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1.
J Nurs Res ; 14(2): 143-54, 2006 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-16741864

RESUMO

This study explores lived experiences of Taiwanese women with multifetal pregnancies who receive fetal reduction. This qualitative study adopted a field method with observer-as-participant approach to collect data. Six subjects were recruited from a medical center using purposive sampling. Most of the subjects were contacted nine times. The total time of observation was 8-10 weeks. The collected data was analyzed by content analysis, and forming themes. The findings are as follows: (1) difficulty in accepting unexpected multiple pregnancies; (2) worry over danger/risk of multiple pregnancies and concern about fetal reduction; (3) decision to take fetal reduction for the safe delivery and health of two babies; (4) anxiety about the techniques of fetal reduction; (5) growing emotion of attachment to the fetus and guilty feeling; (6) unbearable physical/mental stress when facing the intrusion of fetal reduction; (7) being enmeshed in fear of unstable pregnancy and guilt; and (8) cloud of uncertainty diminished, return to normal pregnancy. The results indicated that the women with multifetal pregnancies, who received fetal reduction, encountered a difficult decision. They were exposed to tremendous emotional responses. The findings of this study can help nurses to gain a deeper understanding of those women's experiences. More sensitive, precise recognition, as well as suitable nursing intervention can be provided, in order to promote better acceptance of and adjustment to the fetal reduction.


Assuntos
Atitude Frente a Saúde/etnologia , Redução de Gravidez Multifetal/psicologia , Gravidez Múltipla/etnologia , Gestantes/etnologia , Adaptação Psicológica , Adulto , Ansiedade/etnologia , Ansiedade/etiologia , Tomada de Decisões , Medo , Feminino , Culpa , Humanos , Estudos Longitudinais , Relações Materno-Fetais/etnologia , Pesquisa Metodológica em Enfermagem , Apego ao Objeto , Gravidez , Complicações na Gravidez/etnologia , Complicações na Gravidez/etiologia , Redução de Gravidez Multifetal/efeitos adversos , Redução de Gravidez Multifetal/enfermagem , Pesquisa Qualitativa , Estresse Psicológico/etnologia , Estresse Psicológico/etiologia , Inquéritos e Questionários , Taiwan/epidemiologia , Ultrassonografia Pré-Natal/psicologia , Incerteza
2.
Cancer Nurs ; 26(4): 305-11, 2003 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-12886121

RESUMO

This study evaluated the quality of life among primary caregivers of Taiwanese children with brain tumors and examined the factors associated with their quality of life. Data were obtained from the Impact of Childhood Cancer on the Chinese Family survey conducted by the Taiwan Childhood Cancer Foundation in 2001. This analysis included 30 families. Quality of life among primary caregivers was measured by the World Health Organization Questionnaire on Quality of Life: BREF-Taiwan version. Quality-of-life scores for various subgroups were compared using the Mann-Whitney U test or the Kruskal-Wallis test. The scores in the physical health and psychological domains for caregivers of children with brain tumors were lower than the norm scores for healthy adults. Caregivers of boys had higher scores in social relationships. Caregivers of children within 5 years of the brain tumor diagnosis had higher scores in the physical health domain. The child's treatment stage was associated with caregiver scores in the physical health and psychological domains. The caregiver's psychological domain was negatively affected by a low education level. The health status of caregivers was positively associated with their quality of life in physical health, psychological status, social relationships, and environment domains. The lower quality of life among caregivers indicates the need for promoting an awareness in healthcare providers of the impact that having a child with brain tumor has on the quality of life. Family-centered interventions are implicated. Healthcare providers should elicit information regarding the caregiver's perceived physical health and intervene early. This may help to improve the quality of life among caregivers of children with brain tumors.


Assuntos
Neoplasias Encefálicas/enfermagem , Cuidadores/psicologia , Família/psicologia , Assistência Domiciliar/psicologia , Qualidade de Vida , Adulto , Fatores Etários , Criança , Efeitos Psicossociais da Doença , Feminino , Nível de Saúde , Humanos , Masculino , Saúde Mental , Pessoa de Meia-Idade , Pesquisa Metodológica em Enfermagem , Assistência Centrada no Paciente , Fatores Sexuais , Comportamento Social , Estatísticas não Paramétricas , Inquéritos e Questionários , Taiwan , Fatores de Tempo
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