Does autonomous motivation and self-efficacy mediate associations between environmental factors and physical activity in adolescents?

BACKGROUND: To analyze the associations among autonomous motivation, self-efficacy, satisfaction of basic psychological needs, social support and perceived environment with physical activity practice of adolescents aged between 12 and 15 years; and to test autonomous motivations and self-efficacy as potential mediators of the associations between these environmental factors and physical activity practice. METHODS: We evaluated 553 adolescents, that participated in the ActTeens Program. Physical activity was assessed using the Physical Activity Questionnaire for Adolescents. Autonomous motivation, self-efficacy, satisfaction of basic psychological needs, parents' social support and perceived environment were assessed using specifics questionnaires. Linear regression models were used to test the associations. RESULTS: Parents' support (ß = 0.32), satisfaction of basic psychological needs of colleagues (ß = 0.21) and teachers (ß = 0.12), and perceived environment (ß = 0.10) had significant associations with physical activity (p < 0.05). The direct effect value was reduced when autonomous motivation was added as a mediator of the association between parents' support and physical activity (ß = 0.24), with a 25% mediated effect. Autonomous motivation was mediator of the relationship between basic psychological needs of colleagues (ß = 0.13; EM = 38%), teachers (ß = 0.02; EM = 83%), and perceived environment (ß = 0.03; EM = 70%) with physical activity. CONCLUSION: Self-efficacy was not associated with physical activity and autonomous motivation was an important mediator of adolescents' physical activity.

Modeling learning-oriented motivation in health students: a system dynamics approach.

BACKGROUND: Evidence shows that motivational practices focused on utility, importance, and autonomy shape university students' motivational orientation toward learning. On the other hand, the relationship between these variables and motivational orientation toward learning is not linear and requires models that describe their behavior over time. METHOD: In this study, mathematical modeling based on system dynamics methodology is used to simulate in health students the temporal dynamics of the motivational orientation toward learning based on the behavior of these variables in different scenarios. RESULTS: The results indicate that a) Mastery is sensitive to changes in frequency when importance and autonomy practices are performed; b) the development of Mastery is critical in the first three semesters of academic life, but its loss is hardly recoverable even when practices are incorporated in subsequent semesters; c) Utility-focused motivational practices have no significant effect on the development of learning-oriented motivation. CONCLUSION: These findings have significant practical implications for higher education. Understanding the critical role of Mastery in the early stages of academic life and the limited potential for recovery if lost can help raise awareness of the importance of early implementation of motivational practices focused on relevance and autonomy.

Training and provision of mobility aids to promote autonomy and mobility of older patients in a geriatric emergency department: A protocol for a randomized controlled trial.

Older adults have higher rates of emergency department (ED) admissions when compared to their younger counterparts. Mobility is the ability to move around, but also encompasses the environment and the ability to adapt to it. Walking aids can be used to improve mobility and prevent falls. According to international guidelines, they must be available in Geriatric EDs. This study aims to evaluate the efficacy of a program of training and provision of walking aids (WA), associated or not with telemonitoring, on fear of falling, mobility, quality of life and risk of falls up to 3 and 6 months in older adults cared for in an ED. A randomized controlled trial will be carried out in the ED. Participants will be randomized and allocated into three groups, as follows: A) walking aid group will be trained for the use of a walking aid and receive guidance on safe gait; B) walking aid and telemonitoring group will receive training for the use of a walking aid, guidance on safe gait, and telemonitoring (every two weeks for first three months); C) Control group will receive only guidance on safe gait. Patients will undergo a baseline evaluation encompassing sociodemographic and clinical data, mobility in life spaces, gait speed, muscle strength, functionality, quality of life, fear of falling, history of falls, cognition and mood before the intervention. Gait time and fear of falling will be assessed again after the intervention in ED. Finally, mobility in life spaces, functionality, quality of life, fear of falling, history of falls, cognition, and mood will be assessed 3 and 6 months after discharge from the geriatric ED through a telephone interview. Provision of walking aids in the geriatric ED is currently recommended. This study will be the first randomized controlled trial that will evaluate the impact of training and provision of these devices in the ED. Trial registration number: NCT05950269.

Factors associated with the health and reproductive autonomy of Quilombola women in Brazil.

Objective: To verify the association between reproductive autonomy and sociodemographic, sexual, and reproductive characteristics in Quilombola women (a term indicating the origin of politically organized concentrations of Afro-descendants who emancipated themselves from slavery). Methods: Cross-sectional and analytical study with 160 women from Quilombola communities in the southwest of Bahia, Brazil. Data were collected using the Reproductive Autonomy Scale and the questionnaire from the National Health Survey (adapted). Results: Out of the 160 participating women, 91.9% declared themselves as black, one out of every three were aged ≤ 23 years, 53.8% were married or had a partner, 38.8% had studied for ≤ 4 years, over half (58.1%) were unemployed, only 32.4% had a monthly income > R$ 430 (80 US dollars), 52.5% had their first menstruation at the age of 12, 70.7% had not accessed family planning services in the last 12 months, and over half used some method to avoid pregnancy (59.0%). The women had a high level of reproductive autonomy, especially in the "Decision-making" and "Freedom from coercion" subscales with a score of 2.53 and 3.40, respectively. A significant association (p<0.05) was found between the "Total reproductive autonomy" score and marital status, indicating that single or unpartnered women had higher autonomy compared to married or partnered women. Conclusion: The association of social determinants of health such as marital status, education, and age impacts women's reproductive choices, implying risks for sexual and reproductive health. The intergenerational reproductive autonomy of Quilombola women is associated with sociodemographic and reproductive factors.

Successful Case of Double Valve Replacement Surgery Using Autologous Blood Transfusion: A Patient's Autonomy Preserved with Excellent Clinical Outcome.

