community report more somatic symptoms and pain when they are less engaged in school and when their academic focus is on grades and outperforming peers. Results suggest that de-emphasizing competition and performance outcomes may support physical well-being in adolescents.


Assuntos
Escolaridade , Motivação , Dor/psicologia , Instituições Acadêmicas , Adolescente , Ego , Feminino , Objetivos , Humanos , Masculino , Sintomas Inexplicáveis , Dor/epidemiologia , Fatores Sexuais , Inquéritos e Questionários
11.
Clin J Pain ; 34(10): 890-899, 2018 10.
Artigo em Inglês | MEDLINE | ID: mdl-29642235

RESUMO

OBJECTIVES: To provide a descriptive account of long-term functioning (≥5 y posttreatment) among youth who completed intensive interdisciplinary pain treatment (IIPT) for pediatric chronic pain conditions. MATERIALS AND METHODS: A total of 95 patients (mean age at follow-up=20.0 y) treated at least 5 years previously at a single IIPT program completed questionnaires assessing pain, functional disability, health care utilization, academic/career achievement, and quality of life. Data analyses focused on pain, functioning, and progress toward developmental goals at long-term follow-up. RESULTS: The majority of respondents report significant reduction in pain compared with preadmission (P<0.001). Five years posttreatment, average functional disability scores were in the minimal range, with statistically significant decrease in functional disability from time of admission (P<0.001). Nearly 80% of respondents characterized themselves as having no functional difficulties at follow-up. Clinically significant improvement was established for both pain and function. Respondents generally reported developmentally appropriate status, with 89% graduating high school on schedule. DISCUSSION: Results show long-term positive functioning among individuals who underwent intensive rehabilitation treatment for chronic pain as children or adolescents. Despite experiencing one or more pain flares at some point after treatment, most former IIPT patients report minimal to no ongoing functional disability, complete or partial resolution of pain symptoms, and developmentally appropriate progress toward goals (eg, school completion, independent living).


Assuntos
Dor Crônica/reabilitação , Manejo da Dor , Adolescente , Criança , Dor Crônica/psicologia , Avaliação da Deficiência , Feminino , Seguimentos , Humanos , Masculino , Manejo da Dor/métodos , Medição da Dor , Aceitação pelo Paciente de Cuidados de Saúde , Qualidade de Vida , Estudos Retrospectivos , Inquéritos e Questionários , Fatores de Tempo , Adulto Jovem
12.
J Pediatr Psychol ; 43(3): 326-330, 2018 04 01.
Artigo em Inglês | MEDLINE | ID: mdl-29579294

RESUMO

Objective: To use the biopsychosocial model and current literature to clarify conceptual underpinnings between chronic pain and perfectionism in youth, provide recommendations for assessment and treatment of co-existing perfectionism and chronic pain conditions, and suggest a research agenda. Methods: Current literature is used to identify biopsychosocial factors common between pediatric chronic pain and perfectionism, preliminary research findings are presented, and suggestions are made for research that will help inform inclusion and adaptations of assessment tools and interventions to address perfectionism. Results: Biopsychosocial factors that may contribute to the observed relationship between chronic pain and perfectionism seen in many youth are identified. For example, cognitive factors known to be associated with perfectionism (e.g., rumination) may also contribute to pain-related catastrophizing and disability. Biopsychosocial factors may serve as mediating variables between perfectionism and pain-related outcomes among youth with chronic pain and their parents. Conclusions: Research assuming a biopsychosocial perspective is needed to clarify observed links between chronic pain and perfectionism in youth. Findings related to the characterization of perfectionism in pediatric chronic pain will inform how assessment and treatment tools can better identify and address perfectionism.


Assuntos
Dor Crônica/psicologia , Perfeccionismo , Adolescente , Criança , Dor Crônica/diagnóstico , Dor Crônica/terapia , Humanos
13.
J Pain ; 19(4): 418-429, 2018 04.
Artigo em Inglês | MEDLINE | ID: mdl-29248510

