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1.
Sociol Health Illn ; 2024 Jan 17.
Artigo em Inglês | MEDLINE | ID: mdl-38234072

RESUMO

The state-level COVID-19 response in the United States necessitated collaboration between governor' offices, health departments and numerous other departments and outside experts. To gain insight into how health officials and experts contributed to advising on COVID-19 policies, we conducted semi-structured interviews with 25 individuals with a health specialisation who were involved in COVID-19 policymaking, taking place between February and December 2022. We found two diverging understandings of the role of health officials and experts in COVID-19 policymaking: the role of 'staying in the lane' of public health in terms of the information that they collected, their advocacy for policies and their area of expertise and the role of engaging in the balancing of multiple considerations, such as public health, feasibility and competing objectives (such as the economy) in the crafting of pandemic policy. We draw on the concept of boundary-work to examine how these roles were constructed. We conclude by considering the appropriateness as well as the ethical implications of these two approaches to public health policymaking.

3.
Front Sociol ; 8: 1232555, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37693799

RESUMO

Introduction: Globally, an epidemic of psychological distress, burnout, and workforce attrition signify an acute deterioration in hospital doctors' relationship with their work-intensified by COVID-19. This deterioration is more complicated than individual responses to workplace stress, as it is heavily regulated by social, professional, and organizational structures. Moving past burnout as a discrete "outcome," we draw on theories of emotion management and alienation to analyze the strategies through which hospital doctors continue to provide care in the face of resource-constraints and psychological strain. Methods: We used Mobile Instant Messaging Ethnography (MIME), a novel form of remote ethnography comprising a long-term exchange of digital messages to elicit "live" reflections on work-life experiences and feelings. Results: The results delineate two primary emotion-management strategies-acquiescence and depersonalization-used by the hospital doctors to suppress negative feelings and emotions (e.g., anger, frustration, and guilt) stemming from the disconnect between professional norms of expertise and self-sacrifice, and organizational realities of impotence and self-preservation. Discussion: Illustrating the continued relevant of alienation, extending its application to doctors who disconnect to survive, we show how the socio-cultural ideals of the medical profession (expertise and self-sacrifice) are experienced through the emotion-management and self-estrangement of hospital doctors. Practically, the deterioration of hospital doctors' relationship with work is a threat to health systems and organizations. The paper highlights the importance of understanding the social structures and disconnects that shape this deteriorating relationship and the broad futility of self-care interventions embedded in work contexts of unrealized professional ideals, organizational resource deficits and unhappy doctors, patients, and families.

4.
Health (London) ; 27(4): 559-587, 2023 07.
Artigo em Inglês | MEDLINE | ID: mdl-34763576

RESUMO

PURPOSE: Historically, clinical reasoning has largely been considered from an empirical, biomedical standpoint. This epistemology, rooted in imperial rule, is influential in how healthcare practitioners practice. An empirical approach to healthcare often oversimplifies the complex nature of clinical reasoning by obscuring the influence of imperial ideologies on decision-making. This can perpetuate inequitable approaches to healthcare delivery which deepen social, political and economic divides globally. This paper aims to explore and challenge this standpoint by exploring how power, imperialism and performativity influences healthcare provision and decision-making amongst healthcare practitioners in dysphagia rehabilitation. METHODS: Qualitative exploratory interviews were undertaken with seven South African trained SLPs with experience working in dysphagia. To allow for participation and collaboration from participants, three data collection tools were employed within the interviews: oral histories, cognitive mapping and arts-based tasks. An initial modified thematic analysis followed by a further ideological analysis were undertaken to analyse the data collected. RESULTS: The results suggest that the participants felt influenced by several manifestations of power within healthcare. We argue that this demonstrates that imperial practices can influence knowledge, interaction and context and therefore affect how healthcare practitioners make decisions. CONCLUSION: By acknowledging the impact of imperialism and power dynamics on healthcare provision and clinical reasoning we can potentially begin to transform the epistemology from which we approach healthcare provision in favour of one which is better suited to the current realities of healthcare to allow for equitable service provision.