BACKGROUND A blood cell saver, or autotransfusion system, is used to collect, wash, and return autologous blood collected from the surgical patient. This report describes a 55-year-old man who underwent combined mitral and aortic valve replacement surgery with cardiopulmonary bypass and had a successful outcome following intraoperative and postoperative autologous blood transfusion using a blood cell saver. CASE REPORT The patient did not accept blood transfusion for reasons of religious conscience and was in a critical condition, receiving palliative care. He needed combined mitral and aortic valve replacement surgery. The surgery was conducted using a cell saver (Sorin Xtra Autotransfusion System) in the intraoperative and postoperative periods for 24 h, to resolve this challenging case, from a technical and ethical point of view. The volume of red blood cells recovered intraoperatively was 1430 mL, with a hematocrit level of 40%, and 690 mL, with a hematocrit of 35%, in the postoperative period. Therefore, a significant volume of autologous blood was recovered. The autologous blood transfusion resulted in an excellent clinical outcome for the patient, who was discharged on the ninth postoperative day. CONCLUSIONS We can conclude that the use of a blood cell saver in cardiac surgery, in both intra- and postoperative periods, resulted in the maintenance of adequate hemoglobin and hematocrit levels, no infection postoperatively, and rapid and complete recovery of the patient. Thus, the use of the blood cell saver guaranteed the individual's autonomy to refuse blood products safely, with good clinical results, and without dependence on allogeneic blood transfusions.

Cross-cultural adaptation of the Rotterdam Transition Profile to Brazilian Portuguese: measuring autonomy in participation of Brazilian youth with cerebral palsy.

BACKGROUND: Autonomy in participation of young adults with cerebral palsy (CP) is not well understood due to the lack of appropriate instruments, especially for the Brazilian population. The Rotterdam Transition Profile (RTP) categorizes autonomy in Participation (education, employment, finances, housing, leisure, intimate relationships, sexuality, transportation) and Health Services (care demands, services and aids, and rehabilitation services) domains. OBJECTIVES: To cross-culturally adapt the RTP for use in Brazil, and to describe the levels of autonomy in participation and associated factors of Brazilian youth with CP. METHODS: RTP was translated and content validity was investigated through an expert panel (n = 4 researchers and n = 4 clinicians); 30 adolescents and young adults with CP provided data for construct validity and internal consistency analysis. To analyze influencing factors, 56 youth with CP, mean age 25 years (SD = 6.9 years), with good cognitive level remotely responded to the RTP, sociodemographic information, and functional classifications (gross motor, manual ability). RESULTS: Following translation, content and construct validity were established, with changes made to improve the clarity of items. Cronbach's alpha (0.82) was considered good and test-reliability was fair to good for most items. High levels of autonomy were found in the areas of Leisure and Rehabilitation, with the lowest proportion of participants with autonomy in Housing, Intimate Relationships, and Finances. Autonomy in participation was associated with age, gross motor and manual ability classifications, and with context-related factors. CONCLUSION: The Brazilian Portuguese version of the RTP was considered valid and reliable. Findings will support transition planning for young people with CP.

A healthcare approach to mental integrity.

The current human rights framework can shield people from many of the risks associated with neurotechnological applications. However, it has been argued that we need either to articulate new rights or reconceptualise existing ones in order to prevent some of these risks. In this paper, we would like to address the recent discussion about whether current reconceptualisations of the right to mental integrity identify an ethical dimension that is not covered by existing moral and/or legal rights. The main challenge of these proposals is that they make mental integrity indistinguishable from autonomy. They define mental integrity in terms of the control we can have over our mental states, which seems to be part of the authenticity condition for autonomous action. Based on a fairly comprehensive notion of mental health (ie, a notion that is not limited to the mere absence of illness), we propose an alternative view according to which mental integrity can be characterised both as a positive right to (medical and non-medical) interventions that restore and sustain mental and neural function, and promote its development and a negative right protecting people from interventions that threaten or undermine these functions or their development. We will argue that this notion is dissociated from cognitive control and therefore can be adequately distinguished from autonomy.

Language-based acculturation is linked with reproductive autonomy among Oregon Mexican-origin Latinas.

OBJECTIVES: We test whether the level of acculturation is associated with reproductive autonomy among Mexican-origin Latinas in Oregon. STUDY DESIGN: This was a cross-sectional study that used validated reproductive autonomy and language-based acculturation scales and sociodemographic information. We compared maximum reproductive autonomy score, overall and for each subscale (decision-making, freedom from coercion, and communication), by acculturation group. We developed a multivariable logistic regression model adjusted for age, education, and regular income source. RESULTS: Our sample included 434 respondents: 70.7% low, 26.7% bicultural, and 2.5% in the high acculturation group. A higher unadjusted proportion of women in the bicultural/high acculturation group than the low acculturation group had maximum reproductive autonomy scores (13.4% compared with 3.9%; p < 0.001). In adjusted analyses, women in the high/bicultural acculturation group had significantly higher odds of reporting a maximum reproductive autonomy score (adjusted odds ratio = 2.55, 95% CI: 1.08-5.98). CONCLUSIONS: Language-based acculturation was positively associated with reproductive autonomy among a community-dwelling sample of Mexican-origin Latinas in Oregon.

Incidence of Muscular Strength, Anthropometry, and Asymmetry in the General Index of Autonomy in Older Chilean Women / Incidencia de la Fuerza Muscular, Antropometría y Asimetría en el Índice General de Autonomía en Mujeres Mayores Chilenas

SUMMARY: Frailty affects the functional autonomy (FA) of older adults and could manifest itself in muscle imbalances in the limbs, resulting in a disparity in size and strength between them. In Chile, information on the relationship between muscle strength (MS) levels and FA asymmetries in older women is limited. This study related the levels of MS, anthropometric parameters, and asymmetries of the lower and upper limbs, with the FA of a group of older Chilean women. The study included 39 women who participated, and their FA was evaluated using the GDLAM index (IG). Based on the score obtained in the IG, they were classified by percentiles as Group 1 with favorable FA (P ≤ 50) and Group 2 with low FA (P > 50). Anthropometric parameters were BMI, fat percentage, bone mass, circumferences (arm, thigh, calf), diameters (humerus, femur) and upper/lower limb strength was evaluated to determine asymmetries. The differences between the covariates of both groups were evaluated using the student's t test and the Mann-Whitney test for independent samples. G1 presented less asymmetry (p > 0.05) in the lower limbs and greater calf circumference than G2 (p < 0.05). G1 presented greater bilateral strength (dominant and non-dominant limb) compared to G2 (p < 0.05). The covariates of age, anthropometry, MS, and lower/upper limb asymmetries influence FA in older women.

