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1.
PLoS One ; 17(2): e0262165, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35176039

RESUMO

Occupational therapists in Canada play a central role in wheelchair service provision. Inadequate entry-to-practice professional education has been identified as a major concern in the delivery of wheelchair related services. The goal of this study was to describe the current education provided in Canadian occupational therapy programs and to map this content against the recommended WHO 8-step wheelchair service provision process. The study used a descriptive cross-sectional online survey design. Educators were recruited from accredited occupational therapy programs in Canada. Participants completed a short sociodemographic questionnaire and a survey with 97 closed- and open-ended questions regarding the wheelchair service provision education provided in their curriculum. Survey data was then mapped according to the WHO 8-step wheelchair service provision process. Twenty-nine educators from all Canadian occupational therapy programs (n = 14) were enrolled. Most participants (55.2%) were full-time faculty members that had been teaching in occupational therapy programs for an average time of 10.9 years. All programs covered at least 4 of the WHO recommended steps, but only 5 programs covered all steps. Assessment and Prescription steps were covered in every program while the Referral & Appointment, Funding & Ordering, Fitting and User Training steps were covered in most programs. The pedagogic approach, the amount of time dedicated to wheelchair-related content, and the type of evaluation used varied greatly between programs. This study is the first to provide a detailed description of wheelchair service provision education across all Canadian occupational therapy programs according to the WHO 8 steps and provides a foundation for collaborative efforts to promote best practice in entry-to-practice professional education.


Assuntos
Currículo , Educação Profissionalizante/estatística & dados numéricos , Terapia Ocupacional/educação , Fisioterapeutas/educação , Prescrições/normas , Ensino , Cadeiras de Rodas/provisão & distribuição , Adulto , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
2.
J Pediatr Rehabil Med ; 12(1): 3-10, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-30883368

RESUMO

PURPOSE: Studies have shown that children with muscular dystrophy are at increased risk for falls, however there is insufficient information about what predicts the first and subsequent events. The purpose of this study was to describe the experience of injury with emphasis on identifying risk factors for fall-related injuries. METHODS: We studied 269 boys with muscular dystrophy describing their injury experience and identifying risk and protective factors associated with 281 non-simultaneous injuries and 127 falls that resulted in Emergency Department visits and/or inpatient hospitalization during the period 1998-2014. We used a Cox model to estimate the predictors of an initial fall and a zero-inflated Poisson model to identify the predictors for the number of falls. RESULTS: Falls accounted for the greatest number of injury occurrences; The most frequent injury type was contusion. The factors that were protective for falls were steroid use, wheelchair use, or having a heart condition. Baseline age was negatively associated with the risk of having any fall, but not significantly related to subsequent falls. CONCLUSION: Wheelchair use and heart conditions associated with reduced risk of falls likely reflects decreased mobility. Clinicians should help families identify factors associated with falls among those who remain ambulatory.


Assuntos
Acidentes por Quedas , Distrofia Muscular de Duchenne , Medição de Risco/métodos , Ferimentos e Lesões , Acidentes por Quedas/prevenção & controle , Acidentes por Quedas/estatística & dados numéricos , Adolescente , Causalidade , Criança , Pré-Escolar , Serviço Hospitalar de Emergência/estatística & dados numéricos , Humanos , Masculino , Distrofia Muscular de Duchenne/complicações , Distrofia Muscular de Duchenne/epidemiologia , Fatores de Proteção , Estudos Retrospectivos , Fatores de Risco , Estados Unidos/epidemiologia , Cadeiras de Rodas/provisão & distribuição , Ferimentos e Lesões/diagnóstico , Ferimentos e Lesões/epidemiologia , Ferimentos e Lesões/etiologia , Ferimentos e Lesões/prevenção & controle
3.
Disabil Rehabil Assist Technol ; 14(6): 612-627, 2019 08.
Artigo em Inglês | MEDLINE | ID: mdl-30822183