Assuntos
Raciocínio Clínico , Transtornos de Deglutição , Humanos , Atenção à Saúde , Pesquisa Qualitativa
5.
Health (London) ; 27(4): 458-475, 2023 07.
Artigo em Inglês | MEDLINE | ID: mdl-34523374

RESUMO

The span of kidney failure (KF) has been extended by advances in treatment. To elucidate the lived experiences of people with KF, we draw on Glaser and Strauss's theory of status passage. Semi-structured interviews were conducted with 50 patients with KF and 14 health professionals, from two healthcare facilities in Buenos Aires, Argentina. The theory informed on the temporal dimensions of people's passages and dimensions related to what actors know of this passage. We described the status passage as a sequence of transitions (starting dialysis, receiving a transplant, returning to dialysis) that have devastating effects on patient's roles, and are accompanied with fear and experience of wasting time. Temporal aspects were crucial and planning was useless; indeed, timing of statuses was uncertain. With a transplant, certain roles and capacities could be regained. Some patients were not aware of the chronic nature of the disease and the ultimate reversibility of the transplant. Control over the passage was minimal because of the unpredictable prognosis of the disease but patients employed strategies to regain it. Control was even more limited for people who migrated to receive a treatment; whose lives were completely altered. Status passage theory signaled the overwhelming impact of the passage on all aspects of people's lives, the uncertainty of the transitions, lack of control and awareness of essential aspects, and unexpected aspects of desirability, adding to our understanding of how people experience this disease and its treatments.


Assuntos
Insuficiência Renal , Humanos , Argentina , Pesquisa Qualitativa , Incerteza
6.
Health (London) ; : 13634593221139717, 2022 Dec 07.
Artigo em Inglês | MEDLINE | ID: mdl-36476072

RESUMO

This article reports on the findings from a small-scale co-produced qualitative study on experiences of distress caused by the war in Bosnia and Herzegovina (BiH). Inspired by the emerging interdisciplinary field of Mad Studies, the study is novel and unique in two ways. First, it prioritises social understanding and interpretation of madness and distress. Second, an emphasis is placed on experiential knowledge. Beyond interviews with 20 people who experienced distress due to political conflict, this included contextualisation of the study in the knowledge generated through survivor research and within the field of Mad Studies. Study findings highlight the social causes and consequences of distress caused by conflict, such as war-related violence, gender-based violence, experiences of poverty and corruption. Participants stressed the importance of safety and support within their own home, mutual and supportive relationships with their families, friends, other people who experienced distress, the broader community and opportunities to do everyday activities they enjoy. In terms of professional support, the findings suggest that poverty alleviation and protection of people's right to self-determination through access to human rights advocacy and representation may be as relevant as non-coercive community-based services. This indicates that support for distress caused by political conflict need not be different from any other support for people who experience distress. Emphasis should be placed on survivor-run initiatives and non-coercive, community-based support which addresses social causes of distress and enables people to exercise self-determination.