La fragilidad afecta la autonomía funcional (AF) de las personas mayores y podría manifestarse en desequilibrios musculares en los miembros, dando lugar a una disparidad de tamaño y fuerza entre ellos. En Chile, la información que relaciona los niveles de fuerza muscular (FM) y las asimetrías con la AF en mujeres mayores es limitada. Este estudio relacionó los niveles de FM, parámetros antropométricos y asimetrías de los miembros inferiores y superiores, con la AF de un grupo de mujeres mayores chilenas. Participaron 39 mujeres, cuya AF se evaluó mediante el índice GDLAM (IG). En función de la puntuación obtenida en el IG, se clasificaron por percentiles en Grupo 1 con AF favorable (P ≤ 50) y Grupo 2 con AF baja (P > 50). Los parámetros antropométricos fueron IMC, porcentaje de grasa, masa ósea, circunferencias (brazo, muslo, pantorrilla), diámetros (húmero, fémur) y se evaluó la fuerza de los miembros superiores/ inferiores para determinar asimetrías. Las diferencias entre las covariables de ambos grupos se evaluaron mediante la prueba t de student y la prueba de Mann-Whitney para muestras independientes. G1 presentó menor asimetría (p > 0,05) en los miembros inferiores y mayor perímetro de pantorrilla que G2 (p < 0,05). G1 presentó mayor fuerza bilateral (miembro dominante y no dominante) en comparación con G2 (p < 0,05). Las covariables de antropometría, FM y asimetrías de extremidades inferiores/superiores influyen en la AF en mujeres mayores.

Factors associated with the health and reproductive autonomy of Quilombola women in Brazil / Factores asociados a la salud y la autonomía reproductiva de las mujeres quilombolas en Brasil / Fatores associados à saúde e autonomia reprodutiva de mulheres quilombolas no Brasil

Objective.To verify the association between reproductive autonomy and sociodemographic, sexual, and reproductive characteristics in Quilombola women (a term indicating the origin of politically organized concentrations of Afro-descendants who emancipated themselves from slavery).Methods. Cross-sectional and analytical study with 160 women from Quilombola communities in the southwest of Bahia, Brazil. Data were collected using the Reproductive Autonomy Scale and the questionnaire from the National Health Survey (adapted).Results. Out of the 160 participating women, 91.9% declared themselves as black, one out of every three were aged ≤ 23 years, 53.8% were married or had a partner, 38.8% had studied for ≤ 4 years, over half (58.1%) were unemployed, only 32.4% had a monthly income > R$ 430 (80 US dollars), 52.5% had their first menstruation at the age of 12, 70.7% had not accessed family planning services in the last 12 months, and over half used some method to avoid pregnancy (59.0%). The women had a high level of reproductive autonomy, especially in the "Decision-making" and "Freedom from coercion" subscales with a score of 2.53 and 3.40, respectively. A significant association (p<0.05) was found between the "Total reproductive autonomy" score and marital status, indicating that single or unpartnered women had higher autonomy compared to married or partnered women. Conclusion.The association of social determinants of health such as marital status, education, and age impacts women's reproductive choices, implying risks for sexual and reproductive health. The intergenerational reproductive autonomy of Quilombola women is associated with sociodemographic and reproductive factors.

Objetivo. Verificar la asociación entre autonomía reproductiva y características sociodemográficas, sexuales y reproductivas en mujeres quilombolas (término que indica procedencia de concentraciones de afrodescendientes políticamente organizadas que se emanciparon de la esclavitud). Métodos. Estudio transversal y analítico con 160 mujeres de comunidades quilombolas del sudoeste de Bahía, Brasil. Los datos fueron recolectados utilizando la Escala de Autonomía Reproductiva y el cuestionario de la Encuesta Nacional de Salud (adaptado). Resultados. De las 160 mujeres participantes 91.9% se declararon negras, una de cada tres tenía edad ≤ 23 años, 53.8% estaban casada o tenían pareja, 38.8% había estudiado por ≤ 4 años, más de la mitad (58.1%) no trabajaba, solo 32.4% tenía renta > R$ 430 mensual (87 $US dólares), el 52.5% tuvo la primera menstruación a los 12 años, 70.7% no había acudido a servicios de planificación familiar en los últimos 12 meses y más de la mitad usaba algún método para evitar embarazo (59%). Las mujeres tuvieron un alto nivel de autonomía reproductiva, especialmente en las subescalas "Toma de decisiones" y "Ausencia de coerción" con una puntuación de 2.53 y 3.40, respectivamente. Se encontró asociación significativa (p<0.05) entre la puntuación de "Autonomía reproductiva total" con el estado civil, indicando el análisis que las mujeres solteras o sin pareja tenían mayor autonomía en comparación con las casadas o con pareja. Conclusión. La asociación de determinantes sociales de la salud como el estado civil, la escolaridad y la edad interfieren en las opciones reproductivas de las mujeres, implicando riesgos para la salud sexual y reproductiva. La autonomía reproductiva intergeneracional de las mujeres quilombolas está asociada a factores sociodemográficos y reproductivos.

Objetivo. Verificar a associação entre a autonomia reprodutiva e características sociodemográficas, sexuais e reprodutivas em mulheres quilombolas (termo que indica a origem de concentrações politicamente organizadas de pessoas de ascendência africana que se emanciparam da escravatura). Métodos. Estudo transversal e analítico com 160 mulheres (80 mães e 80 filhas) de comunidades quilombolas no sudoeste baiano, no Brasil. Os dados foram construídos através da aplicação da Escala de Autonomia Reprodutiva e do questionário da Pesquisa Nacional de Saúde (adaptado). Resultados. das 160 mulheres participantes 91.9% se autodeclararam negra, a maioria com idade ≤ 23 anos (35.6%), 53.8% são casadas ou com companheiro, 38.8% com estudos ≤ 4 anos, mais da metade (58.1%) não trabalham, apenas 32.4% têm renda > R$ 430, a maioria teve a primeira menstruação até os 12 anos de idade (52.5%), não participou de grupo de planejamento familiar nos últimos 12 meses (70.7%), mais da metade utilizava método para evitar a gravidez (59%). Apresentaram elevada autonomia reprodutiva, com destaque para as subescalas "Tomada de decisão" e "Ausência de coerção" medindo 2.53 e 3.40, respectivamente. Encontrou-se associação significativa (p<0.05) entre o escore de "Autonomia reprodutiva total" e estado conjugal, com a análise indicando que mulheres solteiras ou sem companheiro apresentaram maior autonomia, comparadas às mulheres casadas ou com companheiro. Conclusão. A associação dos determinantes sociais de saúde como estado civil, menarca, escolaridade e idade interferem nas escolhas reprodutivas das mulheres, implicando em riscos à saúde sexual e reprodutiva. A autonomia reprodutiva intergeracional das mulheres quilombolas está associada a fatores sociodemográficos e reprodutivos.