RESUMO

Background: Achieving appropriate wheelchair provision at a national level is complex, requiring regulations, funding and policies established through governments. Understanding wheelchair provision within different countries is key. This paper describes the process used to support the development of wheelchair service strategic plans in Romania and the Philippines. It considers the influences, meaning, challenges and developments when producing strategic priorities within two different contexts. Methods: The International Society of Wheelchair Professionals (ISWP) sponsored affiliates Motivation Foundation Romania and the Philippine Society of Wheelchair Philippine Society of Wheelchair Professionals (PSWP), to conduct organizational ethnographic mixed method stakeholder centred studies, to develop robust strategic plans. An affiliate coordinator for wheelchair provision in less resourced settings supported this process. Results: Diversity between the two-affiliate sites was evident, influencing value placed within both societies towards equality and participation. Common components to address included: advocacy; wheelchair service infrastructure; capacity building; education; training and research. Research process facilitation supported by affiliate coordinator is important. Conclusion: Understanding contextual dimensions, which sharp a countries wheelchair service, is essential. Member states should take action by conducting in-country wheelchair sector analysis, to create wheelchair provision strategies for sustainable development, to meet personal posture and mobility needs, primary for daily living, as a basic human right. Implications for rehabilitation Understanding the complexity of providing appropriate wheelchairs within different countries is essential to meet the diverse needs of citizens. Conducting situational analysis of the wheelchair sector involving key stakeholders in the process is important to understand different perspectives and develop strategic priorities towards sustainable development. Producing context specific wheelchair sector reports and strategic plans strengthens the evidence base when informing governments regarding the importance of developing sustainable wheelchair provision infrastructures. The affiliate coordinator role is important to support affiliates to produce robust documentation that clearly and objectively outlines the wheelchair sector issues and plans, to provide solutions.


Assuntos
Países em Desenvolvimento , Saúde Global/normas , Cadeiras de Rodas/provisão & distribuição , Organização Mundial da Saúde , Humanos , Filipinas , Romênia
4.
Disabil Rehabil Assist Technol ; 14(1): 33-45, 2019 01.
Artigo em Inglês | MEDLINE | ID: mdl-29092684

RESUMO

PURPOSE: Improving access to education and training for those providing wheelchair and seating assistive technology to meet personal posture and mobility requirements, as a basic human right, is a priority. This review considers education and training available to personnel within low and lower middle income countries (LLMIC), to ascertain where gaps in knowledge exist and identify human resource education priorities. METHOD: A scoping review, mapping out existing scientific and grey literature within the field between 1993 and 2017 was conducted. The search strategy included use of online databases, manual analogue searches and key stakeholder informant advice. A content analysis process was applied to organize the literature retrieved and extract key themes. RESULTS: Education and training in LLMIC appears ad hoc and limited, however, there is growing recognition as to its importance, notably by the World Health Organization and nongovernmental organizations, delivering education initiatives to a number of countries, along with the development of a credentialing test. Inconsistency exists regarding personnel responsible for wheelchair provision, with no specific professional clearly recognized to oversee the system within many LLMIC. CONCLUSIONS: Education and training is required for all stakeholders involved in wheelchair provision. Advocating for programme development to enhance personnel skills, build capacity and ensure best practice is a priority. Pilot sites, delivering and credentialing appropriate wheelchair provision education and training within context should be considered. Measuring outcomes and transferable skills should be part of education programme delivery structures. Considering a new discipline responsible for oversight of wheelchair provision should be investigated. Implications for rehabilitation Education and training is an essential step in the wheelchair provision process in the bid to obtain an appropriate wheelchair via appropriate provision services. However, it is more than education and training; its a human rights issue. Mandatory education and training needs to be a requirement for all stakeholders involved in wheelchair provision. Key wheelchair personnel need to establish their central role in this arena. The study raises awareness as to the importance of working with governments to commit to building sustainable wheelchair provision infrastructures.


Assuntos
Países em Desenvolvimento , Pessoas com Deficiência , Pessoal de Saúde/educação , Cadeiras de Rodas/provisão & distribuição , Humanos
5.
Assist Technol ; 31(3): 141-146, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-29182473

RESUMO

The objective of this study was to describe the provision of wheeled-mobility equipment from the perspective of a large equipment supplier in the United States. The records of clients who were prescribed a mobility device over a 6-month period were randomly sampled to product a dataset of 1,689 clients. Analysis was limited to descriptive statistics and measures of relationships. The majority of the clients were adults (72%) and female (58%) with 62% receiving a manual wheelchair. The majority of interventions (58%) included some contribution from the client or client's family. Overall, 86% of all prescribed wheelchairs were classified as complex rehab technology (CRT). About half (52%) of all interventions involved a therapist. Therapist involvement was 2.5 times more likely during CRT interventions compared to standard durable medical equipment (StdDME). The project provides a novel description of mobility-related equipment provision using a large retrospective dataset. The analysis demonstrates the utility of analyzing a large number of client interventions. The capabilities of such analyses have business, clinical, and policy implications. Combining the data available from suppliers with prospective collection of client-specific information, such as outcomes, would be a more powerful means to assess the provision of wheeled-mobility equipment.