7.
Medicina (Kaunas) ; 58(9)2022 Sep 19.
Artigo em Inglês | MEDLINE | ID: mdl-36143986

RESUMO

Background and Objectives: The first inquisitorial processes were developed against Muslims and Jews. Then, they focused on women, especially those dedicated to care. Progressively, they were linked to witchcraft and sorcery due to their great assistance, generational and empirical knowledge. The health historiography of the 15th-18th centuries still has important bibliographic and interpretive gaps in the care provided by women. The main objective was to analyse the care provided by midwives in the legislative and socio-sanitary context of New Castile, in the inquisitorial Spain of the 15th-18th centuries. Materials and Methods: A historical review was conducted, following the Dialectical Structural Model of Care. Historical manuals, articles and databases were analysed. Results: The Catholic Monarchs established health profession regulations in 1477, including midwives. However, all legislations were annulled by Felipe II in 1576. These were not resumed until 1750. Midwives assumed a huge range of functions in their care commitment (teaching, care and religion) and were valued in opposing ways. However, many of them were persecuted and condemned by the Inquisition. They used to accompany therapeutic action with prayers and charms. Midwives were usually women in a social vulnerability situation, who did not comply with social stereotypes. Conclusions: Midwives, forerunners of current nursing and health sciences, overcame sociocultural difficulties, although they were condemned for it. Midwives achieved an accredited title, which was taken from them for two centuries. They acted as health agents in a society that demanded them while participating in a "witch hunt".


Assuntos
Tocologia , Feminino , Humanos , Tocologia/educação , Gravidez , Espanha
8.
Ciênc. Saúde Colet. (Impr.) ; 27(9): 3461-3474, set. 2022. graf
Artigo em Português | LILACS-Express | LILACS | ID: biblio-1394233

RESUMO

Resumo Este artigo examina as continuidades, rupturas e temporalidades na produção de bioidentidades no contexto da epidemia de HIV-Aids. Problematiza, a partir de um estudo multissituado na confluência de áreas e subáreas biomédicas que despontavam em popularidade nas décadas de 1980 e 1990, as agendas comuns de pesquisa sob a moldagem dos termos e categorizações popularizadas durante o pânico sexual provocado pelo aumento das taxas de contágio e morte. O desenho metodológico é caracterizado como de métodos mistos e envolveu, prioritariamente, pesquisa documental e revisão temática sobre a produção acadêmica nas áreas e disciplinas inseridas no eixo das biociências, com a finalidade de buscar e selecionar os estudos primários sobre homossexualidade e HIV/Aids, por meio da produção global. As conclusões atestam que a administração da Aids em sua condição crônica tratável produziu afinidades eletivas e de correspondência entre categorias epidemiológicas e sociais (MSM/HSH, PWA, GMLA) com noções de gênero e sexualidade definidas.


Abstract This article examines the continuities, ruptures and temporalities in the production of bioidentities in the context of the HIV-AIDS epidemic. Based on a multi-site study at the confluence of biomedical areas and sub-areas that rose in popularity in the 1980s and 1990s, it questions the common research agendas under the influence of terms and categorizations popularized during the sexual panic of AIDS caused by the increase in contagion rates and death. The methodological design is characterized as mixed methods and primarily involved documental research and thematic review on academic production in the areas and disciplines included under the aegis of the biosciences, in order to search for and select primary studies on homosexuality and HIV/AIDS, through global production. The conclusions attest that the management of AIDS in its treatable chronic condition produced elective and correspondence affinities between epidemiological and social categories (MSM/PWA, GMLA) with defined notions of gender and sexuality.

9.
Eur J Midwifery ; 5: 30, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34316548

RESUMO

INTRODUCTION: This article presents research into the professionalization of midwifery in Slovenia. Since recognition by related occupations is important for professions, this comparative study asked doctors and nurses in Slovenia about their perceptions of the status of midwifery. METHODS: A questionnaire survey was conducted with 300 Slovenian midwives, 666 nurses and 416 obstetricians. The questionnaire included statements covering traditional sociological notions of the profession (ethics, theory, power), and three notions based on new elements of professionalism (reflective practice, interdisciplinary working, and partnership with clients). RESULTS: Findings suggest that nurses perceived themselves to be less autonomous than midwives, and this partly explains why most nurses thought that midwifery should be a specialized course of study, after the general nursing diploma. Obstetricians claimed to support midwives, however, they did not give midwives credit for basic midwifery competencies and did not feel midwifery to be equal to their profession. Midwives revealed not to feel autonomous; they felt that nursing and obstetrics is jeopardizing independent midwifery practice. CONCLUSIONS: Slovenian midwifery was poorly evaluated in some attributes of professionalism, especially knowledge and autonomy. Even midwives themselves consider midwifery more occupation than profession. The autonomy of midwifery will be hard to achieve in the institutions of medical dominance. The study revealed that participants of all three groups are in a competitive relation and are poorly aware of the roles and competencies of the other two professions. Therefore, partially joined education might be beneficial in order to promote interprofessional collaboration in the future.