A Mixed-Methods Study Exploring Colombian Adolescents' Access to Sexual and Reproductive Health Services: The Need for a Relational Autonomy Approach.

This study's objective was to understand Colombian adolescents' experiences and preferences regarding access to sexual and reproductive health services (SRHS), either alone or accompanied. A mixed-method approach was used, involving a survey of 812 participants aged eleven to twenty-four years old and forty-five semi-structured interviews with participants aged fourteen to twenty-three. Previous research shows that adolescents prefer privacy when accessing SRHS and often do not want their parents involved. Such findings align with the longstanding tendency to frame the ethical principle of autonomy as based on independence in decision-making. However, the present study shows that such a conceptualization and application of autonomy does not adequately explain Colombian adolescent participants' preferences regarding access to SRHS. Participants shared a variety of preferences to access SRHS, with the majority of participants attaching great importance to having their parents involved, to varying degrees. What emerges is a more complex and non-homogenous conceptualization of autonomy that is not inherently grounded in independence from parental involvement in access to care. We thus argue that when developing policies involving adolescents, policymakers and health professionals should adopt a nuanced "relational autonomy" approach to better respect the myriad of preferences that Colombian (and other) adolescents may have regarding their access to SRHS.

A Psychological Examination of the Status Syndrome and Its Application for Promoting Well-Being.

The status syndrome proposed by Marmot is located at the closest level of influence within the Social Determinants of Health (SDH) framework, connecting the body's response to the mental states that arise from the subjective experience of social status. Marmot defines these psychological states through concepts of autonomy and social integration articulated in the Capability Approach (CA). These elements are further explored and expanded upon with the Self-Determination Theory (SDT), an empirically based framework with an extensive tradition of practical application. This lays the groundwork not only for understanding what makes a social environment conducive to well-being but also for shedding light on ways to promote it. The article goes beyond theoretical discussions by introducing a structured model based on the principles of the SDT for health promotion interventions. The model emphasizes the importance of providing a supportive atmosphere and is organized into four distinct phases aimed at aligning interventions with individual motivations, and cultural contexts. Ultimately, the goal is to engage individuals to actively participate in their own well-being while addressing the complexities associated with social inequalities in developed societies.

Euthanasia, consensual homicide, and refusal of treatment.

Consensual homicide remains a crime in jurisdictions where active voluntary euthanasia has been legalized. At the same time, both jurisdictions, in which euthanasia is legal and those in which it is not, recognize that all patients (whether severely ill or not) have the right to refuse or withdraw medical treatment (including life-saving treatment). In this paper, I focus on the tensions between these three norms (the permission of active euthanasia, the permission to reject life-saving treatment, and the prohibition of consensual homicide), assuming a justification of euthanasia based on the right to (personal) autonomy. I argue that the best way to provide a coherent account of these norms is to claim that patients have two distinct rights: the right to autonomy and the right to bodily integrity. This solution has some relevant implications for the discussion of the legalization of active euthanasia.

Autogestão do diabetes na adolescência: experiência de jovens adultos e pais portugueses / Autogestión de la diabetes en la adolescencia: experiencias de jóvenes adultos y padres portugueses / Self-management of diabetes in adolescence: experience of Portuguese young adults and their parents

Resumo Objetivo Identificar os fatores que facilitam ou dificultam a construção da autonomia na adolescência através da experiência de jovens adultos com diabetes tipo 1 e seus pais. Métodos Estudo de natureza qualitativa, descritiva e exploratória. Foram realizadas duas entrevistas de grupo focal, uma com nove jovens adultos peritos na gestão de sua doença e outra com sete pais. Para análise dos dados, foram usados análise de conteúdo temática e categorial, com particularidades de entrevista de grupo focal, e recurso ao software NVIVO 12. Resultados Emergiram duas grandes categorias e dez subcategorias relativas aos fatores que facilitaram (sistemas de suporte, conhecimentos, alimentação, bomba de insulina, responsabilização precoce pela gestão da terapêutica, características dos jovens), e dificultaram (regime terapêutico, estigma, atitude dos profissionais de saúde, características dos jovens, conhecimento) o desenvolvimento da autonomia na gestão da doença. Conclusão A autonomia na gestão do diabetes envolve vários desafios aos adolescentes, o que requer adequação de atitudes e intervenções de profissionais. Além da gestão tradicional da condição de saúde, é essencial abordar temas relacionados com a socialização dos adolescentes, procurando estratégias inovadoras que promovam o coping e a qualidade de vida. Os resultados deste estudo possibilitam refletir sobre a relação terapêutica com os adolescentes, salientando a importância de individualizar cuidados e respostas inovadoras às suas necessidades específicas.

