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1.
Bioethics ; 38(3): 213-222, 2024 03.
Artigo em Inglês | MEDLINE | ID: mdl-37506261

RESUMO

The pandemic significantly raised the stakes for the translation of bioethics insights into policy. The novelty, range and sheer quantity of the ethical problems that needed to be addressed urgently within public policy were unprecedented and required high-bandwidth two-way transfer of insights between academic bioethics and policy. Countries such as the United Kingdom, which do not have a National Ethics Committee, faced particular challenges in how to facilitate this. This paper takes as a case study the brief career of the Ethics Advisory Board (EAB) for the NHS Covid-19 App, which shows both the difficulty and the political complexity of policy-relevant bioethics in a pandemic and how this was exacerbated by the transience and informality of the structures through which ethics advice was delivered. It analyses how and why, after EAB's demise, the Westminster government increasingly sought to either take its ethics advice in private or to evade ethical scrutiny of its policies altogether. In reflecting on EAB, and these later ethics advice contexts, the article provides a novel framework for analysing ethics advice within democracies, defining four idealised stances: the pure ethicist, the advocate, the ethics arbiter and the critical friend.


Assuntos
Bioética , Pandemias , Humanos , Comitês Consultivos , Eticistas , Comissão de Ética , Ética
2.
Sci Eng Ethics ; 28(6): 63, 2022 11 28.
Artigo em Inglês | MEDLINE | ID: mdl-36441282

RESUMO

Many researchers have documented how AI and data driven technologies have the potential to have profound effects on our lives-in ways that make these technologies stand out from those that went before. Around the world, we are seeing a significant growth in interest and investment in AI in healthcare. This has been coupled with rising concerns about the ethical implications of these technologies and an array of ethical guidelines for the use of AI and data in healthcare has arisen. Nevertheless, the question of if and how AI and data technologies can be ethical remains open to debate. This paper aims to contribute to this debate by considering the wide range of implications that have been attributed to these technologies and asking whether current ethical guidelines take these factors into account. In particular, the paper argues that while current ethics guidelines for AI in healthcare effectively account for the four key issues identified in the ethics literature (transparency; fairness; responsibility and privacy), they have largely neglected wider issues relating to the way in which these technologies shape institutional and social arrangements. This, I argue, has given current ethics guidelines a strong focus on evaluating the impact of these technologies on the individual, while not accounting for the powerful social shaping effects of these technologies. To address this, the paper proposes a Multiscale Ethics Framework, which aims to help technology developers and ethical evaluations to consider the wider implications of these technologies.


Assuntos
Princípios Morais , Tecnologia , Privacidade , Atenção à Saúde , Inteligência Artificial
3.
Soc Stud Sci ; 50(4): 589-608, 2020 08.
Artigo em Inglês | MEDLINE | ID: mdl-31603380

RESUMO

That policymakers adopt technoscientific viewpoints and lack reflexivity is a common criticism of scientific decision-making, particularly in response to moves to democratize science. Drawing on interviews with UK-based national policymakers, I argue that an elite sociotechnical imaginary of 'science to the rescue' shapes how public perspectives are heard and distinguishes what is considered to be legitimate expertise. The machinery of policy-making has become shaped around this imaginary - particularly its focus on science as a problem-solver and on social and ethical issues as 'nothing to do with the science' - and this gives this viewpoint its power, persistence and endurance. With this imaginary at the heart of policy-making machinery, regardless of the perspectives of the policymakers, alternative views of science are either forced to take the form of the elite imaginary in order to be processed, or they simply cannot be accounted for within the policy-making processes. In this way, the elite sociotechnical imaginary (and technoscientific viewpoint) is enacted, but also elicited and perpetuated, without the need for policymakers to engage with or even be aware of the imaginary underpinning their actions.


Assuntos
Governo , Formulação de Políticas , Políticas , Tecnologia
5.
Public Underst Sci ; 27(6): 655-673, 2018 08.
Artigo em Inglês | MEDLINE | ID: mdl-28490253

RESUMO

Over the past 10 years, numerous public debates on new and emerging science and technologies have taken place in the United Kingdom. In this article, we characterise the discourses emerging from these debates and compare them to the discourses in analogous expert scientific and policy reports. We find that while the public is broadly supportive of new scientific developments, they see the risks and social and ethical issues associated with them as unpredictable but inherent parts of the developments. In contrast, the scientific experts and policymakers see risks and social and ethical issues as manageable and quantifiable with more research and knowledge. We argue that these differences amount to two different sociotechnical imaginaries or views of science and how it shapes our world - an elite imaginary of 'science to the rescue' shared by scientists and policymakers and public counter-imaginary of 'contingent progress'. We argue that these two imaginaries indicate that, but also help explain why, public dialogue has had limited impact on public policy.

6.
PLoS One ; 12(2): e0172817, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-28222106

RESUMO

[This corrects the article DOI: 10.1371/journal.pone.0168533.].

7.
PLoS One ; 11(12): e0168533, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-27997599

RESUMO

Big changes to the way in which research funding is allocated to UK universities were brought about in the Research Excellence Framework (REF), overseen by the Higher Education Funding Council, England. Replacing the earlier Research Assessment Exercise, the purpose of the REF was to assess the quality and reach of research in UK universities-and allocate funding accordingly. For the first time, this included an assessment of research 'impact', accounting for 20% of the funding allocation. In this article we use a text mining technique to investigate the interpretations of impact put forward via impact case studies in the REF process. We find that institutions have developed a diverse interpretation of impact, ranging from commercial applications to public and cultural engagement activities. These interpretations of impact vary from discipline to discipline and between institutions, with more broad-based institutions depicting a greater variety of impacts. Comparing the interpretations with the score given by REF, we found no evidence of one particular interpretation being more highly rewarded than another. Importantly, we also found a positive correlation between impact score and [overall research] quality score, suggesting that impact is not being achieved at the expense of research excellence.


Assuntos
Pesquisa Biomédica , Financiamento de Capital , Universidades , Pesquisa Biomédica/economia , Pesquisa Biomédica/métodos , Pesquisa Biomédica/normas , Inglaterra , Humanos , Controle de Qualidade
8.
Public Underst Sci ; 25(2): 186-97, 2016 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-25234052

RESUMO

As part of the 20th Anniversary of the Public Understanding of Science journal, the journal has been reflecting on how the field and journal have developed. This research note takes a closer look at some of the trends, considering the journal's 50 most cited papers and using IRaMuTeQ, an open-source computer text analysis technique. The research note presents data that show that the move within public engagement from deficit to dialogue has been followed by a further shift from championing dialogue to criticising its practice. This shift has taken place alongside a continued, but changing, interest in media coverage, surveys and models of public understanding.


Assuntos
Bibliometria , Disseminação de Informação , Publicações Periódicas como Assunto , Participação da Comunidade , Ciência
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