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1.
Pap. psicol ; 42(3): 193-199, Septiembre, 2021. tab
Artigo em Espanhol | IBECS | ID: ibc-225248

RESUMO

La explotación sexual comercial infantil y adolescente (ESCIA) es un problema especialmente frecuente en niños, niñas y adolescentes con medidas jurídicas de protección. Esta forma de victimización sexual, que recoge otras múltiples formas de violencia, no sólo está presente en países envías de desarrollo. En España, únicamente contamos con los datos obtenidos por la Comisión de Expertos de Mallorca en 2020. Se presentan las respuestas de 67 adolescentes, entre 13 y 18 años, en centros residenciales del sistema de protección, sobre sus conocimientos y experiencias respecto a la ESCIA. Los resultados indican que se trata de un problema conocido y ante el cual demandan más educación y protección. Aluden a motivos diversos para implicarse en él, pero todos ellos pueden situarse dentro de la pirámide del sexo por supervivencia. El uso de las TIC aparece como un importante factor de riesgo a tener en cuenta en programas de prevención. (AU)


Commercial sexual exploitation of children (CSEC) is a problem that is highly prevalent in children and adolescents under legal protection. However, thisform of sexual victimization, which includes multiple other forms of violence, is not only present in developing countries. In Spain we only have the data obtained by the Expert Commission from Mallorca in 2020. The responses of a sample of 67 adolescents between 13 and 18 years old from residentialcenters in Mallorca about their knowledge and experiences regarding CSEC are presented. The results indicate that CSEC is a known problem. These adolescents also demand more education and protection. They allude to various reasons for engaging in this type of behavior, although all of them canbe placed in the pyramid of survival sex. The use of ICT appears as an important risk factor to take into account in prevention programs. (AU)


Assuntos
Humanos , Masculino , Feminino , Adolescente , Delitos Sexuais/psicologia , Abuso Sexual na Infância/prevenção & controle , Abuso Sexual na Infância/psicologia , Assédio Sexual/psicologia , Vulnerabilidade Sexual , Espanha , Instituições Residenciais/ética
2.
Med Health Care Philos ; 24(2): 189-204, 2021 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-33788079

RESUMO

The Covid-19 pandemic is a tragedy for those who have been hard hit worldwide. At the same time, it is also a test of concepts and practices of what good care is and requires, and how quality of care can be accounted for. In this paper, we present our Care-Ethical Model of Quality Enquiry (CEMQUE) and apply it to the case of residential care for older people in the Netherlands during the Covid-19 pandemic. Instead of thinking about care in healthcare and social welfare as a set of separate care acts, we think about care as a complex practice of relational caring, crossed by other practices. Instead of thinking about professional caregivers as functionaries obeying external rules, we think about them as practically wise professionals. Instead of thinking about developing external quality criteria and systems, we think about cultivating (self-)reflective quality awareness. Instead of abstracting from societal forces that make care possible but also limit it, we acknowledge them and find ways to deal with them. Based on these critical insights, the CEMQUE model can be helpful to describe, interrogate, evaluate, and improve existing care practices. It has four entries: (i) the care receiver considered from their humanness, (ii) the caregiver considered from their solicitude, (iii) the care facility considered from its habitability and (iv) the societal, institutional and scholarly context considered from the perspective of the good life, justice and decency. The crux is enabling all these different entries with all their different aspects to be taken into account. In Corona times this turns out to be more crucial than ever.


Assuntos
Atitude Frente a Saúde , COVID-19/epidemiologia , Qualidade da Assistência à Saúde , Idoso , Humanos , Modelos Organizacionais , Países Baixos , Garantia da Qualidade dos Cuidados de Saúde/ética , Qualidade da Assistência à Saúde/ética , Instituições Residenciais/ética , Instituições Residenciais/organização & administração , Instituições Residenciais/normas
3.
Lymphat Res Biol ; 17(2): 173-177, 2019 04.
Artigo em Inglês | MEDLINE | ID: mdl-30995183