RESUMO

Despite clinical observation of perfectionistic tendencies among youth with chronic pain and their parents as well as established relationships between perfectionism and functional somatic symptoms in adults and youth, no research in the pediatric pain literature has examined perfectionism. This study explored the role of various types of youth and parent perfectionism on youth and parent pain-related distress and behavior and youth pain-related dysfunction. At admission, 239 parent-child pairs from outpatient and day-treatment rehabilitation settings completed several questionnaires assessing perfectionism, pain-related distress, and pain-related dysfunction. Bivariate correlations indicated that socially prescribed perfectionism in youth and parents was linked to youth pain duration, parent and youth pain-related distress and behavior, and youth somatization. Indirect relations showed that youth socially prescribed perfectionism was the only form of perfectionism directly associated with youth somatization whereas all forms of youth perfectionism were indirectly associated with somatization and functional disability through increases in youth pain-related fear and catastrophizing. Additionally, socially prescribed perfectionism was the only type of parent perfectionism linked to youth pain-related dysfunction (somatization, functional disability) through its association with youth pain-related fear. Findings support clinical observations that parent and youth perfectionism is a psychosocial factor that should be targeted in pediatric chronic pain treatment. PERSPECTIVE: Perfectionism in youth with chronic pain and their parents was indirectly linked to youth pain-related dysfunction through its effect on youth pain-related catastrophizing and fear. Findings support clinical observations that parent and youth perfectionism is a psychosocial factor that should be targeted in pediatric chronic pain treatment.


Assuntos
Catastrofização/psicologia , Dor Crônica/fisiopatologia , Dor Crônica/psicologia , Emoções/fisiologia , Relações Pais-Filho , Pais/psicologia , Adolescente , Criança , Feminino , Humanos , Masculino , Medição da Dor , Estudos Retrospectivos , Transtornos Somatoformes/psicologia
14.
J Pain ; 19(2): 207-218, 2018 02.
Artigo em Inglês | MEDLINE | ID: mdl-29102693

RESUMO

Intensive pain rehabilitation programs for children with chronic pain are effective for many patients. However, characteristics associated with treatment response have not been well documented. In this article we report trajectories of pain and functional impairment in patients with chronic pain up to 1 year after intensive pain rehabilitation and examine baseline factors associated with treatment response. Patients (n = 253) with chronic pain and functional disability were assessed at 5 time points (admission, discharge, 1-month, 4-month, and 12-month follow-ups). Individual trajectories were empirically grouped using SAS PROC TRAJ. For functional disability, 2 groups emerged: treatment responders (88%) and nonresponders (12%). Using a binomial logistic regression model to predict disability trajectory group, no baseline variables were significant predictors for the disability trajectory group. For pain, 3 groups emerged: early treatment responders (35%), late treatment responders (38%), and nonresponders (27%). Using multinomial regression analyses to predict pain trajectory group, older age, higher pain scores, fewer social difficulties, higher anxiety levels, and lower readiness to change were characteristics that distinguished nonresponders from responders; no significant predictors distinguished the late responders from the early responders. These results provide key information on the baseline factors that influence intensive pain rehabilitation outcomes, including risk factors that predict treatment nonresponse. Our findings have implications for developing more targeted treatment interventions. PERSPECTIVE: Deriving groups of individuals with differing treatment response trajectories stimulates new thinking regarding potential mechanisms that may be driving these outcomes.


Assuntos
Dor Crônica/psicologia , Dor Crônica/reabilitação , Gerenciamento Clínico , Resultado do Tratamento , Adolescente , Terapia Comportamental/métodos , Catastrofização/etiologia , Catastrofização/psicologia , Catastrofização/reabilitação , Criança , Pessoas com Deficiência , Feminino , Seguimentos , Humanos , Modelos Logísticos , Masculino , Transtornos do Humor/etiologia , Transtornos do Humor/reabilitação , Terapia Ocupacional/métodos , Medição da Dor , Psicoterapia/métodos , Qualidade de Vida
15.
J Pediatr Psychol ; 42(4): 422-433, 2017 05 01.
Artigo em Inglês | MEDLINE | ID: mdl-27744343

RESUMO

Objective: To adapt problem-solving skills training (PSST) for parents of children receiving intensive pain rehabilitation and evaluate treatment feasibility, acceptability, and satisfaction. Methods: Using a prospective single-arm case series design, we evaluated the feasibility of delivering PSST to 26 parents (84.6% female) from one of three pediatric pain rehabilitation programs. Results: Parents completed four to six sessions of PSST delivered during a 2-4-week period. A mixed-methods approach was used to assess treatment acceptability and satisfaction. We also assessed changes in parent mental health and behavior outcomes from pretreatment to immediate posttreatment and 3-month follow-up. Parents demonstrated excellent treatment adherence and rated the intervention as highly acceptable and satisfactory. Preliminary analyses indicated improvements in domains of mental health, parenting behaviors, health status, and problem-solving skills. Conclusions: Findings demonstrate the potential role of psychological interventions directed at reducing parent distress in the context of intensive pediatric pain rehabilitation.


