Caregivers' Perspective on the Psychological Burden of Living with Children Affected by Sickle Cell Disease in Kinshasa, the Democratic Republic of Congo.

There is limited information on knowledge, perceptions, and management of sickle cell disease (SCD) in Africa in general and in the Democratic Republic of the Congo (DRC) in particular. This study explored knowledge, perceptions, and burden of 26 parents/caregivers of children with SCD in three selected hospitals in Kinshasa, DRC. We conducted a focus group with in-depth interviews with parents/caregivers of children affected with SCD. Four themes were discussed, including knowledge and perceptions, diagnosis and management, society's perceptions, and the psychosocial burden and the quality of life of the family affected by SCD. The majority of participants/caregivers felt that society, in general, had negative perceptions of, attitudes toward, and knowledge about SCD. They reported that children with sickle cell are often marginalized, ignored, and excluded from society or school. They face a number of challenges related to care, management, financial difficulties, and a lack of psychological support. The results suggest the need to promote measures and strategies to improve knowledge and management of SCD in Kinshasa, DRC.

Stressful life events, psychological symptoms, and social support of children and young asylum-seekers in Iceland.

BACKGROUND: Children and young asylum-seekers are often exposed to stressful life events (SLEs) and risk developing psychological symptoms. However, risk and protective factors can positively and negatively influence this vulnerable group's mental health. AIMS: To examine the SLE experiences and psychological symptoms of children and youth who seek refuge in Iceland. And to study the role that gender, travelling (un)accompanied and perceived social support play in the development of psychological symptoms for this population. METHODS: Participants were 75 children and youth of ages 13 to 24 years who sought asylum in Iceland (M = 19.7, SD =3.0, 66.7% male). Sociodemographic and social support data were collected via face-to-face interviews, with the help of interpreters when required, while SLEs, post-traumatic stress, depression, anxiety and behavioural symptoms measures were administered to participants. RESULTS: The results indicated that participants who travelled alone to Iceland had experienced more SLEs than those who travelled accompanied. SLE experiences were associated with post-traumatic stress disorder (PTSD) and other psychological symptoms. Results also revealed that SLE and perceived peer support played a significant role in predicting PTSD symptoms. CONCLUSIONS: Children and young asylum-seekers are exposed to a high number of SLEs, which increases their risk of developing psychological problems. This potential risk underlines the need for early assessments and intervention. Moreover, higher levels of social support were related to less severe PTSD symptoms, suggesting that social resources act as protective factors for these children and youth in helping them cope with SLEs.

Explanatory models of post-traumatic stress disorder (PTSD) and depression among Afghan refugees in Norway.

BACKGROUND: The current situation in Afghanistan makes it likely that we are facing a new wave of Afghan refugees, warranting more knowledge about how to deal with mental health problems among them. This study aims to gain more knowledge on Explanatory Models (EM) of depression and post-traumatic stress disorders (PTSD) among Afghan refugees resettled in Norway. METHODS: We conducted six gender-separated, semi-structured focusgroup interviews based on vignettes with Afghan refugees (total N = 27). The vignettes described a fictional character with symptoms of either depression or PTSD symptoms in line with DSM-5 and ICD-10 criteria. RESULTS: The findings showed that EM varied with gender, age, generation, and migration stories. Participants suggested different potential causes, risk factors, and ways of managing symptoms of depression and PTSD depending on the context (e.g., in Norway vs. Afghanistan). In describing the causes of the depression/PTSD in the vignettes, females tended to emphasize domestic problems and gender issues while males focused more on acculturation challenges. The younger males discussed mostly traumatic experiences before and during flight as possible causes. CONCLUSION: The practice of condensing a single set of EMs within a group may not only be analytically challenging in a time-pressed clinical setting but also misleading. Rather, we advocate asking empathic questions and roughly mapping individual refugee patients' perceptions on causes and treatment as a better starting point for building trusting relationships and inviting patients to share and put into practice their expertise about their own lives.

Do We Stand Together? The Role of Perceived Personal and Group Threats in Predicting the Majority's (Un)willingness to Confront Injustice on Behalf of a Minority.

Purpose: By utilizing data from Estonia, Finland, and Norway, this study explores how the perceptions of personal and group realistic threats, namely perceived ethnic discrimination and economic insecurity among national majorities, predict their unwillingness to confront injustice on behalf of Russian-speaking minority groups. Background: Previous research on collective action to promote minorities' rights and social standing has focused either on minorities' own actions or factors promoting the willingness of majority group members to engage in collective action on behalf of minorities. In contrast, factors explaining the reluctance of majority group members to engage in collective action on behalf of minority groups have remained less explored. For example, studies have then ignored that the majority members may also feel threatened and may be economically insecure. Furthermore, the possible discrepancy between perceived personal vs. in-group's situation may influence majority group members' (un)willingness to confront injustice on behalf of a minority group. Method: We employed polynomial regression with response surface analysis to analyze data gathered among national majority members in three countries (N = 1,341). Results: Perceived personal and group realistic threats were associated with heightened unwillingness to confront injustice on behalf of the Russian-speaking minority. Furthermore, participants were more unwilling to confront injustice when they perceived more group than personal threat. Conclusion: We found that majority group members' (un)willingness to confront injustice on behalf of the minority is related to how secure they perceive their own and their group status. Our results contribute to previous research by pointing out the important drawbacks of majorities' support for minorities' wish for social change.

Intergenerational value discrepancies in immigrant and host-national families and their impact on psychological adaptation.

This study investigated the relationship between intergenerational value discrepancies and psychological adaptation among adolescents with immigrant background (mean age=15.5 years) in Norway and Sweden. Results from two cohorts (parents and their children) of immigrant and host-national families in the two countries (n=574) indicated that immigrant adolescents on the whole neither differed from their host peers with respect to psychological adaptation nor on value discrepancies. Value discrepancies were weakly related to psychological adaptation. Results are discussed as to whether the findings may reflect a general phenomenon for all adolescents or specific to those with immigrant background.