RESUMO

Background and Study Objective: Australia was one of nine participating countries in the epidemiology Phase II Lymphoedema Impact and Prevalence - International (LIMPRINT) project to determine the number of people with chronic edema (CO) in local health services. Methods and Results: Data collection occurred through questionnaire-based interviews and clinical assessment with provided LIMPRINT tools. Four different types of services across three states in Australia participated. A total of 222 adults participated with an age range from 22 to 102 years, and 60% were female. Site 1 included three residential care facilities (54% of participants had swelling), site 2 was community-delivered aged care services (24% of participants had swelling), site 3 was a hospital setting (facility-based prevalence study; 28% of participants had swelling), and site 4 was a wound treatment center (specific patient population; 100% of participants had swelling). Of those with CO or secondary lymphedema, 93% were not related to cancer, the lower limbs were affected in 51% of cases, and 18% of participants with swelling reported one or more episodes of cellulitis in the previous year. Wounds were identified in 47% (n = 105) of all participants with more than half of those with wounds coming from the dedicated wound clinic. Leg/foot ulcer was the most common type of wound (65%, n = 68). Conclusions: Distances between services, lack of specialized services, and various state funding models contribute to inequities in CO treatment. Understanding the high number of noncancer-related CO presentations will assist health services to provide timely effective care and improve referral pathways.


Assuntos
Edema/diagnóstico , Disparidades em Assistência à Saúde/estatística & dados numéricos , Sistema Linfático/patologia , Linfedema/diagnóstico , Adulto , Idoso , Idoso de 80 Anos ou mais , Austrália/epidemiologia , Celulite (Flegmão)/diagnóstico , Celulite (Flegmão)/fisiopatologia , Doença Crônica , Centros Comunitários de Saúde/economia , Centros Comunitários de Saúde/ética , Diagnóstico Diferencial , Edema/economia , Edema/epidemiologia , Edema/patologia , Feminino , Disparidades em Assistência à Saúde/economia , Humanos , Úlcera da Perna/diagnóstico , Úlcera da Perna/fisiopatologia , Sistema Linfático/fisiopatologia , Linfedema/economia , Linfedema/epidemiologia , Linfedema/patologia , Masculino , Pessoa de Meia-Idade , Prevalência , Instituições Residenciais/economia , Instituições Residenciais/ética , Fatores de Risco , Inquéritos e Questionários , Ferimentos e Lesões/diagnóstico , Ferimentos e Lesões/fisiopatologia
4.
Gerontologist ; 58(2): 219-225, 2018 03 19.
Artigo em Inglês | MEDLINE | ID: mdl-27927731

RESUMO

Sexuality and intimacy are universal needs that transcend age, cognitive decline, and disability; sexuality is a fundamental aspect of the human experience. However, supporting sexuality in long-term residential care presents ethical challenges as this setting is both a home environment for residents and a workplace for health practitioners. This is particularly complex in the case of residents with dementia given the need to balance protection from harm and freedom of self-determination. Despite such complexity, this challenge has received limited critical theoretical attention. The dominant approach advocated to guide ethical reasoning is the bioethical four principles approach. However, the application of this approach in the context of dementia and long-term care may set the bar for practitioners' interference excessively high, restricting assentual (i.e., voluntary) sexual expression. Furthermore, it privileges cognitive and impartial decision-making, while disregarding performative, embodied, and relational aspects of ethical reasoning. With an interest in addressing these limitations, we explicate an alternative ethic of embodied relational sexuality that is grounded in a model of citizenship that recognizes relationality and the agential status of embodied self-expression. This alternative ethic broadens ethical reasoning from the exclusive duty to protect individuals from harm associated with sexual expression, to the duty to also uphold and support their rights to experience the benefits of sexual expression (e.g., pleasure, intimacy). As such it has the potential to inform the development of policies, organizational guidelines, and professional curricula to support the sexuality of persons with dementia, and thereby ensure more humane practices in long-term residential care settings.


