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1.
Front Rehabil Sci ; 5: 1286875, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38322700

RESUMO

Background: When transitioning to adulthood, youth with disabilities and their families face many service gaps. Successful inter-agency collaborations can promote family-centred, inclusive transition support amenable to personal choice and health conditions. This paper reports the 3-year co-design process of an innovative transition service that links a pediatric hospital and adult service agencies and addresses key areas of transition preparedness with joint accountability. Methods: A team of pediatric rehabilitation professionals, adult service providers, young adults with disabilities and their families, and researchers engaged in a co-design process over three years. Following a design thinking (DT) framework, the team went through an iterative process of Empathize. Define, Ideation, Prototyping, and Testing phases. The trial-and-error process allowed for deeper reflection and an opportunity to pivot the design. Results: The co-design yielded Transitions Pop-ups, a nimble service model that can "pop up" at critical times and places to meet clients' urgent and emergent transition-related needs. Two pilot sessions were conducted at the testing phase with adult service agencies. The final model included five key elements: (1) community partnership; (2) targeted information sharing; (3) peer mentoring; (4) action (on-the-spot completion of a key transition task/activity such as submitting an adult funding application); and (5) warm handover. Conclusion: The co-design process highlighted the importance of open communication and iterative prototype testing as a means for trialing new ideas and clarifying the intent of the project. The DT framework optimally facilitated the co-development of a contextually relevant and sustainable service model for pediatric rehabilitation clients and families.

2.
Qual Health Res ; 32(14): 2147-2158, 2022 12.
Artigo em Inglês | MEDLINE | ID: mdl-36373512

RESUMO

Transition to adult life can be a challenging time for disabled youth and their families. This article describes the collaborative creation of Transitions Theatre, a research-based reader's theatre activity based on narrative interviews with eight disabled youth (aged 17-22) and seven parents. Analysis of these interviews generated two opposing yet interrelated themes. On one hand, youth and families felt lost in transition facing multiple gaps in healthcare, financial support, education, and opportunities for social participation after having "aged out" of the pediatric system. On the other hand, they started cripping "normal" adulthood to envision more inclusive futures wherein disabilities are understood as integral to society. These two themes were transformed into two reader's theatre scripts, one featuring a youth, the other featuring a parent. Seven youth and four parents (six of them were original interview participants) then participated in a Transitions Theatre workshop to read the scripts together and discuss the authenticity and relatability of the scripts. Participant feedback suggested that the reader's theatre method was effective in sharing findings with research participants and stimulating a critical dialogue on how to (re)imagine transition to adulthood. We discuss the importance of implementing inclusive design strategies to make reader's theatre accessible to participants with diverse abilities and preferences.


Assuntos
Crianças com Deficiência , Adulto , Adolescente , Criança , Humanos , Pais , Atenção à Saúde/métodos , Participação Social
3.
MedEdPORTAL ; 18: 11254, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35774148

RESUMO

Introduction: Transition from pediatric to adult care has significant implications for health outcomes in youth with special health care needs. To optimally support the transition, health care and social service providers must work collaboratively with youth and families in service planning, implementation, and evaluation. Based on interviews with 15 youth and their families, we developed an arts-informed interprofessional education activity titled Transitions Theatre using the method of readers' theater. Methods: Three educators with lived experience (one former pediatric rehabilitation client and two parents of youth with special health care needs) and three academic/clinical educators codesigned the transitions. We conducted four online workshops (14-20 participants each). Results: A total of 67 people participated: 59 students from 11 health disciplines and seven postlicensure clinicians and one trainee from five disciplines (e.g., occupational therapy, life skills coaching, early childhood education). Twenty-six participants answered both pre- and postworkshop surveys and reported a positive shift in their understanding of client and family perspectives, their roles in transition support, and other providers' roles in transition support. After the workshop, learners felt more confident with transition support and interprofessional collaboration. The perspectives of the educators with lived experience aligned with the theater scripts and enhanced learners' empathetic engagement with the topic. Discussion: The evidence-based teaching approach of readers' theater and our coteaching model offered learners a unique opportunity to learn about the challenges clients and their families face at the time of transition to adulthood and identify their role in an interprofessional transition support.