Assuntos
Dor Crônica/reabilitação , Educação não Profissionalizante/métodos , Poder Familiar/psicologia , Pais/educação , Resolução de Problemas , Estresse Psicológico/terapia , Adolescente , Criança , Dor Crônica/psicologia , Estudos de Viabilidade , Feminino , Humanos , Masculino , Pais/psicologia , Aceitação pelo Paciente de Cuidados de Saúde/estatística & dados numéricos , Satisfação do Paciente/estatística & dados numéricos , Estudos Prospectivos , Estresse Psicológico/etiologia , Resultado do Tratamento
16.
Hosp Pediatr ; 6(5): 290-6, 2016 May.
Artigo em Inglês | MEDLINE | ID: mdl-27073256

RESUMO

OBJECTIVES: The purpose of this study is to describe the prevalence of bullying victimization among medically admitted patients with somatic symptom and related disorders (SSDs) and to compare demographic, diagnostic, and psychosocial characteristics of bullied versus nonbullied patients. METHODS: Medically admitted patients at a tertiary pediatric facility referred to the Psychiatry Consultation Service with somatic concerns were assessed via a quality improvement (QI) initiative, the SSD Standardized Clinical Assessment and Management Plan (SSD-SCAMP). Retrospective chart and QI data on adolescent and young adult patients assessed via SSD-SCAMP from May 2012 - December 2014 were reviewed. RESULTS: Medical records of 282 patients (aged 12-22 years) diagnosed with SSDs were reviewed. Approximately 37% had a history of bullying victimization. Compared with nonbullied patients, bullied patients had higher somatization scores, more functional neurologic symptoms, and longer admissions. Bullied patients also had higher rates of comorbid anxiety, suicidal histories, and family psychiatric histories. Furthermore, bullied patients also had higher rates of learning disabilities and school accommodations and endorsed more significant life events within the year before hospitalization. CONCLUSIONS: This study describes the unique health and psychosocial challenges experienced by medically hospitalized bullied adolescents and young adults with SSDs. The findings highlight the importance of a multidisciplinary approach to assessment and management. By implementing QI initiatives such as the SSD-SCAMP, providers can bridge the gap between the clinical needs and long-term management of patients with SSDs.


Assuntos
Transtornos de Ansiedade/epidemiologia , Bullying/estatística & dados numéricos , Hospitalização/estatística & dados numéricos , Transtornos Psicofisiológicos/epidemiologia , Adolescente , Criança , Comorbidade , Família/psicologia , Feminino , Humanos , Deficiências da Aprendizagem/epidemiologia , Tempo de Internação , Masculino , Prevalência , Estudos Retrospectivos , Ideação Suicida , Estados Unidos/epidemiologia , Adulto Jovem
17.
J Adolesc ; 41: 56-66, 2015 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-25828548

RESUMO

This cross-sectional study examined relations between affluent adolescent adjustment and culturally salient factors within parent-child relationship and extracurricular domain. Bootstrapping techniques evaluated mediated effects among parental perfectionism, perceived parental pressure, intensity of organized activity (OA) involvement, and adolescent adjustment (i.e., depressive and anxiety symptoms, life satisfaction) within a sample of 10th graders and their parents (n = 88 parent-child pairs) from four high schools in affluent communities. Findings indicated that adolescents with more perfectionistic parents perceived more parental pressure and experienced poorer adjustment. Results also demonstrated that affluent adolescents who perceived more parental pressure were more intensely involved in OAs, but that higher OA intensity was linked to better adjustment. Findings highlight the importance of considering parental perfectionism when understanding adolescent behaviors and psychological outcomes, confirm the negative direct effects of parental pressure on adjustment, and corroborate prior research dispelling that highly intense OA involvement is linked to adolescent maladjustment.


Assuntos
Adaptação Psicológica , Comportamento do Adolescente/psicologia , Relações Pais-Filho , Poder Familiar/psicologia , Ajustamento Social , Valores Sociais , Adolescente , Adulto , Estudos Transversais , Mecanismos de Defesa , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pais/psicologia , Instituições Acadêmicas , Percepção Social , Estudantes/psicologia
18.
Psychol Assess ; 27(4): 1147-59, 2015 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-25822827

RESUMO

Effortless perfection is a term used to describe an intense pressure to be perfect without visible effort (Yee, 2003), and is thought to be linked to several indicators of maladjustment among college-age youth (Ruane, 2012; Yee, 2003). Although effortless perfectionism (EP) is a phenomenon referenced in popular culture, empirical support for this construct is needed. In addition to conceptualizing and discussing the theoretical underpinnings of EP, this paper describes the development of an instrument to assess EP: the 10-item Effortless Perfectionism scale (EPS). The responses of a large sample of students from a Midwestern university (N = 1,270) were used to develop a 1-factor measurement model for the EPS. The EPS showed good internal consistency and test-retest reliability, and demonstrated convergent, discriminant, and incremental validity in relation to other perfectionism scales, as a predictor of psychosocial adjustment, and as a mediator of the effects of gender on adjustment. The present study supports the reliability and construct validity of the EPS as a self-report measure of EP, a distinct type of perfectionism that warrants future investigation.