Assuntos
Atenção à Saúde , Cadeiras de Rodas , Adolescente , Adulto , Mineração de Dados , Bases de Dados Factuais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Estudos Retrospectivos , Estados Unidos , Cadeiras de Rodas/classificação , Cadeiras de Rodas/estatística & dados numéricos , Cadeiras de Rodas/provisão & distribuição , Adulto Jovem
6.
Disabil Rehabil ; 41(23): 2750-2757, 2019 11.
Artigo em Inglês | MEDLINE | ID: mdl-29912579

RESUMO

Purpose: To conduct a scoping review of the published evidence on parents' perceptions of power wheelchair prescription for children with a neuromuscular disorder and clinicians' influence on timely wheelchair implementation.Method: Nine electronic databases and reference lists of all retrieved full-text articles were searched up to March 2017. Eligibility criteria included (1) at least one child participant with a neuromuscular disorder, (2) power wheelchair as an intervention, and (3) qualitative, quantitative or mixed methods parent-reported outcomes related to power wheelchair equipment.Results: None of the 67 eligible studies examined parental perceptions of wheelchair prescription as a primary aim, and only 10 studies included children with a neuromuscular disorder. Parents reported their own emotional responses including grief and loss, emphasis on their child's walking and lack of accessibility as key barriers to power wheelchair prescription. Clinicians' perspectives on walking and powered mobility influenced parental decision-making regarding power wheelchair use for their child.Conclusion: Parents' experiences of initial wheelchair prescription have not been explored in existing literature. Clinicians' understanding of the benefits of power wheelchair equipment, particularly in the context of progression of neuromuscular disorders, is critical to facilitating timely wheelchair prescription with children. Condition-specific evidence is urgently needed to inform and support multidisciplinary management of children and their families.Implications for RehabilitationIt is important that rehabilitation professionals recognize parental barriers to initial power wheelchair prescription, such as strong emotional responses, an emphasis on their child's walking and lack of access.Clinicians' perspectives on walking and powered mobility may influence parental decision-making regarding engagement in power wheelchair prescription and rehabilitation.It is critical that clinicians are aware of and actively educate families regarding the benefits of powered mobility to facilitate timely prescription and support physical and psychological adjustment.


Assuntos
Adaptação Psicológica , Doenças Neuromusculares , Pais/psicologia , Cadeiras de Rodas , Criança , Tomada de Decisões , Saúde da Família , Humanos , Doenças Neuromusculares/psicologia , Doenças Neuromusculares/reabilitação , Padrões de Prática Médica , Cadeiras de Rodas/psicologia , Cadeiras de Rodas/provisão & distribuição
7.
Can J Occup Ther ; 85(1): 46-57, 2018 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-29506405

RESUMO

BACKGROUND: Wheelchairs, scooters, and related equipment are essential for the well-being of individuals with limited mobility and impact participation, health, and quality of life. PURPOSE: Our objective was to identify and evaluate policies governing equipment funding for Canadian adults. We reviewed funding legislation and program documentation for adult Canadians (≥18 years of age) covered by their provincial, territorial, or federal health care plan. Documents were obtained online or through administrative staff. Policy evaluation was guided by the Disability Policy Lens from the Canadian Disability Policy Alliance. KEY ISSUES: Coverage ranges from full funding for all individuals within the jurisdiction to programs limited by strict eligibility criteria. Each jurisdiction defines "disability" or "basic/essential need" differently, contributing to further funding disparities. IMPLICATIONS: Funding policies differ substantially across Canada, resulting in unequal access to equipment dependent on province or territory. We identified eligibility, funding, definitions of mobility, repair and replacement, and prescriber requirement benchmarks that represent policy targets for improved access.