Assuntos
Educação Interprofissional , Transição para Assistência do Adulto , Adolescente , Adulto , Criança , Pré-Escolar , Atenção à Saúde , Humanos , Aprendizagem , Inquéritos e Questionários
4.
J Am Coll Health ; : 1-5, 2022 Jul 26.
Artigo em Inglês | MEDLINE | ID: mdl-35881812

RESUMO

OBJECTIVE: This study explored how Canada's postsecondary institutions have informed students about campus mental health (MH) services via websites and social media during the COVID-19 pandemic. METHODS: We conducted a Web-based environmental scan of 20 universities and 24 colleges across the province of Ontario, Canada, between October 2020 and July 2021. RESULTS: 91% of the institutions offered virtual counseling services and 84% offered general psychoeducational resources, whereas only 55% had COVID-19 specific MH resources. Larger institutions had more MH support to students than small schools. There was a trend toward outsourcing counseling and emergency services to external professionals via apps and hotlines. Limited MH information was available for out-of-province and international students. CONCLUSION: It is vital for equitable campus MH services to address unique MH challenges associated with the crisis and intentional outreach to students with special circumstances. Schools can leverage peer support and self-help to promote student mental well-being.

6.
Disabil Rehabil ; 44(23): 7246-7254, 2022 11.
Artigo em Inglês | MEDLINE | ID: mdl-34662528

RESUMO

PURPOSE: Youth Facilitators (YFs) are peer service providers (SPs) with childhood-onset disabilities working in pediatric rehabilitation teams. This study explored the YF role focusing on what work YFs do, the perceived facilitators and challenges pertinent to the role integration process, and the evolution of the role over the study period. METHODS: A longitudinal, qualitative case study approach was used to gather data over a total period of 14 months through interviews, focus groups, workload logs, and observations. Data were analyzed using the method of thematic analysis. RESULTS: Two YFs, 23 SPs and two managers participated in the study. YFs' work included independent consultation, resource provision, referral making, and program co-facilitation. Analysis produced two contrasting themes. When viewed as a representative of clients, YFs were considered bringing client perspectives to care, adding credibility to clinical services, and empowering clients and families through role modeling. However, when viewed as a professional SP, their expertise was questioned due to role unclarity, limited generalizability of lived experience, and organizational limitations. CONCLUSIONS: Training tailored to local care contexts and organizational supports are needed to transform YFs' experiential knowledge into experiential expertise. We propose strategies for optimal integration of peer providers into clinical care teams.Implications for rehabilitationAs peer service providers with lived experience of disabilities, Youth Facilitators (YFs) have the potential to benefit pediatric rehabilitation services by facilitating empowerment in clients and families as they navigate through life transitions.The YF scope of practice and training should be adapted to fit with individual clinical teams and local care contexts to help YFs establish their experiential expertise in interdisciplinary teams.Establishing YF's core competencies (e.g., advocacy, coaching, and boundary setting skills) can help transform their experiential knowledge into experiential expertise.


Assuntos
Pessoas com Deficiência , Grupo Associado , Adolescente , Humanos , Criança , Pesquisa Qualitativa , Atenção à Saúde , Grupos Focais
7.
Phys Occup Ther Pediatr ; 41(4): 340-354, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33441052