Assuntos
Ajustamento Emocional , Perfeccionismo , Testes Psicológicos , Teoria Psicológica , Adolescente , Estudos Transversais , Feminino , Humanos , Masculino , Reprodutibilidade dos Testes , Autorrelato , Fatores Sexuais , Estudantes/psicologia , Universidades , Adulto Jovem
19.
Clin J Pain ; 31(7): 633-41, 2015 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-25119514

RESUMO

OBJECTIVE: Parents' emotional, cognitive, and behavioral responses are highly influential on children's pain and functional outcomes. One important response to pediatric pain is acceptance: the degree to which an individual participates in routine daily activities in the presence of pain and is willing to let pain be a part of their life without efforts to control or avoid it. However, no tool currently exists to assess parents' own acceptance of their child's pain. The aim of this study was to validate the Parent Pain Acceptance Questionnaire (PPAQ). MATERIALS AND METHODS: The PPAQ was administered to 310 parents of youth with chronic pain in an outpatient pediatric headache program and a day hospital pain rehabilitation program. An exploratory factor analysis revealed 2 factors for the PPAQ: an 11-item Activity Engagement scale and a 4-item Acceptance of Pain-related Thoughts and Feelings scale. RESULTS: The PPAQ total score and subscales demonstrated strong internal consistency. Greater parent pain acceptance was positively associated with child pain acceptance, and was negatively correlated with parent protective behaviors, parent minimizing behaviors, parent and child pain catastrophizing, and child fear of pain. Parent protective behaviors and child pain acceptance both served as mediators of the relationship between parent pain acceptance and child functional disability. CONCLUSIONS: The PPAQ is a valid measure of parent pain acceptance and may provide valuable insights into parent responses to child pain and the ways in which parent acceptance influences child outcomes. Clinical implications and suggestions for future research are discussed.


Assuntos
Dor Crônica , Pais/psicologia , Inquéritos e Questionários , Adaptação Psicológica , Adolescente , Catastrofização , Criança , Dor Crônica/psicologia , Análise Fatorial , Medo , Feminino , Hospitais Pediátricos , Humanos , Masculino , Relações Pais-Filho , Estados Unidos
20.
Hosp Pediatr ; 4(5): 283-90, 2014 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-25318110

RESUMO

OBJECTIVES: To describe demographic, diagnostic, and psychosocial characteristics of medically admitted patients diagnosed with somatoform disorders. METHODS: Retrospective chart reviews were performed for pediatric patients (ages 3-18 years) seen by the Psychiatry Consultation Service in 2010 and 2011 on inpatient medical/surgical units and diagnosed with somatoform disorders. Data included demographic information; patient medical history, physical symptom characteristics, and service utilization; psychiatric diagnoses, history, and comorbidities, patient temperament, and coping style; family characteristics; and academic and social characteristics. RESULTS: Mean age for the 161 identified patients was 14.4 years. The majority of patients were female (75%) and white (73%). Chief physical symptoms were pain (58%) and neurologic symptoms (40%); 73% of patients had medical diagnoses, and 66% had a history of prior psychiatric treatment. The most common somatoform diagnoses, using the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision, were pain (50%) and conversion disorders (28%). Psychiatric comorbidities were predominantly mood and anxiety disorders (42% and 29%, respectively). Mean hospitalization length was 4.9 days, with 14% of patients readmitted with psychiatric reinvolvement during the study period. Patients had sensitive temperaments (80%) and internalizing coping styles (76%) and were described as "good children" (72%). School absences (55%), academic pressures (51%), and learning difficulties (36%) were reported. CONCLUSIONS: Clarifying the prevalence and nature of such characteristics can help pediatric providers improve patient care and minimize unnecessary medical interventions with early detection of risk for somatoform processes, provision of psychoeducation for patients and families, and early referral to mental health clinicians.


Assuntos
Hospitalização/estatística & dados numéricos , Transtornos Somatoformes/epidemiologia , Adaptação Psicológica , Adolescente , Transtornos de Ansiedade/epidemiologia , Criança , Pré-Escolar , Comorbidade , Feminino , Humanos , Masculino , Transtornos do Humor/epidemiologia , Transtornos Somatoformes/psicologia
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