Assuntos
Pessoas com Deficiência/reabilitação , Terapia Ocupacional/legislação & jurisprudência , Assistência Pública/legislação & jurisprudência , Cadeiras de Rodas/economia , Cadeiras de Rodas/provisão & distribuição , Canadá , Definição da Elegibilidade/legislação & jurisprudência , Definição da Elegibilidade/normas , Acessibilidade aos Serviços de Saúde/economia , Humanos , Limitação da Mobilidade
8.
BMC Int Health Hum Rights ; 17(1): 22, 2017 08 17.
Artigo em Inglês | MEDLINE | ID: mdl-28818075

RESUMO

BACKGROUND: The United Nations has called for countries to improve access to mobility devices when needed. The World Health Organization has published guidelines on the provision of manual wheelchairs in less-resourced settings. Yet little is known about the extent to which appropriate wheelchairs are available and provided according to international guidelines. This study's purpose was to describe wheelchair users' experiences receiving services and acquiring wheelchair skills in urban and peri-urban areas of Kenya and the Philippines. METHODS: Local researchers in Nairobi and Manila interviewed 48 adult basic wheelchair users, with even distribution of those who had and had not received wheelchair services along with their wheelchair. Recordings were transcribed in the local language and translated into English. The study team coded transcripts for predetermined and emergent themes, using Atlas-ti software. A qualitative content analysis approach was taken with the WHO service delivery process as an organizing framework. RESULTS: Wheelchair users frequently described past experiences with ill-fitting wheelchairs and little formal training to use wheelchairs effectively. Through exposure to multiple wheelchairs and self-advocacy, they learned to select wheelchairs suitable for their needs. Maintenance and repair services were often in short supply. Participants attributed shorter duration of wheelchair use to lack of repair. Peer support networks emerged as an important source of knowledge, resources and emotional support. Most participants acknowledged that they received wheelchairs that would have been difficult or impossible for them to pay for, and despite challenges, they were grateful to have some means of mobility. Four themes emerged as critical for understanding the implementation of wheelchair services: barriers in the physical environment, the need for having multiple chairs to improve access, perceived social stigma, and the importance of peer support. CONCLUSIONS: Interventions are needed to provide wheelchairs services efficiently, at scale, in an environment facilitating physical access and peer support, and reduced social stigma. TRIAL REGISTRATION: Not applicable since this was a descriptive study.


Assuntos
Atitude , Países em Desenvolvimento , Pessoas com Deficiência , Recursos em Saúde/provisão & distribuição , Acessibilidade aos Serviços de Saúde , População Urbana , Cadeiras de Rodas , Adolescente , Adulto , Acessibilidade Arquitetônica , Planejamento Ambiental , Feminino , Necessidades e Demandas de Serviços de Saúde , Humanos , Quênia , Masculino , Pessoa de Meia-Idade , Filipinas , Pesquisa Qualitativa , Estigma Social , Apoio Social , Cadeiras de Rodas/estatística & dados numéricos , Cadeiras de Rodas/provisão & distribuição , Adulto Jovem
9.
Disabil Rehabil Assist Technol ; 12(2): 105-114, 2017 02.
Artigo em Inglês | MEDLINE | ID: mdl-27443790

RESUMO

PURPOSE: It is estimated that only 5-15% of people in low and middle income countries (LMICs) who need assistive technologies (AT) have access to them. This scoping review was conducted to provide a comprehensive picture of the current evidence base on AT within LMICs and other resource limited environments. METHOD: The scoping review involved locating evidence, extracting data, and summarizing characteristics of all included research publications. RESULTS: Of the 252 publications included, over 80% focused on types of AT that address mobility (45.2%) and vision (35.5%) needs, with AT types of spectacles and prosthetics comprising over 50% of all publications. Evidence on AT that addresses hearing, communication, and cognition is the most underrepresented within the existing evidence base. The vast majority of study designs are observational (63%). CONCLUSIONS: Evidence on AT in resource-limited environments is limited in quantity and quality, and not evenly distributed across types of AT. To advance this field, we recommend using appropriate evidence review approaches that allow for heterogeneous study designs, and developing a common language by creating a typology of AT research focus areas. Funders and researchers must commit much greater resources to the AT field to ameliorate the paucity of evidence available. Implications for Rehabilitation An increase in the quality and quantity of research is required in resource limited environments, where 80% of the global population of people with disabilities reside. Improved and increased evidence is needed to identify and understand needs, inform policy and practice, and assess progress made in increasing access to and availability of appropriate AT. Over 80% of the existing research publications on assistive technologies in resource limited environments address mobility and vision. More research is needed on AT that address hearing, communication and cognition. The use of a common language would facilitate the advancement of the global AT research field. Specifically there is a need for researchers to use a common definition of AT (i.e., ISO 9999) and typology of AT research focus areas.