RESUMO

AIMS: This qualitative evaluation study assessed perceived impacts of a solution-focused coaching (SFC) training rolled out in a Canadian pediatric rehabilitation hospital from the perspective of clinical service providers. METHODS: Thirteen clinical service providers were interviewed six months after receiving 2-day SFC training. Participants retrospectively described perceived impacts of the training and benefits and challenges pertinent to the implementation of the SFC approach. Interview transcripts were transcribed verbatim and analyzed thematically. RESULTS: SFC training was considered making a valuable addition to participants' toolbox, increasing their confidence in developing positive therapeutic alliance with clients, and enhancing their strengths-based orientation. The training was also seen improving team cohesion and promoting collaborative solution-finding among team members. Structural barriers such as time constraints, lack of continuous organizational support and clear expectations around the use of the SFC approach were reported as factors impeding effective clinical adaptation. The need for tailoring the SFC approach to unique service contexts was also reported. CONCLUSIONS: Future SFC training initiatives should integrate a team-based approach and a culturally sensitive lens to help providers better assist clients in identifying their unique strengths. Follow-up training and continuous organizational support mechanisms will be vital for facilitating sustainable implementation after the initial training.


Assuntos
Tutoria , Canadá , Criança , Atenção à Saúde , Humanos , Pesquisa Qualitativa , Estudos Retrospectivos
8.
J Med Humanit ; 42(3): 355-369, 2021 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-31919708

RESUMO

This study explored representations of self-injury in Japanese manga (graphic novels). A content analysis of fifteen slice-of-life manga published between 2000-2017 was conducted, focusing on forty scenes that depict eighteen characters engaging in self-injury. Most depictions of self-injury reflect a stereotypical perception of "self-injurer," a young girl cutting herself to cope with negative emotion. Characters receive informal support from friends and partners, while parents are portrayed as unsupportive and even triggering. An emergent trend was observed among manga targeting male readers to label self-injuring women as "menhera" - mentally vulnerable damsels in distress - inviting a fetishistic gaze on the self-injuring female bodies.


Assuntos
Comportamento Autodestrutivo , Adaptação Psicológica , Feminino , Humanos , Japão , Masculino
9.
Child Care Health Dev ; 46(3): 249-267, 2020 05.
Artigo em Inglês | MEDLINE | ID: mdl-31944352

RESUMO

BACKGROUNDS: Resiliency has attracted a growing interest in paediatric rehabilitation as a key capacity for disabled children and their families to thrive. This study aimed to identify measures used to assess resiliency of disabled children/youth and their families and critically appraise the current use of resiliency measures to inform future research and practice. METHODS: A two-stage search strategy was employed. First, systematic reviews of resiliency measures published since 2000 were searched. Second, full names of measures identified in at least two systematic reviews were searched across four electronic databases. Included studies assessed resiliency among children/youth (0-18 years old) with chronic health conditions and/or disabilities and their families. Identified articles were then analysed to discern the study's definition of resiliency, authors' rationales for measurement selection, and types of perceived adversities facing the study participants. RESULTS: From an initial yield of 25 measures identified in five systematic reviews, 11 were analysed in two or more reviews. The second stage yielded 41 empirical studies published between 2012 and 2018, which used 8 of the 11 resiliency measures searched by name. Of 41, 17 studies measured resiliency of disabled children/youth, 23 assessed resiliency within family members, and 1 studied both children/youth and their families. Our critical appraisal identified inconsistencies between the studies' definition of resiliency and chosen measures' operationalization, implicit assumption of disabilities as a developmental risk that automatically results in life adversities, and the tendency among family studies to reduce resiliency down to stress coping skills. Research that encompasses contextual factors and developmental influences is lacking. CONCLUSIONS: There is a need for a situated measurement approach that captures multiple interacting factors shaping resiliency over one's life course. Resiliency measures would benefit from a greater focus on a person-environment transaction and an alternative definition of resiliency that accounts for multiple capacities to navigate through disabling environments.