Resumen Objetivo Identificar los factores que facilitan o dificultan la construcción de la autonomía en la adolescencia a través de la experiencia de jóvenes adultos con diabetes tipo 1 y sus padres. Métodos: Estudio de naturaleza cualitativa, descriptiva y exploratoria. Se realizaron dos entrevistas de grupo focal, una con nueve jóvenes adultos expertos en la gestión de su enfermedad y otra con siete padres. Para el análisis de datos se utilizó el análisis de contenido temático y categorial, con particularidades de entrevista de grupo focal y recurso del software NVIVO 12. Resultados Surgieron dos grandes categorías y diez subcategorías relativas a los factores que facilitaron el desarrollo de la autonomía en la gestión de la enfermedad (sistemas de apoyo, conocimientos, alimentación, bomba de insulina, responsabilización temprana de la gestión de la terapéutica, características de los jóvenes) y los que la dificultaron (régimen terapéutico, estigma, actitudes de los profesionales de la salud, características de los jóvenes, conocimientos). Conclusión La autonomía en la gestión de la diabetes incluye muchos desafíos para los adolescentes, lo que requiere adaptación de actitudes e intervenciones de profesionales. Además de la gestión tradicional del estado de salud, es esencial abordar temas relacionados con la socialización de los adolescentes y buscar estrategias innovadoras que promuevan el coping y la calidad de vida. Los resultados de este estudio permiten reflexionar sobre la relación terapéutica con los adolescentes y destacar la importancia de individualizar los cuidados y las respuestas innovadoras para sus necesidades específicas.

Abstract Objective To identify the factors that facilitate or hinder the construction of autonomy in adolescence through the experience of young adults with type-1 diabetes and their parents. Methods This was a qualitative, descriptive, and exploratory study. Two focus group interviews were conducted: one with nine young adults who were experts in managing their illness and the other with seven parents. Thematic and categorical content analysis was used for data analysis, with particularities of a focus group interview and the use of the NVIVO 12 software. Results Two major categories and ten subcategories related to factors that facilitated (support systems, knowledge, diet, insulin pump, early responsibility for managing therapy, and characteristics of young people) and hindered (therapeutic regimen, stigma, attitude of health professionals, characteristics of young people, and knowledge) the development of autonomy in disease management emerged. Conclusion Autonomy in the management of diabetes involves several challenges for adolescents, which requires adaptation of attitudes and interventions by professionals. In addition to the traditional management of the health condition, addressing issues related to the socialization of adolescents is essential, looking for innovative strategies that promote coping and quality of life. The results of this study make it possible to reflect on the therapeutic relationship with adolescents, emphasizing the importance of individualizing care and innovative responses to their specific needs.

Bons encontros e cidadania: os sentidos atribuídos ao serviço de convivência e fortalecimento de vínculos pelos(as) idosos(as) / Good meetings and citizenship: the meanings attributed to the service of coexistence and strengthening of bonds (serviço de convivência e fortalecimento de vínculos) by older adults / Buenos encuentros y ciudadanía: los significados atribuidos al servicio de convivencia y fortalecimiento de lazos por los adultos mayores

Este artigo tem como objetivo analisar os dados produzidos por uma pesquisa qualitativa que investigou os sentidos atribuídos ao Serviço de Convivência e Fortalecimento de Vínculos (SCFV) por seus usuários(as) em Florianópolis/SC. Por meio da observação participante realizada em um SCFV durante três meses e da aplicação de uma entrevista coletiva com idosos(as), este artigo traz algumas análises sobre os processos de significação vivenciados por esses sujeitos. Apoiados na perspectiva sócio-histórica, elaboramos dois eixos de significação, que serão discutidos neste artigo: 1) Intersubjetividade e vínculo: o SCFV como "lugar acolhedor" e de "bons encontros"; 2) O(a) idoso(a) e os processos de exclusão: o SCFV como promotor da cidadania. Em termos de resultados, é possível afirmar que esse espaço se configura como um lugar importante na vida desses(as) idosos(as) - onde eles(as) se sentem acolhidos, ouvidos e reconhecidos como sujeitos. Além do fato de esse espaço ser marcado por afetos e "bons encontros", o grupo também o revelou como um lugar potente para processos de reflexão e questionamento contra as diversas formas de segregação e violências vividas cotidianamente por ele.(AU)

This study aims to analyze the data produced by qualitative research that investigated the meanings attributed to the Service of Coexistence and Strengthening of Bonds (Serviço de Convivência e Fortalecimento de Vínculos - SCFV) by its users in the municipality of Florianópolis. By participant observation carried out in an SCFV for three months and the application of a collective interview with older adults, this study will bring some analysis of the processes of meaning experienced by these subjects. Sustained by the socio-historical perspective, we elaborated two axes of meaning to be discussed in this study : 1. Intersubjectivity and bonding: the SCFV as a "warm place" and "good meetings;" and 2. Older adults and processes of exclusion: the SCFV as a enhancer of citizenship. Results show that this space configures an important place in the lives of these older adults — a place in which they feel welcomed, heard, and recognized as subjects. In addition to the fact this space is marked by affections and "good meetings," the group also shows itself as a potent place for processes of reflection and questioning against the various forms of segregation and violence daily experienced by these people.(AU)

Este artículo tiene como objetivo analizar los datos producidos por un estudio cualitativo sobre los significados atribuidos al Servicio de Convivencia y Fortalecimiento de Lazos (SCFL) por sus usuarios en Florianópolis (Santa Catarina, Brasil). Desde la observación participante realizada en un SCFL durante el período de tres meses y desde la aplicación de una entrevista colectiva con personas mayores, este artículo presenta algunos análisis sobre los procesos de significado vividos por estos sujetos. Apoyados en la perspectiva sociohistórica, elaboramos dos ejes de significado que serán discutidos: 1) Intersubjetividad y vinculación: el SCFL como "lugar de acogida" y "buenos encuentros"; 2) Las personas mayores y los procesos de exclusión: el SCFV como promotor de ciudadanía. Los resultados permiten afirmar que este espacio se configura como un lugar importante en la vida de estas personas mayores, un lugar donde se sienten acogidos, escuchados y reconocidos como sujetos. Además de que este espacio está marcado por afectos y "buenos encuentros", el grupo también se reveló como un lugar propenso a procesos de reflexión y cuestionamiento frente a las diversas formas de segregación y violencia que viven a diario estas personas.(AU)

Vivências de pais de pessoas com deficiência intelectual relacionadas à inclusão no trabalho / Experiences of parents of people with intellectual disabilities regarding their inclusion at work / Experiencias de padres de personas con discapacidad intelectual sobre inclusión laboral

