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1.
J Intellect Disabil Res ; 65(11): 949-961, 2021 11.
Artigo em Inglês | MEDLINE | ID: mdl-34529314

RESUMO

BACKGROUND: Given the much greater COVID-19 mortality risk experienced by people with intellectual disabilities (ID), understanding the willingness of people with ID to take a COVID-19 vaccine is a major public health issue. METHOD: In December 2020 to February 2021, across the United Kingdom, 621 adults with ID were interviewed remotely and 348 family carers or support workers of adults with ID with greater needs completed an online survey, including a question on willingness to take a COVID-19 vaccine if offered. RESULTS: Eighty-seven per cent of interviewees with ID were willing to take a COVID-19 vaccine, with willingness associated with white ethnicity, having already had a flu vaccine, gaining information about COVID-19 from television but not from social media, and knowing COVID-19 social restrictions rules. A percentage of 81.7% of surveyed carers of adults with ID with greater needs reported that the person would be willing to take a COVID-19 vaccine, with willingness associated with white ethnicity, having a health condition of concern in the context of COVID-19, having had a flu vaccine, being close to someone who had died due to COVID-19, and having shielded at some point during the pandemic. CONCLUSIONS: Reported willingness to take the COVID-19 vaccine is high among adults with ID in the United Kingdom, with factors associated with willingness having clear implications for public health policy and practice.


Assuntos
Vacinas contra COVID-19 , COVID-19/prevenção & controle , Deficiência Intelectual , Aceitação pelo Paciente de Cuidados de Saúde/estatística & dados numéricos , Pessoas com Deficiência Mental/estatística & dados numéricos , Adolescente , Adulto , Cuidadores/estatística & dados numéricos , Estudos de Coortes , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Reino Unido , Adulto Jovem
2.
Med J Aust ; 215(1): 31-36, 2021 07.
Artigo em Inglês | MEDLINE | ID: mdl-34028026

RESUMO

OBJECTIVE: To determine rates of potentially preventable hospitalisation of people with intellectual disability in New South Wales, and compare them with those for the NSW population. DESIGN: Retrospective cohort study. SETTING: Potentially preventable hospitalisations in NSW, as defined by the National Healthcare Agreement progress indicator 18, 1 July 2001 - 30 June 2015. PARTICIPANTS: Data collected in a retrospective data linkage study of 92 542 people with intellectual disability in NSW; potentially preventable hospitalisations data for NSW published by HealthStats NSW. MAIN OUTCOME MEASURES: Age-adjusted rates of potentially preventable hospitalisation by group (people with intellectual disability, NSW population), medical condition type (acute, chronic, vaccine-preventable), and medical condition. RESULTS: The annual age-standardised rate for people with intellectual disability ranged between 5286 and 6301 per 100 000 persons, and for the NSW population between 1278 and 1511 per 100 000 persons; the rate ratio (RR) ranged between 3.5 (95% CI, 3.3-3.7) in 2014-15 and 4.5 (95% CI, 4.2-4.9) in 2002-03. The difference was greatest for admissions with acute (RR range: 5.3 [95% CI, 4.9-5.7] in 2014-15 to 8.1 [95% CI, 7.4-8.8] in 2002-03) and vaccine-preventable conditions (RR range: 2.1 [95% CI, 1.6-3.0] in 2007-08 to 3.4 [95% CI, 2.2-5.2] in 2004-05). By specific condition, the highest age-standardised rate was for admissions with convulsions and epilepsy (all years, 2567 per 100 000 population; v NSW population: RR, 22.2; 95% CI, 21.3-23.1). CONCLUSION: Age-standardised rates of potentially preventable hospitalisation are higher for people with intellectual disability than for the general population. The reasons for these differences should be investigated, and strategies for averting potentially preventable hospitalisation developed.


Assuntos
Hospitalização/estatística & dados numéricos , Pessoas com Deficiência Mental/estatística & dados numéricos , Doença Aguda/terapia , Adolescente , Adulto , Idoso , Criança , Pré-Escolar , Doença Crônica/terapia , Feminino , Humanos , Lactente , Recém-Nascido , Masculino , Pessoa de Meia-Idade , New South Wales/epidemiologia , Estudos Retrospectivos , Adulto Jovem
3.
J Insur Med ; 49(1): 1-8, 2021 Mar 30.
Artigo em Inglês | MEDLINE | ID: mdl-33784745

RESUMO

Disability due to mental health disorders has been increasing in many countries over the past years. The COVID-19 pandemic may worsen this trend because of 3 different, and at times overlapping, pathways. This article describes each pathway, and by drawing on the experience of previous coronavirus epidemics and recent recessions, attempts to estimate the likelihood that claims due to mental health disorders will increase.