Assuntos
Países em Desenvolvimento , Pessoas com Deficiência/reabilitação , Tecnologia Assistiva/economia , Tecnologia Assistiva/provisão & distribuição , Óculos/economia , Óculos/provisão & distribuição , Saúde Global , Acessibilidade aos Serviços de Saúde/economia , Auxiliares de Audição/economia , Auxiliares de Audição/provisão & distribuição , Humanos , Próteses e Implantes/economia , Próteses e Implantes/provisão & distribuição , Qualidade da Assistência à Saúde/economia , Cadeiras de Rodas/economia , Cadeiras de Rodas/provisão & distribuição
10.
J Med Eng Technol ; 40(5): 265-9, 2016 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-27098983

RESUMO

The introduction of a single point referral system that prioritises clients depending on case complexity and overcomes the need for re-admittance to a waiting list via a review system has been shown to significantly reduce maximum waiting times for a Posture and Mobility (Special Seating) Service from 102.0 ± 24.33 weeks to 19.2 ± 8.57 weeks (p = 0.015). Using this service model linear regression revealed a statistically significant improvement in the performance outcome of prescribed seating solutions with shorter Episode of Care completion times (p = 0.023). In addition, the number of Episodes of Care completed per annum was significantly related to the Episode of Care completion time (p = 0.019). In conclusion, it is recommended that it may be advantageous to apply this service model to other assistive technology services in order to reduce waiting times and to improve clinical outcomes.


Assuntos
Encaminhamento e Consulta/estatística & dados numéricos , Tecnologia Assistiva/estatística & dados numéricos , Listas de Espera , Cadeiras de Rodas/provisão & distribuição , Cadeiras de Rodas/estatística & dados numéricos , Humanos , Estudos Retrospectivos , Fatores de Tempo , Resultado do Tratamento , País de Gales
11.
BMC Health Serv Res ; 16: 26, 2016 Jan 22.
Artigo em Inglês | MEDLINE | ID: mdl-26801984

RESUMO

BACKGROUND: For people who have a mobility impairment, access to an appropriate wheelchair is an important step towards social inclusion and participation. The World Health Organization Guidelines for the Provision of Manual Wheelchairs in Less Resourced Settings emphasize the eight critical steps for appropriate wheelchair services, which include: referral, assessment, prescription, funding and ordering, product preparation,fitting and adjusting, user training, and follow-up and maintenance/repairs. The purpose of this study was to investigate how the provision of wheelchairs according to the World Health Organization's service provision process by United Cerebral Palsy Wheels for Humanity in Indonesia affects wheelchair recipients compared to wait-listed controls. METHODS: This study used a convenience sample (N = 344) of Children, Children with proxies, Adults, and Adults with proxies who were on a waiting list to receive a wheelchair as well as those who received one. Interviews were conducted at baseline and a 6 month follow-up to collect the following data: Demographics and wheelchair use questions, the World Health Organization Quality of Life-BREF, Functional Mobility Assessment, Craig Handicap Assessment Recording Technique Short Form. The Wheelchair Assessment Checklist and Wheelchair Skills Test Questionnaire were administered at follow up only. RESULTS: 167 participants were on the waiting list and 142 received a wheelchair. Physical health domain in the World Health Organization Quality of Life-BREF improved significantly for women who received a wheelchair (p = 0.044) and environmental health improved significantly for women and men who received a wheelchair as compared to those on the waiting list (p < 0.017). Satisfaction with the mobility device improved significantly for Adults with proxies and Children with proxies as compared to the waiting list (p < 0.022). Only 11 % of Adults who received a wheelchair reported being able to perform a "wheelie". The condition of Roughrider wheelchairs was significantly better than the condition of kids wheelchairs for Children with proxies as measured by the Wheelchair Assessment Checklist (p = 0.019). CONCLUSIONS: Wheelchair provision according to World Health Organization's 8-Steps in a less-resourced setting has a range of positive outcomes including increased satisfaction with the mobility device and better quality of life. Wheelchair provision service could be improved by providing more hours of wheelchair skills training. There is a need for outcome measures that are validated across cultures and languages.