A inclusão social de pessoas com deficiência intelectual (DI) vem ganhando destaque no Brasil, devido ao advento da Lei de Inclusão (13.146/2015) e de metodologias sociais como o Emprego Apoiado. Este estudo buscou compreender as concepções parentais a respeito da carreira profissional de seus filhos com DI. Participaram 10 casais de mães e pais de pessoas com DI de diferentes faixas etárias. O método foi qualitativo fenomenológico, com recurso de narrativas compreensivas. Quatro eixos estruturantes foram identificados: (a) condições estruturais que impactam a inclusão; (b) percepções e sentimentos a respeito da DI; (c) inclusão: uma corrida de obstáculos permanentes?; e (d) protagonismo familiar. Esses tópicos foram discutidos à luz do paradigma dos estigmas e da teoria de justificação do sistema. Foram descritos fatores que dificultam a inclusão, como contexto de trabalho individualista e competitivo, restrição de oportunidades profissionais, superproteção, falsa consciência, descrença implícita na mudança ou superação e ambiguidades quanto às reais possibilidades dos filhos. Evidenciou-se a importância do apoio, ainda que este não esteja livre de estruturas estigmatizantes, e também a centralidade da condição de pais de pessoas com DI como noção de identidade, elementos que dificultam sua ação como coadjuvantes na vida dos filhos. O contexto profissional foi reconhecido como ambiente de maior inclusão vivida, apesar das dificuldades. Ressalta-se a necessidade de orientação de familiares para um novo olhar a respeito das condições e potenciais de seus filhos, bem como do aprimoramento de políticas públicas em prol de uma sociedade mais inclusiva.(AU)

The inclusion of people with intellectual disabilities (ID) has been gaining prominence due to the advent of the Brazilian Inclusion Law (13.146/2015) and social methodologies such as supported employment. This study aimed to understand the view parents have regarding the professional career of their children with ID. Overall, 10 couples, mothers, and fathers of people with ID from different age groups participated in this study. A qualitative phenomenological method using comprehensive narratives was chosen. This study found four structuring axes: (a) structural conditions that affect inclusion; (b) perceptions and feelings about ID; (c) inclusion: a permanent obstacle course; and (d) families' leading role. The paradigm of stigmas and system justification theory were the references to discuss those topics. This study describes the factors that hinder inclusion, such as individualistic and competitive work contexts, restriction of professional opportunities, overprotection, false awareness, implicit disbelief in changing or overcoming difficulties, and ambiguities regarding the sons' and daughters' real possibilities. It is highlighted both the importance of support (even if it tied to stigmatizing structures) and the centrality of the condition of parents of people with ID as a notion of identity, elements that make it difficult for them to act as supporting actors in their sons' and daughters' lives. The work context constituted an environment of greater inclusion, despite difficulties. In conclusion, this study found an emphatic need for family members to have a new look at the conditions and potential of their children, as well as for the improvement of public policies in favor of a more inclusive society.(AU)

La inclusión social de personas con discapacidad intelectual (DI) viene ganando protagonismo debido al advenimiento de la Ley de Inclusión brasileña (13.146/2015) y de metodologías sociales como el Empleo con Apoyo. Este estudio tuvo como objetivo comprender las concepciones que los padres tienen sobre la carrera profesional de sus hijos con DI. Participaron 10 parejas, madres y padres de personas con DI de diferentes grupos de edad. El método fue cualitativo fenomenológico, utilizando narrativas comprensivas. Se identificaron cuatro ejes estructurantes: (a) condiciones estructurales que inciden en la inclusión; (b) percepciones y sentimientos sobre la DI; (c) ¿inclusión: una carrera de obstáculos permanentes?; y (d) protagonismo familiar. Estos temas se discutieron a la luz del paradigma de los estigmas y de la teoría de la justificación del sistema. Se describieron factores que dificultan la inclusión, como un contexto de trabajo individualista y competitivo, la restricción de oportunidades profesionales, la sobreprotección, la falsa conciencia, la incredulidad implícita en cambiar o superar las dificultades y las ambigüedades sobre las posibilidades reales de los hijos. Se destacó la importancia del apoyo, aunque no exento de estructuras estigmatizantes, y también la centralidad de la condición de padres de personas con DI como la noción de identidad, elementos que les dificultan actuar como actores secundarios en la vida de los hijos. El contexto profesional fue reconocido como un ambiente de mayor inclusión a pesar de las dificultades. Se concluye con el énfasis en la necesidad de que los familiares tengan una nueva mirada sobre las condiciones y potencialidades de sus hijos, así como la mejora de las políticas públicas a favor de una sociedad más inclusiva.(AU)

(Des)compassos do trabalho psicológico no acompanhamento familiar no CRAS / (Dis)order of the psychological work within family care at CRAS / (Des)compás del trabajo psicológico en el seguimiento familiar en el Centro de Referencia de Asistencia Social (CRAS)

Esta pesquisa teve como objetivo investigar as perspectivas dos psicólogos dos Centros de Referência da Assistência Social (CRAS) que compõem a equipe de Proteção e Atenção Integral à Família (PAIF) a respeito do seu trabalho no Acompanhamento Familiar oferecido para famílias com membros com transtornos mentais. Oito psicólogos que atuavam nos CRAS de um município no interior de Minas Gerais participaram do estudo. O instrumento utilizado foi um roteiro de entrevista semiestruturada, com a subsequente análise de conteúdo temática. As categorias temáticas foram analisadas à luz da literatura específica da área. De maneira geral, os resultados indicaram que os psicólogos se sentem despreparados para o exercício de sua função no CRAS, uma vez que a formação específica e continuada em Psicologia não ofereceu subsídios adequados para o conhecimento da atuação no campo da Assistência Social. A natureza (psico)terapêutica do trabalho é discutida, assim como a necessidade de formações continuadas para a atuação. Ressalta-se a necessidade de mais pesquisas que abordem a formação em Psicologia e suas relações com a Assistência Social, bem como os impactos desse despreparo na prática dos profissionais, de maneira a fomentar maior satisfação pessoal/profissional e, consequentemente, aprimorar a assistência oferecida à comunidade.(AU)