Assuntos
Demência/psicologia , Instituições Residenciais , Sexualidade , Idoso , Canadá , Feminino , Humanos , Masculino , Política Organizacional , Autonomia Pessoal , Instituições Residenciais/ética , Instituições Residenciais/organização & administração , Comportamento Sexual/ética , Comportamento Sexual/psicologia , Sexualidade/ética , Sexualidade/psicologia
6.
J Intellect Disabil Res ; 57(3): 201-15, 2013 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-23379860

RESUMO

BACKGROUND: The demand for (care) services for people with intellectual disabilities (ID) is on the rise, because of an expanding population of people with ID as resources are concurrently diminishing. As a result, service providers are increasingly turning to technology as a potential answer to this problem. However, the use and application of surveillance technology (ST) in the care for people with ID provokes conflicting reactions among ethicists and healthcare professionals, and no ethical consensus has been reached as of yet. The aim of this study was thus to provide an overview of how ST is viewed by (care) professionals and ethicists working in the field by investigating what the ideal application of ST in the residential care for people with ID might entail. METHODS: Use was made of the concept mapping method as developed by Trochim; a computer-assisted procedure consisting of five subsequent steps: brainstorming, prioritising, clustering, processing by the computer and finally analysis. Various participants (ranging from ethicists, physicians to support workers) were invited on the basis of their intended (professional) background. Prior to this study, the views of care professionals on the (ideal) application of ST in the residential care of people with dementia have been consulted and analysed using concept mapping. A comparison between the two studies has been made. RESULTS: Results show that the generated views represent six categories, varying from it being beneficial to the client; reducing restraints and it being based on a clear vision to (the need for) staff to be equipped; user friendliness and attending to the client. The results are presented in the form of a graphic chart. Both studies have produced very similar results, but there are some differences, as there appears to be more fear for ST among care professionals in the care for people with ID and views are expressed from a more developmental perspective rather than a person-centred perspective with regard to people with dementia. CONCLUSIONS: When it comes to views on using technology both in dementia care and the care for people with ID, there appears to be an inherent duality, often rooted in the moral conflict between safety versus freedom or autonomy. What is more, elaboration on abstract concepts often presumed to be self-evident, whether ethical or not, has proven to be difficult. How ST is viewed and apprehended is not so much dependent of the care setting and care needs, but rather whether it is clear to everyone affected by ST, what one wants to achieve with ST.


Assuntos
Demência/terapia , Deficiência Intelectual/terapia , Instituições Residenciais/ética , Instituições Residenciais/organização & administração , Medidas de Segurança/ética , Medidas de Segurança/organização & administração , Humanos , Modelos Organizacionais , Cultura Organizacional , Restrição Física/ética , Gestão da Segurança/ética , Gestão da Segurança/organização & administração , Gravação de Videoteipe
7.
Qual Health Res ; 23(9): 1179-87, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-23264536

RESUMO

Culture might offer significant insights into the circumstances under which mistreatment occurs. Our aim with this study was to understand and explore institutional mistreatment from a care culture perspective. We used a case study with a triangulating methodology. It involved 12 individual interviews, one focus group interview with four people, a 2-day field study, and a document study. The case was a mistreatment situation that had occurred in municipal care, in which residents had been locked in their rooms at night. Two different care cultures were identified that could give a richer contextual understanding of the motives behind the institutional mistreatment. The service culture was need-oriented and emphasized freedom in care provision. The motherhood culture was characterized by protection and safeguarding of the vulnerable residents. Both cultures showed traces of caring values, but when important caring values were absent, this created a seedbed for mistreatment.


Assuntos
Cuidadores/ética , Transtornos Globais do Desenvolvimento Infantil/terapia , Ética Institucional , Deficiência Intelectual/terapia , Assistência Noturna/ética , Isolamento de Pacientes/ética , Instituições Residenciais/ética , Adulto , Transtornos Globais do Desenvolvimento Infantil/psicologia , Grupos Focais , Humanos , Deficiência Intelectual/psicologia , Entrevista Psicológica , Satisfação do Paciente , Qualidade da Assistência à Saúde/ética , Suécia
8.
Brain Inj ; 25(2): 153-68, 2011.
Artigo em Inglês | MEDLINE | ID: mdl-21219088