Assuntos
Crianças com Deficiência/psicologia , Resiliência Psicológica , Adaptação Psicológica , Adolescente , Criança , Pré-Escolar , Humanos , Lactente , Recém-Nascido
10.
Disabil Rehabil ; 42(7): 1031-1040, 2020 04.
Artigo em Inglês | MEDLINE | ID: mdl-30426782

RESUMO

Purpose: Children's resiliency is seen as important in pediatric rehabilitation, but is seldom the focus of research or intervention. This article presents a resiliency framework to inform pediatric rehabilitation research, service design, and practice.Methods: The development of the framework was guided by a transactional, life course perspective, and a review of self-constructs in the resiliency literature.Results: The framework comprises health-related adversities, self-capacities, self-regulatory processes, and adaptive benefits. Four adaptive self-capacities are highlighted (activity self-efficacy, capacity to marshal resources and supports to achieve goals, capacity to adapt to changing life situations, and capacity to envision a positive future). These self-capacities are linked to common adversities experienced by children with disabilities, namely activity limitations, functioning and participation restrictions, transition issues, and anticipated future life challenges. The self-capacities are also associated with empowered, optimistic, adaptive, and hopeful mindsets, which influence accommodative and assimilative self-regulatory strategies affecting children's adaptive benefits.Conclusions: The framework can inform resiliency-related research exploring self-capacities and resiliency processes. The framework points to what is modifiable through intervention targeting the person-in-context, namely self-capacities, mindsets, and situated experiences. Implications for service design and delivery include providing opportunities and interacting with clients in ways that support the development of these self-capacities.Implications for rehabilitationFostering resiliency means preparing children with disabilities to negotiate and navigate the adversities and challenges they will encounter over their lives.Important resiliency-related self-capacities include activity self-efficacy, capacity to marshal resources and supports to achieve goals, capacity to adapt to changing life situations, and capacity to envision a positive future.The resiliency framework suggests the importance of enhancing children's views of themselves as empowered, optimistic, adaptive, and hopeful.Practice will be enriched by acknowledging that a range of health concerns are relevant to practice, including issues of impairment, functioning, participation, and adaptation.


Assuntos
Adaptação Fisiológica , Pessoas com Deficiência , Criança , Humanos , Pesquisa de Reabilitação , Autoeficácia
11.
Phys Occup Ther Pediatr ; 40(3): 263-278, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-31657268

RESUMO

Aims: This qualitative descriptive study explored perceived impacts of solution-focused coaching in pediatric rehabilitation (SFC-peds) from the viewpoint of experienced therapists.Methods: Semi-structured in-depth interviews were conducted with six participants (four occupational therapists and two physical therapists) who had incorporated SFC-peds into their practice for three years or longer. Participants were asked to describe perceived differences SFC-peds has made to their clinical practice, service provision, and relationships with clients and families. Interview transcripts were analyzed using the method of thematic analysis.Results: Three major themes, each with subthemes, were identified: 1) changes in therapists' perception of their roles; 2) increased service effectiveness; and 3) enhanced client capacity. Through long-term engagement with SFC-peds, participants have experienced a role shift from an expert adviser to a collaborative facilitator who assists clients and families with capacity building and self-discovery of solutions for their everyday environments.Conclusions: The findings suggest that SFC-peds can help participants reframe professional expertise and integrate principles of family-centred care into their day-to-day practice. Individual- and system-level support, along with flexibility in service structures and processes, may be needed to further the implementation of SFC-peds in service delivery.


Assuntos
Atitude do Pessoal de Saúde , Crianças com Deficiência/reabilitação , Terapeutas Ocupacionais , Fisioterapeutas , Papel Profissional , Criança , Feminino , Humanos , Pesquisa Qualitativa
12.
J Interprof Care ; 34(4): 481-492, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-31750748

RESUMO

Fostering successful interprofessional collaboration remains a challenge in pediatric rehabilitation. A coaching approach can enhance client-centered care and provide a transdisciplinary framework for collaboration. The purpose of this longitudinal study was to evaluate the impact of Solution-Focused Coaching in Pediatric Rehabilitation (SFC-peds) training on pediatric rehabilitation practitioners from multiple disciplinary backgrounds. Thirty-seven service providers (SPs) completed surveys at baseline and three follow-ups. Quantitative and qualitative findings both suggested that the training proved an effective way to achieve substantial and sustainable improvements in SFC knowledge, confidence, and use of SFC-peds techniques among participating SPs. The educational intervention also facilitated the integration of a strengths-based, solution-building approach at an individual and team level, providing SPs with a common language and shared framework for client-centered care and optimal collaboration with colleagues. A need for practice opportunities tailored to unique care contexts was identified. Future research should further explore the impacts of a SFC-peds approach on interprofessional teams, as well as on health outcomes of clients.