This study aims to investigate the views of psychologists who worked at Social Assistance Reference Centers (CRAS) associated with the Comprehensive Family Care Program (PAIF) on their work with the aforementioned program. Overall, eight psychologists who worked at CRAS units in small municipalities in Minas Gerais for at least one year participated in this research. The instrument used was a semi-structured interview script, and the data were analyzed under the content analysis (thematic) method. Thematic categories were analyzed based on the specific literature. Results indicate that the psychologists generally felt unprepared to work at CRAS since their degree in Psychology provided inadequate knowledge to deal with Social Assistance issues. This study discusses the (psycho)therapeutic nature of their practice and the need for ongoing training for their proper performance. This study highlights the need for further research that addresses the links between education in Psychology and Social Assistance and the impacts of said unpreparedness on the performance of those professionals. Such research might provide more professional/personal satisfaction and, in turn, improve the quality of the offered service.(AU)

Este estudio tuvo la intención de conocer las perspectivas de los psicólogos de los Centros de Referencia de Asistencia Social (CRAS) que forman parte de los equipos del Protección y Atención Integral a la Familia (PAIF) acerca del seguimiento de familias con miembros portadores de trastornos mentales. Ocho psicólogos que actuaban en los CRAS de un municipio del interior del estado de Minas Gerais (Brasil) participaron en el estudio. El instrumento utilizado fue un guion de entrevistas semiestructuradas; y, para análisis de datos, se utilizó el análisis de contenido temático. Las categorías temáticas se analizaron a la luz de la literatura específica del campo. De modo general, los resultados indicaron que los psicólogos no se sienten preparados para desempeñar la función en el CRAS, puesto que la formación en Psicología no ofreció conocimientos adecuados para actuar en el campo de la asistencia social. Se discuten la naturaleza (psico)terapéutica del trabajo y la necesidad de formación continua para esta actuación. Se destaca la necesidad de más investigaciones que tratan de la formación en Psicología y sus relaciones con la asistencia social, y los impactos de esta falta de preparo en la práctica de los profesionales, de modo a promover una satisfacción personal/profesional y, consecuentemente, optimizar la asistencia ofrecida a la comunidad.(AU)

Redes sociais significativas maternas: significados e movimentos diante do autismo / Maternal significant social networks: meanings and movements in the face of autism / Redes sociales significativas maternas: significados y movimientos frente al autismo

O diagnóstico de uma condição crônica na família tende a movimentar as relações intra e extrafamiliares. No caso do Transtorno do Espectro do Autismo (TEA), essa movimentação tende a ocorrer de forma significativa com os vínculos maternos, visto que as mães costumam ser as principais cuidadoras dos filhos com esse diagnóstico. Assim, o presente estudo objetivou investigar os impactos do diagnóstico de TEA nas redes sociais significativas maternas e como as mães lhes atribuíram sentido. Participaram 12 mães de filhos diagnosticados com TEA na infância, com as quais foram realizadas entrevistas reflexivas e construídos dois mapas de redes sociais significativas, um anterior e outro posterior ao TEA. A análise dos dados foi feita através da Grounded Theory . No momento inicial da entrevista, foi possível perceber que a maioria das participantes se referiu ao sentimento de não ter apoio, expressando desamparo. Todavia, ao longo do processo de construção dos mapas, percebeu-se relevante mudança no discurso das mães, que reconheceram e se surpreenderam com a presença de vínculos importantes nas suas redes sociais, embora, da sua perspectiva, eles não lhes proporcionem o apoio necessário. Portanto, destaca-se a importância da ativação das redes sociais significativas das mães, bem como a instrumentalização dessas redes para que possam estar presentes de maneira efetiva e fornecer apoio, salientando-se o importante papel de profissionais da saúde e da educação nesse cenário. Por fim, aponta-se o mapa de redes enquanto potente instrumento clínico e de pesquisa.(AU)

The diagnosis of a chronic condition in the family tends to move intra- and extra-family relationships. In the Autistic Spectrum Disorder (ASD) case, this movement tends to occur significantly with maternal bonds, since mothers are often referred as the main caregivers of children with this diagnosis. Thus, this study aimed to investigate the impacts of the ASD diagnosis on significant maternal social networks and how mothers signify these implications. Twelve mothers of children diagnosed with ASD in childhood participated, with whom reflective interviews were carried out and two maps of significant social networks, one before and one after the ASD, were constructed. Data analysis was performed by using Grounded Theory. At the beginning of the interview, it was possible to observe that most participants reported the feeling of having no support, expressing helplessness. However, throughout the mapping process, a relevant change was noticed in the mothers' discourse, who recognized and were surprised by the presence of important members in their social networks, although, in their perspective, they do not provide them the necessary support. Therefore, the importance of activating the mothers' significant social networks is highlighted, as well as the instrumentalization of these networks so that they can be effectively present and provide support, emphasizing the important role of health and education professionals in this scenario. Finally, the network map is pointed out as a powerful clinical and research tool.(AU)

El diagnóstico de una enfermedad crónica en la familia tiende a trasformar las relaciones intra y extrafamiliares. En el caso del trastorno del espectro del autismo (TEA), este movimiento tiende a ocurrir de manera significativa con los vínculos maternos, ya que las madres son referidas como las principales cuidadoras de los niños con este diagnóstico. Este estudio tuvo por objetivo investigar el impacto del diagnóstico de TEA en las redes sociales maternas significativas y cómo las madres dieron sentido a estas implicaciones. Participaron en este estudio doce madres de niños diagnosticados con TEA en la infancia, y se utilizaron entrevistas reflexivas y mapas de redes sociales significativas, uno para antes y otro para después del TEA. El análisis de datos se basó en la teoría fundamentada. Al inicio de la entrevista, la mayoría de las participantes refirieron sentir que no tenían apoyo. Sin embargo, en el proceso de construcción de los mapas se vio un cambio en el discurso de las madres, quienes comenzaron a reconocer y sorprenderse por la presencia de vínculos importantes en sus redes sociales, aunque estos no les brindaran el apoyo necesario. Se resalta la importancia de activar las redes sociales significativas de las madres, así como la instrumentalización de estas redes para que puedan estar efectivamente presentes y brindar apoyo, enfatizando el papel de los profesionales de la salud y la educación. Además, se señala el mapa de la red como una poderosa herramienta clínica e investigativa.(AU)

Práticas do psicólogo escolar em um atendimento educacional a estudantes superdotados / School psychologist practices in an educational program for gifted students / Prácticas del psicólogo escolar en un programa educativo para alumnos superdotados