Assuntos
COVID-19/epidemiologia , COVID-19/psicologia , Seguro por Deficiência/estatística & dados numéricos , Saúde Mental/estatística & dados numéricos , Pessoas com Deficiência Mental/estatística & dados numéricos , Recessão Econômica , Humanos , Pandemias , Distanciamento Físico , Quarentena/psicologia , SARS-CoV-2
4.
Artigo em Inglês | MEDLINE | ID: mdl-33105693

RESUMO

BACKGROUND: Neurosensory deprivation associated with vision is a well-known fact in people with intellectual disability (ID). This work aims to report the visual status of a population with ID in Portugal. METHODS: A vision screening protocol was conducted during two Special Olympics events. The vision protocol included personal medical history, ocular health evaluation, and clinical measures, such as visual acuity (VA), binocular vision, colour vision, refractive error, and intraocular pressure. This protocol was administered to 134 subjects. RESULTS: Half of the subjects reported that they had never attended or they did not remember having attended a previous eye exam. Additionally, 10% of them had not attended an eye exam in the immediate past three years. Half the subjects failed the VA test and 13% presented moderate Visual Impairment (VI) (VA worse than 0.5 logMAR in the best eye). Manifest ocular deviation was found in 25% of the subjects and the most common ocular health dysfunction conditions were conjunctiva hyperaemia, meibomian gland dysfunction, and lens anomalies. Refractive error correction allowed a reduction in the level of moderate VI to 3.7%. CONCLUSIONS: The population analysed showed a poor eye care attendance rate and vision-related conditions are in agreement with previous reports. The development of national strategies to promote the awareness for routine eye care in people with ID and improving accessibility to eye care services may mitigate many of the most prevalent conditions encountered.


Assuntos
Pessoas com Deficiência Mental , Transtornos da Visão , Seleção Visual , Humanos , Pessoas com Deficiência Mental/estatística & dados numéricos , Portugal/epidemiologia , Erros de Refração/epidemiologia , Transtornos da Visão/epidemiologia
5.
Nurs Res ; 69(6): 436-447, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32969948

RESUMO

BACKGROUND: Much remains unknown about the longitudinal health and well-being of individuals with intellectual disability (ID); thus, new methods to identify those with ID within nationally representative population studies are critical for harnessing these data sets to generate new knowledge. OBJECTIVE: Our objective was to describe the development of a new method for identifying individuals with ID within large, population-level studies not targeted on ID. METHODS: We used a secondary analysis of the de-identified, restricted-use National Longitudinal Study of Adolescent to Adult Health (Add Health) database representing 20,745 adolescents to develop a method for identifying individuals who meet the criteria of ID. The three criteria of ID (intellectual functioning, adaptive functioning, and disability originating during the developmental period) were derived from the definitions of ID used by the American Psychiatric Association and the American Association on Intellectual and Developmental Disabilities. The ID Indicator was developed from the variables indicative of intellectual and adaptive functioning limitations included in the Add Health database from Waves I to III. RESULTS: This method identified 441 adolescents who met criteria of ID and had sampling weights. At Wave I, the mean age of this subsample of adolescents with ID was 16.1 years. About half of the adolescents were male and from minority racial groups. Their parents were predominately female, were married, had less than a high school education, and had a median age of 41.62 years. The adolescents' mean maximum abridged Peabody Picture Vocabulary Test standardized score was 69.6, and all demonstrated at least one adaptive functioning limitation. DISCUSSION: This study demonstrates the development of a data-driven method to identify individuals with ID using commonly available data elements in nationally representative population data sets. By utilizing this method, researchers can leverage existing rich data sets holding potential for answering research questions, guiding policy, and informing interventions to improve the health of the ID population.


Assuntos
Deficiência Intelectual/epidemiologia , Saúde Mental/estatística & dados numéricos , Pessoas com Deficiência Mental/estatística & dados numéricos , Adaptação Psicológica , Adolescente , Adulto , Atenção/fisiologia , Cognição/fisiologia , Feminino , Humanos , Deficiência Intelectual/psicologia , Estudos Longitudinais , Masculino , Transtornos Mentais/epidemiologia , Pessoas com Deficiência Mental/psicologia , Fatores de Risco
6.
Brain Dev ; 42(10): 747-755, 2020 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-32622762