Assuntos
Pessoal de Saúde/educação , Relações Interprofissionais , Tutoria/organização & administração , Pediatria/educação , Reabilitação/educação , Especialização , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Estudos Longitudinais , Planejamento de Assistência ao Paciente , Equipe de Assistência ao Paciente/organização & administração , Assistência Centrada no Paciente
13.
Digit Health ; 4: 2055207618780499, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-31463075

RESUMO

BACKGROUND: Non-suicidal self-injury (NSSI) is a serious public health concern facing adolescents and young adults worldwide. Despite growing concern that accessing NSSI content on the internet may negatively influence perceptions toward NSSI recovery, no studies have examined actual impacts. OBJECTIVES: This experimental pilot study assessed the impact of exposure to hopeless versus hopeful peer messages on perceptions toward NSSI recovery. It was hypothesized that exposure to hopeless messages would lead to more negative perceptions about NSSI recovery whereas the opposite would occur for hopeful messages. METHODS: We developed fictional peer comments embedded in a screenshot of an NSSI-themed YouTube video and randomly assigned participants to either hopeless or hopeful recovery-oriented comments. Participants' attitudes toward NSSI recovery, recovery-oriented subjective norms, and recovery self-efficacy were measured pre- and post-exposure using an online questionnaire. RESULTS: Sixty-one participants with a self-reported NSSI history (mean age 20.89 years) completed the online survey. There was a statistically significant effect for attitudes toward recovery. Within the hopeful comment condition, there was an increase in positive attitudes toward recovery and in recovery-oriented subjective norms. Participants exposed to hopeless peer messages did not report an increase in hopeless attitudes toward NSSI recovery. CONCLUSIONS: Our pilot study indicated that exposure to hopeful online messages improved positive attitudes toward recovery and recovery-oriented subjective norms, while exposure to hopeless messages did not increase hopeless attitudes. Future research on the impacts of online peer comments on one's attitude toward NSSI recovery and support-seeking behavior could further inform practices and policies.

14.
J Clin Psychol ; 72(3): 249-62, 2016 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-26613372

RESUMO

OBJECTIVE: This review aimed to synthesize current evidence on the perceived benefits and risks of online activity pertinent to nonsuicidal self-injury (NSSI). METHOD: A systematic literature search was conducted to identify peer-reviewed articles, which yielded a total of 27 articles published between 2005 and 2015. Following this, a thematic analysis was employed to identify perceived benefits and risks of online NSSI activity. RESULTS: Our thematic analysis identified 4 potential benefits (mitigation of social isolation, recovery encouragement, emotional self-disclosure, curbing NSSI urges) and 3 potential risks (NSSI reinforcement, triggering NSSI urges, stigmatization of NSSI) associated with online NSSI activities. CONCLUSION: Given the double-edged effect of online NSSI activities, clinicians may benefit from incorporating clients' online NSSI activity in the context of NSSI assessment and treatment. Future research ought to directly examine the link between online NSSI activity and NSSI behavior to better understand the nature of these benefits and risks.