Este estudo objetivou investigar práticas dos psicólogos escolares em atendimento educacional a estudantes superdotados, bem como os desafios enfrentados por estes profissionais. O cenário da pesquisa foi um atendimento educacional especializado para estudantes com altas habilidades/superdotação oferecido por uma secretaria de estado de Educação da região Centro-Oeste do Brasil. Participaram cinco psicólogas(os) escolares atuantes no atendimento, e utilizou-se a entrevista semiestruturada como instrumento. Para a análise dos dados, optou-se pela análise de conteúdo qualitativa. Os resultados revelaram que as(os) psicólogas(os) escolares realizam práticas envolvendo alunos, familiares e professoras(es), com cinco categorias se destacando: avaliação psicológica do aluno; práticas de acolhimento, suporte e orientação; intervenções breves; planejamento, desenvolvimento e acompanhamento das atividades; e divulgação do atendimento ao superdotado. Contudo, as(os) psicólogas(os) enfrentam desafios em sua atuação, como o impacto de mitos e crenças populares equivocadas, trocas de governo, inconsistência na legislação sobre a educação do superdotado, insuficiência de investimentos no atendimento e influência de outros fatores contextuais. Conclui-se que as(os) psicólogas(os) escolares desempenham funções cruciais no atendimento ao superdotado, sobretudo no que tange ao mapeamento das necessidades do aluno e ao suporte aos envolvidos em sua educação, mas diversos fatores limitam sua prática. Logo, propõem-se direções para possibilitar uma atuação mais ampla e efetiva da(o) psicóloga(o).(AU)

This study aimed to investigate school psychologists' practices in an educational program for gifted students, as well as the challenges they face. The study scenario was a specialized educational program for students with high abilities/giftedness offered by a state secretary of Education located in the Midwest region of Brazil. Five school psychologists working in the program participated, and a semi-structured interview was used as instrument. Qualitative content analysis was performed to analyze the data. The results revealed that school psychologists carry out practices involving students, family members, and teachers, with five categories of practices standing out: psychological assessment of the student; welcoming, support, and guidance practices; brief interventions; planning, development, and monitoring of the activities; and dissemination of the program for the gifted. However, psychologists face challenges in their practice, such as the impact of mistaken myths and misconceptions, the government changes, the inconsistency in gifted education legislation, the insufficiency of investments in the program, and the influence of other contextual factors. In conclusion, school psychologists play crucial roles in serving the gifted, especially in mapping student's needs and supporting those involved in their education, but several factors limit their practice. Therefore, directions are proposed to enable a broader and more effective practice of the psychologist.(AU)

Este estudio tuvo por objetivo examinar prácticas de los/as psicólogos/as escolares en un programa educativo para alumnos superdotados, así como los desafíos que enfrentan estos profesionales. El escenario de investigación ha sido un programa educativo especializado para alumnos con altas capacidades/superdotación, ofrecido por una Secretaría del Estado de Educación de la región Centro-Oeste en Brasil. En este estudio participaron cinco psicólogos escolares que trabajan en este programa, y se utilizó como instrumento la entrevista semiestructurada. Para el análisis de datos, se optó por el análisis de contenido cualitativo. Los resultados revelan que los/las psicólogos/as escolares realizan prácticas involucrando a alumnos, familiares y docentes, en las cuales destacaron cinco categorías: evaluación psicológica del alumno; prácticas de acogida, apoyo y orientación; intervenciones breves; planificación, desarrollo y seguimiento de actividades; y difusión del programa para los superdotados. Sin embargo, los/as psicólogos/as se enfrentan a desafíos en su práctica, como el impacto de los mitos y creencias erróneas, de los cambios de gobierno, de la inconsistencia en la legislación sobre la educación de los superdotados, de la insuficiencia de inversiones en el programa y de la influencia de otros factores contextuales. Se concluye que los/as psicólogos/as escolares desarrollan un papel crucial en la atención al superdotado, especialmente en el mapeo de las necesidades de los alumnos y el apoyo a los involucrados en su educación, pero varios factores limitan su práctica. Por lo tanto, se proponen direcciones que permitan una actuación más amplia y efectiva de este profesional.(AU)

Vulnerabilidade moral entre estranhos morais: limites do princípio da permissão / Moral vulnerability among moral strangers: limits of the principle of permission / Vulnerabilidad moral entre extraños morales: límites del principio de permiso

Resumo Este artigo apresenta uma análise crítica da obra de Tristram Engelhardt, com foco no princípio da permissão. Argumenta-se que, em contextos de intensas desigualdades sociais e negação de direitos, a aplicação da ética de procedimentos baseada apenas no princípio da permissão pode resultar na vulnerabilidade moral de indivíduos e grupos que não compartilham de determinada moralidade. Isso pode levá-los a serem expostos a diferentes formas de negação de direitos, violência, exploração, exclusão e estigmatização. Diante dessa realidade, destaca-se a importância de fortalecer uma bioética comprometida com a defesa da dignidade, da diversidade, dos direitos humanos e da justiça social.

Abstract This article presents a critical analysis of Tristram Engelhardt's work, focusing on the principle of permission. It is argued that, in a context of intense social inequalities and denial of rights, the application of procedural ethics based solely on the principle of permission can result in the moral vulnerability of individuals and groups who do not share a certain morality. This can expose them to different forms of denial of rights, violence, exploitation, exclusion, and stigmatization. Given this reality, the importance of strengthening a bioethics committed to defending dignity, diversity, human rights, and social justice is highlighted.

Resumen Este artículo presenta un análisis crítico de la obra de Tristram Engelhardt, centrándose en el principio de permiso. Se arguye que, en un contexto de intensas desigualdades sociales y negación de derechos, la aplicación de la ética de procedimientos basada solo en el principio de permiso puede generar vulnerabilidad moral en los individuos y grupos que no comparten cierta moralidad. Esto puede llevarlos a verse expuestos a diferentes formas de negación de derechos, violencia, explotación, exclusión y estigmatización. Ante esta realidad, se destaca la importancia de fortalecer una bioética comprometida con la defensa de la dignidad, la diversidad, los derechos humanos y la justicia social.