Assuntos
Pessoas com Deficiência , Recursos em Saúde/provisão & distribuição , Satisfação do Paciente , Cadeiras de Rodas , Organização Mundial da Saúde , Adulto , Estudos de Coortes , Feminino , Humanos , Indonésia , Masculino , Pessoa de Meia-Idade , Prescrições , Qualidade de Vida , Inquéritos e Questionários , Cadeiras de Rodas/economia , Cadeiras de Rodas/provisão & distribuição , Adulto Jovem
12.
J Spinal Cord Med ; 39(5): 496-9, 2016 09.
Artigo em Inglês | MEDLINE | ID: mdl-26111044

RESUMO

In Ontario, Canada, legislation exists that mandates that all medical practices be fully accessible by 2025, in an effort to improve access to primary care for persons with physical disabilities. The simple removal of physical barriers may not guarantee improved access to appropriate care. In this clinical note, members of an interprofessional primary care-based Mobility Clinic reflect on opportunities to improve primary care beyond just better physical accessibility for persons with spinal cord injury (SCI). The importance of collaborations between funders, researchers, and clinicians are examined. Using a participatory action research model, the unique perspective of consumers and consumer networks are incorporated into the Mobility Clinic's clinical and research efforts to improve primary care for persons with SCI.


Assuntos
Acessibilidade Arquitetônica/normas , Atenção Primária à Saúde/normas , Traumatismos da Medula Espinal/reabilitação , Acessibilidade Arquitetônica/legislação & jurisprudência , Humanos , Ontário , Atenção Primária à Saúde/legislação & jurisprudência , Qualidade da Assistência à Saúde , Traumatismos da Medula Espinal/terapia , Cadeiras de Rodas/provisão & distribuição
13.
J Spinal Cord Med ; 39(4): 461-70, 2016 07.
Artigo em Inglês | MEDLINE | ID: mdl-26666510

RESUMO

OBJECTIVE: To investigate the provision, use, and unmet need of assistive devices for personal mobility in the Swiss population with spinal cord injury (SCI). DESIGN: Community survey 2012 of the Swiss Spinal Cord Injury Cohort Study. PARTICIPANTS: Individuals aged 16 or older with traumatic or non-traumatic SCI residing in Switzerland. INTERVENTIONS: Not applicable. OUTCOME MEASURES: Provision, frequency of use, and unmet need (i.e. perceiving the need of a device but it not being provided) of 11 mobility devices were assessed by self-report and analyzed descriptively. Provision of devices was further analyzed by sex, age, SCI etiology, SCI severity, and time since SCI. RESULTS: Devices reported highest for provision (N = 492; mean age 55.3 ± 15.1 years; 28.9% female) were adapted cars (78.2%) and manual wheelchairs (69.9%). Provision of various devices markedly varied with age and SCI severity (e.g. 34.6% of those aged 76+ had a walking frame compared to 3.1% of those aged 31-45; 50.0% of participants with complete tetraplegia had a power wheelchair compared to 7.6% of those with complete paraplegia). Many devices were mostly used daily (e.g. manual wheelchair) while others were mostly used less frequently (e.g. handbikes). Unmet need was highest for arm braces (53.2% of those in need) and power assisted wheelchairs (47.3%), and lowest for crutches (11.4%) and manual wheelchairs (4.8%). CONCLUSION: The devices individuals have or use is largely dependent on their age and SCI severity. While most participants have access to basic mobility devices, there is still a considerable degree of unmet need for certain devices.


Assuntos
Atividades Cotidianas , Avaliação das Necessidades , Traumatismos da Medula Espinal/reabilitação , Cadeiras de Rodas/provisão & distribuição , Adolescente , Adulto , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Suíça
14.
Rev. neurol. (Ed. impr.) ; 60(10): 439-446, 16 mayo, 2015. tab, graf
Artigo em Espanhol | IBECS | ID: ibc-137833