10.
Soc Sci Med ; 275: 113814, 2021 04.
Artigo em Inglês | MEDLINE | ID: mdl-33721747

RESUMO

This study aims to examine the association between province-level socioeconomic welfare factors and depression symptoms among older adults in China. Province-level socioeconomic characteristics were merged with microdata for respondents over 65 years from the 2018 China Health and Retirement Longitudinal Study (CHARLS) Wave 4 (N = 6657). Principal component analysis (PCA) was used to extract three socioeconomic welfare factors constructed from 14 province-level variables. A Bayesian mixed-effects logistic model was applied to measure the association between the three socioeconomic welfare factors and depression symptoms while controlling for socio-demographic variables. The PCA showed that economic welfare, medical resource welfare, and social service welfare together explained 72.2 percent of the total variance of the 14 province-level variables. It was found that increasing economic welfare was significantly associated with a lower probability of depression symptoms (OR = 0.806, 95%CI: [0.674, 0.967]), while medical facilities were associated with a higher probability of depression symptoms (OR = 1.181, 95%CI: [1.029, 1.354]) among Chinese older adults. Uncertainty existed as to whether having access to social welfare (OR = 0.941, 95%CI: [0.835, 1.060]) was associated with prevalence of depression. Thus, improved socioeconomic welfare systems for older adults (which possibly require an increase in spending) are necessary to contribute further to reduced depression risk in China. Policymakers should also improve the utilization of medical resources to mitigate the incidence of depression among the elderly in China.


Assuntos
Depressão , Aposentadoria , Idoso , Teorema de Bayes , China/epidemiologia , Depressão/epidemiologia , Humanos , Estudos Longitudinais , Seguridade Social , Fatores Socioeconômicos
11.
Health (London) ; 25(3): 288-305, 2021 05.
Artigo em Inglês | MEDLINE | ID: mdl-31692388

RESUMO

Employing a policy-as-discourse approach, we explore how the language of choice, risk and responsibilisation influences cardiovascular disease policy. We analyse four key pieces of public health literature produced in the UK between 1999 and 2013 that consider the prevention and treatment of coronary heart disease: Saving Lives: Our Healthier Nation; National Service Framework for Coronary Heart Disease; Mending Hearts and Brains and Cardiovascular Disease Outcomes Strategy. This critical discourse analysis problematises how neoliberal discourses of responsibilisation, risk and choice operate to govern health practices. Textual analysis reveals there are multiple dimensions evident in the way that responsibility for health is framed. Organisations are considered responsible 'for' illness prevention strategies and service provision, while individuals are conceptualised as responsible 'to' maintain healthy lifestyles. Conceptualising individuals as responsible health-conscious consumers enables a backward-looking narrative that holds individuals to account. Furthermore analysis reveals assumptions and messages that demonstrate the operation of moral discourses around patient behaviour. We suggest moral dimensions to public health strategies obscure the structural disparities that influence healthy life chances, imposing a system of limitations and exclusions that lead to allocation of liability and attributing blame for illness.