RESUMO

OBJECTIVES: To investigate the prevalence and background of children with medical complexity (CMC) and its secular trend in Japan. METHODS: CMC were defined as patients under the age of 20 years requiring medical care and devices. The patients were enrolled using the national health insurance claims data of three hospitals and two rehabilitation centers in Tottori Prefecture. The study period was divided into three periods: Period 1, 2007-2010; Period 2, 2011-2014; and Period 3, 2015-2018. RESULTS: A total of 378 CMC were enrolled. The prevalence of CMC was 1.88 per 1000 population among subjects aged <20 years in 2018, and it increased by approximately 1.9 times during the study period. The number of CMC who presented with severe motor and intellectual disabilities did not change from Period 1 to Period 3. Meanwhile, the number of CMC who had relatively preserved motor and intellectual abilities increased from 58 to 98. The proportion of CMC who required respiratory management and oxygen therapy increased by 1.3 and 1.8 times, respectively. By contrast, the proportion of CMC who need tube feeding decreased significantly between periods 1 and 3 (P < 0.05). CONCLUSIONS: The prevalence of CMC increased almost twice during the 12-year study period; however, the increase in the number of patients with relatively preserved motor and intellectual abilities was pronounced. This study showed that the need for medical care and devices differed based on the underlying disorders and severity of CMC; therefore, individualized medical, welfare, and administrative services and education about the various types of CMC must be provided.


Assuntos
Atenção à Saúde/tendências , Crianças com Deficiência/estatística & dados numéricos , Pessoas com Deficiência Mental/estatística & dados numéricos , Adolescente , Criança , Pré-Escolar , Atenção à Saúde/economia , Atenção à Saúde/métodos , Equipamentos e Provisões/provisão & distribuição , Feminino , Humanos , Japão/epidemiologia , Estudos Longitudinais , Masculino , Prevalência , Adulto Jovem
7.
J Intellect Disabil Res ; 64(7): 512-523, 2020 07.
Artigo em Inglês | MEDLINE | ID: mdl-32390189

RESUMO

BACKGROUND: Despite the recognised benefits of sport, participation is often reported to be low for youth with intellectual disability (ID). The current study was the first to longitudinally examine sport retention in this population, a critical aspect of ensuring participation. METHODS: Study participants were parents/caregivers of athletes with ID involved in community Special Olympics (SO), 11-22 years of age (N = 345). Participants completed an online survey in 2012 that included caregiver demographic and athlete intrapersonal, interpersonal and broader contextual variables. Retention rates for 2019 were determined using the SO provincial registration lists. RESULTS: Of the 345 survey participants, 81.7% remained active athletes in 2019. Caregiver demographic and athlete intrapersonal factors were largely unrelated to retention. In contrast, retention was associated with the frequency and number of sports athletes participated in, the perceived psychosocial gains of SO involvement and the environmental supports that were available to facilitate participation; frequency of sport participation was the strongest predictor of remaining a registered athlete. CONCLUSIONS: This study has implications for future initiatives aimed at increasing sport retention in a population that struggles to be engaged in sport. Efforts should focus on the athlete experience and sport-specific factors. Coaches and caregivers can foster positive experiences and play an important role in continued sport participation.


Assuntos
Atletas/estatística & dados numéricos , Deficiência Intelectual/epidemiologia , Pessoas com Deficiência Mental/estatística & dados numéricos , Esportes/estatística & dados numéricos , Adolescente , Adulto , Canadá , Criança , Feminino , Humanos , Estudos Longitudinais , Masculino , Adulto Jovem
8.
J Intellect Disabil Res ; 64(5): 357-367, 2020 05.
Artigo em Inglês | MEDLINE | ID: mdl-32173949

RESUMO

BACKGROUND: Previous research has shown poor hospital experiences and dire outcomes for people with intellectual disability. The main objective of this study was to prospectively track episodes for adults with intellectual disability (ID) in Australian hospitals, with a focus on indications of the quality of care provided. METHODS: A prospective audit of hospital records over 35 months yielded quantitative data about patient characteristics, frequency and length of hospital episodes, diagnostic assessments and outcomes, post-emergency department (ED) destinations and post-discharge recommendations. Fifty participants were recruited largely by identification on hospital ED entry. An audit of patients' hospital records was conducted towards the end of hospital episodes, using a tool developed for the study. RESULTS: Participants were mostly men (70%), aged 42.9 years on average, living mostly with family (46%) or in supported accommodation (44%). Of 157 recorded episodes, 96% started in ED,  85% required urgent or semi-urgent care and 62% were in the first 3 months of study participation. Average time in ED exceeded the 4-h national benchmark, met in 40% of episodes. One or more diagnostic assessments were conducted in 91% episodes and others in short stay units. Almost half (49%) resulted in a ward stay. With an extreme data point removed, <1-35 days were spent in wards. The most frequent diagnosis in 75% of episodes was for digestive problems, followed by nervous system problems then injuries. Median length of bed stays reflected data available for Australian refined diagnosis-related groups. High hospital re-presentations were found: for 67% of episodes in total, 26% (n = 12) of which were within 72 h and 59% (n = 23) within 30 days. CONCLUSIONS: Adults with ID presented frequently to ED and often had lengthy stays. We found no indication of poor care practices in terms of hospital staff willingness to keep patients in ED and conduct of diagnostic assessments. Frequent re-presentations, however, indicated failed hospital care at some level.