RESUMO

Introducción. La escala Egen Klassifikation 2 (EK2), ampliación de la escala EK, evalúa la capacidad funcional de personas con atrofia muscular espinal (AME) y distrofia muscular de Duchenne (DMD) que están en fase de silla de ruedas. Esta versión es más específica para la AME que su antecesora. Objetivo. Analizar la validez y fiabilidad de la versión española de dicha escala como instrumento de medición de la capacidad funcional en pacientes afectos de AME y DMD que están en silla de ruedas. Pacientes y métodos. Primeramente se realizó una traducción-retrotraducción al español de la versión en inglés de la EK2 y, posteriormente, se estudió la fiabilidad de la versión traducida. Para ello, se seleccionaron 39 pacientes, de edades comprendidas entre 4 y 60 años, que fueron valorados por dos observadores. Para evaluar la concordancia intraobservador se realizaron dos evaluaciones por un mismo observador, y para la interobservador, se realizó una tercera evaluación por un segundo observador. Resultados. Los valores obtenidos referidos a la puntuación total de los ítems de la escala (suma EK2) reflejan una fiabilidad intra e interobservador excelente, de 0,993 y 0,988, respectivamente. Asimismo, para cada uno de los ítems, la fiabilidad fue excelente, a excepción de un ítem, en el que fue buena. Conclusiones. La versión española de la escala EK2 es un instrumento válido y fiable para la población española como herramienta de medición de la capacidad funcional en pacientes con AME y DMD que están en silla de ruedas (AU)


Introduction. The Egen Klassifikation 2 Scale (EK2), expansion of the EK scale, assesses the functional capacity of people with spinal muscular atrophy (SMA) and Duchenne muscular dystrophy (DMD) that are in wheelchair phase. This version is more specific for SMA than its EK predecessor. Aim. To examine the validity and reliability of the Spanish version of the scale as a tool for measuring the functional capacity in patients with DMD and SMA who are in wheelchairs. Patients and methods. First, a translation-back-translation into Spanish of the English version of the EK2 was performed; later, we studied the reliability of the translated version. For this, 39 patients, aged between 4 and 60, who were evaluated by two observers, were recruited. To evaluate the intra-observer consistency, two assessments by the same observer were performed, and the inter-observer third assessment was performed by a second observer. Results. The obtained values based on the total score of the scale items (sum EK2) reflect excellent intra- and inter-observer reliability, 0.993 and 0.988 respectively. Also, for each of the items, reliability was excellent except for one item in which it was good. Conclusions. The Spanish version of the EK2 scale is a valid and reliable instrument for the Spanish population as a tool for measuring the functional capacity in patients with SMA and DMD who are in wheelchairs (AU)


Assuntos
Feminino , Humanos , Masculino , Atrofia Muscular Espinal/congênito , Atrofia Muscular Espinal/patologia , Distrofia Muscular de Duchenne/induzido quimicamente , Distrofia Muscular de Duchenne/complicações , Pacientes Ambulatoriais/classificação , Cadeiras de Rodas , Atrofia Muscular Espinal/complicações , Atrofia Muscular Espinal/reabilitação , Distrofia Muscular de Duchenne/reabilitação , Pacientes Ambulatoriais/história , Cadeiras de Rodas/provisão & distribuição , Tradução
15.
Disabil Rehabil Assist Technol ; 10(4): 301-8, 2015 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-25347347

RESUMO

PURPOSE: The purpose of this work was to contribute to a better understanding of challenges and solutions to equitable provision of assistive technologies in resource limited environments by (i) describing sources of awareness, types of providers and costs of assistive technologies; (ii) describing common reasons for not possessing assistive technologies; and (iii) comparing these sources, providers, costs and reasons among younger and older men and women living in urban and rural settings. METHODS: Descriptive and analytic statistics were used to analyze cross-sectional data from a total sample of 581 hearing aid users, wheelchair users, individuals with hearing impairments not using hearing aids and individuals with ambulatory impairments not using wheelchairs living in eight districts of Bangladesh. RESULTS: Major sources of awareness, types of providers and costs paid varied between users of different types of assistive technology. Lack of affordability was the main reason for not possessing assistive technology. Outcome differences were found between younger and older groups, men and women, and literate and illiterate respondents, while no differences related to place of living were identified. CONCLUSIONS: Age, gender, type of impairment and socioeconomic status need to be considered when planning and implementing equitable provision of assistive technologies. Implications for Rehabilitation Provision of assistive technologies needs to be made affordable as lack of affordability was the major reason for not possessing such technologies. To ensure equitable provision of assistive technology, services ought to consider age, gender, impairment and socioeconomic status of their target groups. This includes offering a range of products of different sizes provided by culturally appropriate personnel at affordable cost, which to many may be at no or reduced cost. To cater to the assistive technology needs among the most vulnerable groups, assistive technology providers may learn from CBR strategies, such as, awareness raising and service delivery at community level, the use of local resources, collaboration and coordination, and the consideration of cultural factors.