Assuntos
Política de Saúde , Narração , Nível de Saúde , Humanos , Idioma
12.
Uisahak ; 29(3): 843-902, 2020 12.
Artigo em Inglês | MEDLINE | ID: mdl-33503644

RESUMO

Medical sociology has a long history, and it has been institutionalized and developed since the 1940s. This paper is about the history, trends, and prospects of medical sociology from the perspective of concepts as well as its interface with medical humanities. Sociology is a discipline that conceptualizes and theorizes social phenomena on the basis of collected data to best understand them. For this reason, we think that one of the best ways to understand medical sociology is to track the changes and developments in the concept and theory of medical sociology over time. Moreover, the development of concepts and theories does not occur only within the discussion of experts but also actively in interactions with the institutional position of medical sociology, medical knowledge and institutions and society. By reflecting on the changes in the theory and concept of medical sociology over the past 70 years from the 1950s to the present, we were able to understand the changes in research interests and research subject of medical sociology. Medical sociology has developed in response to the needs of the medical community and society. On the one hand, it developed a diverse understanding of healthcare, one of the key elements of the structure and culture of modern society, and on the other hand, it developed an understanding of how each individual experiences medical care as a dominant power. Since the 1990s, these seemingly conflicting two areas integrated into one through research subjects such as the growth of the general population and the health and social movement. Furthermore, the emergence of biotechnology, which began to develop in earnest beginning in the 1980s, presented a challenge for medical sociology. If the role of Parsons in the 1950s was to reflect the American medical system based on bacteriology and therapeutic drugs, after the 1960s, chronic disease became an important health problem due to changes in American society, and the experiences of patients suffering from chronic diseases became an important research subject. However, the rapid development of biotechnology from the 1980s was powerful enough to change the way we perceive our bodies. Our society has regarded our body as a sum of cells and a combination of various organs and body parts since the birth of modern medicine, but with the development of biotechnology, including genetics, we began to recognize our body as an expression of information contained in genes. The capitalist force driving biotechnology has degraded our bodies to the extent of our resources for the accumulation of genomic information. Finally, the concepts and theories developed by medical sociology can also be applied to understand the trends of medical history in the Korean Journal of Medical History provided that medical sociology and the medical history were embedded in the particular Korean historical context. Therefore, we hope these two medical disciplines cooperate further on the medical issues in Korea.


Assuntos
Sociologia Médica , Sociologia , Atenção à Saúde , História do Século XX , Corpo Humano , Humanos , Sociedades , Estados Unidos
13.
Public Underst Sci ; 28(8): 932-948, 2019 11.
Artigo em Inglês | MEDLINE | ID: mdl-31434548

RESUMO

Since its initial publication, the Diagnostic and Statistical Manual of Mental Disorders has been the object of criticism which has led to regular revisions by the American Psychiatric Association. This article analyses the debates that surrounded the publication of the Diagnostic and Statistical Manual of Mental Disorders (5th ed.). Building on the concepts of public arenas and reception theory, it explores the meaning encoded in the manual by audiences. Our results, which draw from a thematic analysis of traditional and digital media sources, identify eight audiences that react to the American Psychiatric Association's narrative of the Diagnostic and Statistical Manual of Mental Disorders (5th ed.): conformist, reformist, humanist, culturalist, naturalist, conflictual, constructivist and utilitarian. While some of their claims present argumentative polarities, others overlap, thus challenging the idea, often presented in academic publications, of a fixed debate. In order to further discuss on the Diagnostic and Statistical Manual of Mental Disorders, we draw attention to claims that 'travel' across different communities of audiences.


Assuntos
Manual Diagnóstico e Estatístico de Transtornos Mentais , Guias como Assunto , Humanos
14.
BMJ Open ; 9(8): e030286, 2019 08 27.
Artigo em Inglês | MEDLINE | ID: mdl-31462483

RESUMO

Health is more than the absence of disease. It is also more than a biological phenomenon. It is inherently social, psychological, cultural and historical. While this has been recognised by major health actors for decades, open questions remain as to how to build systems that reflect the complexity of health, disease and sickness, and in a context that is increasingly technologised. We argue that an urgent change of approach is necessary. Methods and concepts from the humanities and social science must be embedded in the concepts and methods of the health sciences if we are to promote sustainable interventions capable of engaging with the recognised complexity of health, disease and sickness. Our vision is one of radical interdisciplinarity, integrating aspects of biological, psychological, social and humanities approaches across areas of urgent health need. Radical interdisciplinarity, we argue, entails the practical, methodological and conceptual integration of these approaches to health.