RESUMO

OBJECTIVE: Nearly 3500 people under 60 years of age are living in residential aged care in Australia, a situation which is generally recognized as incompatible with optimum quality of life. The objective of the current study is to explore the transition experiences of young people with acquired brain injury who have lived in aged care facilities and moved into community-based settings. RESEARCH DESIGN: Grounded theory, qualitative design. METHODS AND PROCEDURES: Semi-structured interviews were conducted with seven individuals with very severe ABI, seven family caregivers and two disability support workers. Each interview was recorded and transcribed verbatim. RESULTS: Participants identified a range of positive outcomes that resulted from the transition from aged care settings to community living environments including increased independence in everyday activities, improved well-being and a greater degree of social inclusion. Participants also identified environmental factors that they deemed as crucial to facilitating positive outcomes. CONCLUSIONS: People with very severe ABI have the potential to increase their level of independence in community-based accommodation settings; a potential that is not fostered in most aged care environments. The findings inform the outcome variables and environmental factors that should be measured in studies of transition from aged care to the community.


Assuntos
Lesões Encefálicas/psicologia , Alta do Paciente/estatística & dados numéricos , Qualidade da Assistência à Saúde/normas , Qualidade de Vida/psicologia , Instituições Residenciais/estatística & dados numéricos , Fatores Etários , Austrália/epidemiologia , Lesões Encefálicas/reabilitação , Avaliação da Deficiência , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Qualidade da Assistência à Saúde/ética , Instituições Residenciais/ética
9.
J Intellect Disabil Res ; 54(2): 144-60, 2010 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-20015161

RESUMO

In England and Wales, the Mental Capacity Act 2005 (MCA) provides a new legal framework to regulate substitute decision-making relating to the welfare of adults who lack the capacity to make one or more autonomous decisions about their care and support. Any substitute decision made on behalf of an adult lacking capacity must be in his/her 'best interests'. However, the value of adopting established principles and procedures for substitute decision-making in practice is uncertain, and little is known about the legal or ethical dynamics of social care support, including the day-to-day residential support provided to adults with intellectual disabilities (ID). Methods This paper reports a qualitative, grounded theory analysis of 21 interviews with support workers working in residential care homes for adults with ID, and observations of care practices. Results In contrast to the narrow legal responsibilities placed upon them, it is argued that support workers interpret substitute decision-making within a broad moral account of their care role, orientating their support towards helping residents to live 'a life like ours'. In so doing, support workers describe how they draw on their own values and life experiences to shape the substitute decisions that they make on behalf of residents. Conclusions Support workers' accounts reveal clear discrepancies between the legal regulation of substitute decision-making and the ways that these support workers make sense of their work. Such discrepancies have implications both for the implementation of the MCA, and for the role of support workers' values in the conceptualisation and delivery of 'good' care.


Assuntos
Tomada de Decisões/ética , Lares para Grupos/legislação & jurisprudência , Deficiência Intelectual/reabilitação , Autonomia Pessoal , Instituições Residenciais/legislação & jurisprudência , Apoio Social , Adulto , Atitude do Pessoal de Saúde , Inglaterra , Lares para Grupos/ética , Humanos , Vida Independente , Capacitação em Serviço , Garantia da Qualidade dos Cuidados de Saúde , Instituições Residenciais/ética , Assunção de Riscos , Socialização , País de Gales
10.
Am J Orthopsychiatry ; 75(1): 152-7, 2005 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-15709858

RESUMO

Mental health service (MHS) providers confront questions of informed consent for evaluation and treatment of children in state custody who are placed in residential or foster care programs, where legal responsibility is shared between state and parent. There are ethical issues encountered by MHS providers who work with this growing population of children in placement. Matters of informed consent and access to information about treatment influence relationships with the parents, legal guardians, Child Protective Service workers, and the child. These specific concerns are addressed: informed consent, the right to be informed, and the rights of parents or foster carers to participate in a child's treatment. Recommendations for resolving dilemmas faced by MHS providers are discussed.


Assuntos
Custódia da Criança/ética , Serviços de Saúde da Criança/ética , Cuidados no Lar de Adoção/ética , Consentimento Livre e Esclarecido/ética , Serviços de Saúde Mental/ética , Instituições Residenciais/ética , Adulto , Criança , Defesa da Criança e do Adolescente , Serviços de Saúde da Criança/estatística & dados numéricos , Confidencialidade , Guias como Assunto , Humanos , Serviços de Saúde Mental/estatística & dados numéricos , Pais , Relações Profissional-Família , Estados Unidos
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