Assuntos
Conscientização , Pessoas com Deficiência , Pobreza , Tecnologia Assistiva/economia , Tecnologia Assistiva/provisão & distribuição , Adolescente , Adulto , Bangladesh , Estudos Transversais , Feminino , Acessibilidade aos Serviços de Saúde , Necessidades e Demandas de Serviços de Saúde , Auxiliares de Audição/economia , Auxiliares de Audição/provisão & distribuição , Humanos , Masculino , Pessoa de Meia-Idade , Limitação da Mobilidade , Pessoas com Deficiência Auditiva , Características de Residência , Fatores Socioeconômicos , Cadeiras de Rodas/economia , Cadeiras de Rodas/provisão & distribuição , Adulto Jovem
18.
Arch Phys Med Rehabil ; 90(6): 1030-8, 2009 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-19480881

RESUMO

OBJECTIVE: To integrate and expand on previously published models of wheelchair service delivery, and provide a preliminary framework for developing more comprehensive, descriptive models of wheelchair service delivery for adults with spinal cord injury within the U.S. health care system. DESIGN: Literature review and a qualitative analysis of in-depth interviews. SETTING: Not applicable. PARTICIPANTS: Ten academic, clinical, regulatory, and industry experts (Department of Veterans Affairs [VA] and non-VA) in wheelchair service delivery. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Interviewees were asked to discuss the full range of variables and stakeholders involved in wheelchair service delivery, and to limit their scope to the provision of primary subsequent or replacement chairs (not backup chairs) to adults within the United States. RESULTS: Most experts we interviewed stressed that clients who require a wheelchair play a central role in the wheelchair service delivery process. Providers (including clinicians, rehabilitation engineers, and rehabilitation counselors) are also critical stakeholders. More so than in other health care settings, suppliers play an integral role in the provision of wheelchairs to clients and may significantly influence the appropriateness of the wheelchair provided. Suppliers often have a direct role in wheelchair service delivery through their interactions with the clinician and/or client. This model also identified a number of system-level factors (including facility administration and standards, policies, and regulations) that influence wheelchair service delivery and ultimately the appropriateness of the wheelchair provided. CONCLUSIONS: We developed a detailed, descriptive model of wheelchair service delivery that integrates the delivery process and device outcomes, and includes the patient-level, provider-level, and system-level factors that may directly influence those processes and outcomes. We believe that this detailed model can help clinicians and researchers describe and consider the complexities of wheelchair service delivery. It can be used to identify factors that may be related to disparities in wheelchair service delivery and in the appropriateness of the wheelchair prescribed. Further, this model can help researchers and clinicians identify factors that may be related to disparities in wheelchair service delivery, and intervene to reduce such disparities.


Assuntos
Pessoal de Saúde , Modelos Teóricos , Pacientes , Cadeiras de Rodas/provisão & distribuição , Humanos , Cobertura do Seguro , Avaliação das Necessidades , Educação de Pacientes como Assunto , Pesquisa Qualitativa , Encaminhamento e Consulta , Traumatismos da Medula Espinal/reabilitação
20.
Disabil Rehabil Assist Technol ; 3(6): 302-8, 2008 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-19117190

RESUMO

In this article, we described the wheelchair bank program at a local hospital and our experiences in managing the service over the past 10 years from 1996 to 2005. This article also reported statistical information related to the acquisitions of wheelchairs and adaptive components, including body support and pressure relief systems. The cost benefit of recycling seating and mobility equipments for use by children with neuromuscular diseases was revealed. With the reference of the reported data, the demands on specific types of wheelchairs and adaptive parts were disclosed to facilitate budget planning of similar services.


Assuntos
Ergonomia/instrumentação , Doenças Neuromusculares , Pediatria/instrumentação , Cadeiras de Rodas , Criança , Pré-Escolar , Desenho de Equipamento , Reutilização de Equipamento , Hong Kong , Sistemas de Informação Hospitalar , Humanos , Doenças Neuromusculares/complicações , Úlcera por Pressão/complicações , Úlcera por Pressão/prevenção & controle , Cadeiras de Rodas/economia , Cadeiras de Rodas/provisão & distribuição
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