Assuntos
Ocupações em Saúde , Ciências Humanas , Comunicação Interdisciplinar , Ciências Sociais
15.
Health (London) ; 23(2): 122-138, 2019 03.
Artigo em Inglês | MEDLINE | ID: mdl-30786768

RESUMO

This article explores why landscape is a crucial element in researching the relationship between environment and well-being. The main point we make is that human social agents are embedded in particular landscapes, and it is in landscapes that environmental changes are experienced, which can have implications for well-being. We draw from a variety of perspectives on landscape that understands a fundamental creative relation between humans and landscape and recent developments in neo-materialism theorising. Landscape is understood here as an assemblage of different forms of matter, animate and inanimate objects, as well as symbolic and cultural processes. A case study is also presented to indicate how landscape can be studied in relation to environment and change. Using the conceptual ideas laid out in the first section of the article, we analyse landscape, environment and well-being in Xuan Thuy National Park in North Vietnam. The area is part of a precarious coastal region where extreme weather events have impacted on the well-being of both humans and other matter. This article concludes with suggestions on the use of this landscape approach in researching environment and well-being.


Assuntos
Meio Ambiente , Nível de Saúde , Saúde Mental , Sociologia Médica , Humanos , Qualidade de Vida
16.
Ann Agric Environ Med ; 24(4): 648-653, 2017 Dec 23.
Artigo em Inglês | MEDLINE | ID: mdl-29284242

RESUMO

INTRODUCTION: Poland is among the countries which reported the highest rates of mortality from cancer. The health behaviours of people are influenced, among other things, by their beliefs about cancer, but their evaluation of oncological institutions and specialists seems also to be of great importance. Objectives. 1. How the respondents evaluate Polish oncology: a) the conditions of treatment in oncology hospitals, b) access to oncological medical services, c) the competence of oncologists. 2. What are the socio-cultural factors of the assessment of Polish oncology? 3. What is the influence of the grade level of the assessment of Polish oncology on the degree of fear and the knowledge about cancer? MATERIAL AND METHODS: The study was carried out with a sample of 910 adult residents of Wroclaw in south-west Poland. Quota sampling was used. An interview questionnaire was used as the method. RESULTS: Analysis of the data showed a negative image of Polish oncology, according to the study participants: dissatisfaction with both treatment conditions and with access to medical services. Assessment of Polish oncology depends primarily on education, age and economic situation, as well as 'family history of cancer', and attitude towards doctors. The lower the rating of Polish oncology, the lower the medical knowledge, and the higher the level of fear of cancer. CONCLUSIONS: Negative assessment of Polish oncology perpetuates the fear of cancer in society. There is a need for constant improvement of the quality of medical oncology services, for building public trust in physicians, to fight inequalities in health, and to take into account the lay perspectives in developing strategies to combat cancer.


Assuntos
Cultura , Neoplasias/psicologia , Adulto , Idoso , Atitude , Feminino , Humanos , Masculino , Oncologia , Pessoa de Meia-Idade , Polônia , Fatores Socioeconômicos , Inquéritos e Questionários , Adulto Jovem
17.
Ciênc. Saúde Colet. (Impr.) ; 22(6): 1805-1816, jun. 2017. tab, graf
Artigo em Português | LILACS, Repositório RHS | ID: biblio-840013