Assuntos
Internet , Comportamento Autodestrutivo/psicologia , Humanos
15.
Int J Public Health ; 60(7): 827-37, 2015 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-26298442

RESUMO

OBJECTIVES: We conducted a scoping review to identify and summarize the current state of knowledge regarding the mental health effects associated with bed bugs. METHODS: We employed a five-stage scoping review framework, to systematically identify and review eligible articles. Eligibility criteria included a focus on bed bug infestations and reference to mental health impacts. Descriptive information was then extracted from each article, including the specific mental health effects cited. RESULTS: An initial search yielded 920 unique articles on the topic of bed bugs. Of these, 261 underwent abstract review, and 167 underwent full-text review. Full-text review and subsequent review of reference lists yielded a final sample of 51 articles. Numerous mental health effects were linked to bed bug infestations, including severe psychiatric symptoms. However, the majority (n = 31) of the articles were commentary papers; only five original research articles were identified. CONCLUSIONS: Although significant mental health effects are often linked to bed bugs, such discussions remain largely anecdotal. Despite recognition that the impact of bed bugs constitutes an important public health concern, little empirical evidence currently exists on this topic.


Assuntos
Percevejos-de-Cama , Ectoparasitoses/psicologia , Saúde Mental , Animais , Ectoparasitoses/prevenção & controle , Habitação , Humanos , Controle de Insetos/métodos , Saúde Pública
16.
Qual Health Res ; 25(10): 1334-46, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-25662942

RESUMO

The last decade has witnessed an exponential growth in user-generated online content featuring Non-Suicidal Self-Injury (NSSI), including photography, digital video, poems, blogging, and drawings. Although the increasing visibility of NSSI content has evoked public concern over potential health risks, little research has investigated why people are drawn to create and publish such content. This article reports the findings from a qualitative analysis of online interviews with 17 individuals who produce NSSI content. A thematic analysis of participants' narratives identified two prominent motives: self-oriented motivation (to express self and creativity, to reflect on NSSI experience, to mitigate self-destructive urges) and social motivation (to support similar others, to seek out peers, to raise social awareness). Participants also reported a double-edged impact of NSSI content both as a trigger and a deterrent to NSSI.


Assuntos
Internet , Motivação , Comportamento Autodestrutivo/psicologia , Rede Social , Adolescente , Adulto , Conscientização , Feminino , Humanos , Masculino , Apoio Social , Ideação Suicida , Adulto Jovem
17.
Cyberpsychol Behav Soc Netw ; 17(9): 591-602, 2014 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-25007383

RESUMO

Mobile phone technologies have been hailed as a promising means for delivering mental health interventions to youth and adolescents, the age group with high cell phone penetration and with the onset of 75% of all lifetime mental disorders. Despite the growing evidence in physical health and adult mental health, however, little information is available about how mobile phones are implemented to deliver mental health services to the younger population. The purpose of this scoping study was to map the current state of knowledge regarding mobile mental health (mMental Health) for young people (age 13-24 years), identify gaps, and consider implications for future research. Seventeen articles that met the inclusion criteria provided evidence for mobile phones as a way to engage youth in therapeutic activities. The flexibility, interactivity, and spontaneous nature of mobile communications were also considered advantageous in encouraging persistent and continual access to care outside clinical settings. Four gaps in current knowledge were identified: the scarcity of studies conducted in low and middle income countries, the absence of information about the real-life feasibility of mobile tools, the need to address the issue of technical and health literacy of both young users and health professionals, and the need for critical discussion regarding diverse ethical issues associated with mobile phone use. We suggest that mMental Health researchers and clinicians should carefully consider the ethical issues related to patient-practitioner relationship, best practices, and the logic of self-surveillance.


Assuntos
Telefone Celular , Atenção à Saúde , Acessibilidade aos Serviços de Saúde , Transtornos Mentais/terapia , Serviços de Saúde Mental , Telemedicina , Adolescente , Telefone Celular/ética , Alfabetização Digital , Comparação Transcultural , Atenção à Saúde/ética , Países em Desenvolvimento , Ética Médica , Feminino , Letramento em Saúde/ética , Acessibilidade aos Serviços de Saúde/ética , Humanos , Masculino , Transtornos Mentais/psicologia , Serviços de Saúde Mental/ética , Pobreza/ética , Telemedicina/ética , Adulto Jovem
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