RESUMO

Introdução: A Saúde Bucal Coletiva (SBC) pode designar um fenômeno histórico especifico, distinto das outras "Odontologias Alternativas" e um referencial teórico para as práticas odontológicas em serviços de saúde. Objetivos: Este estudo buscou compreender a permanência das "Odontologias Alternativas" no espaço social de luta pela saúde bucal no Brasil, a partir de posições dos agentes fundadores e precursores, levando em consideração as concepções de SBC, Saúde Coletiva (SC) e SUS. Material e métodos: Partiu-se da teoria das práticas de Pierre Bourdieu, complementada pelos conceitos de hegemonia e contra-hegemonia em Gramsci. Realizaram-se 12 entrevistas em profundidade, revisão documental e análise da produção científica, além das trajetórias dos agentes e seus capitais em 1980 e 2013. Resultados: Os resultados indicam que a concepção de SBC e SC como ruptura com as práticas de saúde oriundas às "Odontologias Alternativas" prevaleceu entre aqueles com disposições políticas em defesa da democracia e da Reforma Sanitária. Conclusão: Embora a SBC tenha proposta crítica, permanecem antigas "Odontologias" na produção científica e nas práticas de saúde bucal.


Introduction: Group Oral Health (GOH) is a specific phenomenon in time, separate from other "Alternative Odontology", and a theoretical reference for dental practice in healthcare services. Objectives: This study is an attempt to understand how long "Alternative Odontology" will remain with the social context of struggling for oral health in Brazil, based on the positions of the founding agents and their precursors, bearing in mind the concepts of GOH, GH (Group Health) and the SUS (Unified Healthcare System). Material e methods: We started out with Pierre Bourdieu's Practice Theory, complemented with Gramsci's concept of hegemony and counter-hegemony. We completed 12 in-depth interviews, reviewed the literature and analyzed the scientific output. We also looked at the trajectories of the agents and their capital between 1980 and 2013. Results: The results show that the concept of GOC and GH as a breach with health practices, which gave rise to "Alternative Odontology", prevailed among those with the political will to defend democracy and Healthcare Reforms. Conclusion: Although GOC is a critical proposal, the older "Odontology" remains in scientific journals, and in the practice of oral care.


Assuntos
Humanos , Saúde Bucal , Assistência Odontológica/organização & administração , Atenção à Saúde/organização & administração , Programas Nacionais de Saúde/organização & administração , Brasil , Assistência Odontológica/tendências , Reforma dos Serviços de Saúde , Atenção à Saúde/tendências , Programas Nacionais de Saúde/tendências
18.
Health (London) ; 21(3): 337-353, 2017 05.
Artigo em Inglês | MEDLINE | ID: mdl-28521648

RESUMO

Within the conceptual framework of 'medically-ill-defined' conditions, this article focuses on the experiences of 'diagnosis' through a narrative analysis of fibromyalgia (a chronic musculoskeletal pain disorder) in South Africa. In-depth interviews were used to collect narratives from 15 participants. The findings show how the contested and confusing experience of fibromyalgia diagnosis can be understood, by viewing the interactions that patients have with their practitioners, families, peers and colleagues. The currency of fibromyalgia as a diagnosis and the inequalities present in the South African health care system characterise the experiences of symptom recognition, diagnosis and treatment. The analysis reveals how those living with fibromyalgia search for diagnosis, and struggle to maintain legitimacy for their experience in the complex constellation of porous symptoms that appear infrequently. The findings of this study confirm the existing evidence that shows fibromyalgia to be a challenging illness experience, which is attributed to the lack of clarity and legitimacy, and high contestation that surrounds the condition. Additionally, this study presents the ways that limited access to diagnosis and treatment for fibromyalgia in the South African context shapes this specific illness experience, and the value of using narrative approaches to gain insight into how people live with hidden and poorly understood conditions in this environment.


Assuntos
Atitude Frente a Saúde , Dor Crônica/etiologia , Fadiga/etiologia , Fibromialgia/diagnóstico , Fibromialgia/psicologia , Sintomas Inexplicáveis , Perfil de Impacto da Doença , Apoio Social , Adulto , Dor Crônica/psicologia , Dor Crônica/terapia , Diagnóstico Diferencial , Fadiga/psicologia , Fadiga/terapia , Feminino , Fibromialgia/complicações , Fibromialgia/economia , Humanos , Seguro Saúde/classificação , Seguro Saúde/economia , Entrevistas como Assunto , Pessoa de Meia-Idade , Narração , Pesquisa Qualitativa , Fatores Socioeconômicos , África do Sul , Adulto Jovem
19.
Sage Open ; 5(1)2015.
Artigo em Inglês | MEDLINE | ID: mdl-26064788

RESUMO

For this study, we conducted seven focus groups in the Los Angeles area with a total of 70 participants (42 Latinos and 28 African Americans) recruited from three senior centers and a church. There was a wide variety of responses in relation to the usage of financial services among participants. We found that although some participants seem to participate more in the formal financial sector and show a higher level of sophistication when managing their finances, other participants' use of formal financial institutions is minimal. Among African American participants, we found several instances in which individuals feel very comfortable using banks. Lower levels of participation in the formal financial sector were found among the lower income Latino participants. In relation to barriers to participate in the financial sector, supply was not an issue, but demand and behavioral factors seem more important. Overall, no participants saved very much on a regular basis. We also find that participants in general do not want to ask their children for money, and also do not want to save and accumulate wealth to leave to their children.

20.
Saúde Soc ; 24(supl.1): 124-140, Apr-Jun/2015.
Artigo em Inglês | LILACS | ID: lil-749903

RESUMO

The idea of a social dimension of health is widely accepted as unavoidable and relevant for public health. This article proposes a reflection around the notion of the social examining some of the manifold ways in which it might be inherited by researchers, professionals, administrative staff and material settings involved in the practices of public health care. It will be argued that this inheritance has deep consequences for efforts of care inasmuch these different versions of the social characterise, circumscribe and reframe the health-society relation, modifying the scope under which public health issues are tackled or dismissed. To ground this seemingly abstract discussion I will work considering a specific public health problem: the case of frequent attenders in public health. Drawing on two approaches from the Sociology of Health (i.e. illness-behaviour and the user-professional relation) and the field of Science and Technology Studies, I will show how these ways of framing the study of frequent attenders assume and simultaneously promote three different versions of the social. The article aims to explore how social research in these traditions participate in the achievement and promotion of specific health-society relations, in which certain notions of the social operate helping or limiting research and care efforts by creating richer or poorer possibilities for posing, examining and facing the problems of public health.


La idea de una dimensión social de la salud ha sido ampliamente aceptada como inevitable y relevante para la salud pública. Este artículo propone una reflexión en torno a la noción de lo social examinando algunas de las muchas formas en que ésta puede ser heredada por los investigadores, profesionales, personal administrativo y contextos materiales involucrados en las prácticas sanitarias. Se propondrá que esta herencia tiene consecuencias importantes para los esfuerzos de atención en la medida en que distintas versiones de lo social caracterizan, circunscriben y replantean la relación salud-sociedad, modificando el alcance bajo el cual se enfrentan o descartan los problemas de salud pública. Para situar esta discusión, aparentemente abstracta, se trabajará a partir de un problema específico de salud pública: el caso de los pacientes policonsultantes. Tomando elementos de dos aproximaciones de la Sociología de la Salud (el comportamiento de enfermedad y la relación usuario-profesional) y del campo de los Estudios de Ciencia, Tecnología y Sociedad, mostraré cómo estas maneras de dar forma al estudio de los policonsultantes asumen y simultáneamente promueven tres versiones distintas de lo social. El artículo busca explorar cómo la investigación social situada en estas tradiciones participa en el logro y promoción de relaciones específicas entre salud y sociedad, en las cuales ciertas nociones de lo social operan ayudando o limitando los esfuerzos de cuidado e investigación, creado posibilidades más ricas o pobres para plantear, examinar y enfrentar los problemas de la salud pública.


Assuntos
Humanos , Masculino , Feminino , Ciência, Tecnologia e Sociedade , Pesquisa , Prática de Saúde Pública , Saúde Pública , Sociologia
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