Assuntos
Auditoria Clínica , Serviço Hospitalar de Emergência , Hospitalização , Pessoas com Deficiência Mental , Qualidade da Assistência à Saúde , Adulto , Serviço Hospitalar de Emergência/estatística & dados numéricos , Feminino , Hospitalização/estatística & dados numéricos , Humanos , Masculino , Pessoas com Deficiência Mental/estatística & dados numéricos , Estudos Prospectivos , Vitória
9.
J Appl Res Intellect Disabil ; 33(3): 552-564, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-32064737

RESUMO

BACKGROUND: Studies have reported unmet health needs in individuals with intellectual disability (ID). This study illustrated and analysed patterns of healthcare services utilization among people with intellectual disability and compared their use to that of the general population. METHOD: Participants (N = 791, aged 15-82) were mainly recruited through government-financed agencies specializing in services for people with intellectual disabilities in Québec, Canada. Comparisons were possible by using health administrative data. RESULTS: Some services were more used by people with intellectual disability than the general population (general medicine, psychiatry, PSA blood tests), and others were accessed at significantly lower frequencies (optometry, physiotherapy, Pap tests). Similar rates were found for mammography, dentistry and psychology. Inequities were more salient for individuals who had more severe levels of intellectual disability. CONCLUSIONS: Our findings support that the population with intellectual disability would benefit from policies and practices aimed at enhancing the access to healthcare services.


Assuntos
Utilização de Instalações e Serviços/estatística & dados numéricos , Acessibilidade aos Serviços de Saúde/estatística & dados numéricos , Deficiência Intelectual/terapia , Aceitação pelo Paciente de Cuidados de Saúde/estatística & dados numéricos , Pessoas com Deficiência Mental/estatística & dados numéricos , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Disparidades em Assistência à Saúde/estatística & dados numéricos , Humanos , Masculino , Pessoa de Meia-Idade , Quebeque , Adulto Jovem
10.
Health Serv Res ; 55(3): 357-366, 2020 06.
Artigo em Inglês | MEDLINE | ID: mdl-31989595

RESUMO

OBJECTIVE: To examine the effects of transition challenges on the success and timeliness of transitions from institutions to community living for long-stay participants in the Money Follows the Person (MFP) Rebalancing Demonstration and determine whether outcomes vary by age and disability. DATA SOURCE: Secondary data on transition challenges for individuals enrolled in Connecticut's MFP program between December 2008 and December 2017. STUDY DESIGN: Challenges were analyzed for older adults, people with mental health disability, and people with physical disability. Bivariate and multivariate analyses investigated which transition challenges and selected demographic variables predict transition versus closure and length of transition period for each group. DATA EXTRACTION METHODS: The sample includes 3506 persons who attempted transition from institutions to community living and whose case concluded with transition or closure from 2015 to 2017. PRINCIPAL FINDINGS: The association between most transition challenges and the ability of long-stay institutional residents to return to the community, and to do so in a timely manner, varies significantly among older adults and younger persons with physical or mental health disabilities. For all groups, however, consumer engagement challenges predicted closure without transition (OR: 1.3-3.9) and housing challenges predicted longer transition periods (84-132 days). Length of institutional stay was associated with both outcomes for older adults and persons with physical disability. Other challenges, such as issues with services and supports, differed among the three groups on both outcomes. CONCLUSIONS: Knowledge of the effects of transition challenges on success and timeliness of transition for each group allows program managers and health and service providers to focus resources on addressing the most serious challenges. Particular emphasis should be placed on consumer engagement and housing challenges, and on targeting persons for transition early in their institutional stay. Federal and state transition programs can benefit by individualizing supports for residents to yield successful outcomes.


Assuntos
Pessoas com Deficiência/estatística & dados numéricos , Habitação/organização & administração , Instituições Residenciais/organização & administração , Serviço Social/organização & administração , Fatores Etários , Idoso , Idoso de 80 Anos ou mais , Connecticut , Feminino , Humanos , Masculino , Equipe de Assistência ao Paciente/organização & administração , Pessoas com Deficiência Mental/estatística & dados numéricos , Fatores de Tempo
11.
Disabil Rehabil ; 42(12): 1687-1696, 2020 06.
Artigo em Inglês | MEDLINE | ID: mdl-30616421

RESUMO

Purpose: In Kenya, the employment rate for persons with disabilities is about 1% compared to 73.8% for the general population, and the situation is even worse for persons with mental disabilities. Persons with mental disabilities are often regarded as "mad", and stand little or no chance of employment. We undertook an exploratory study with employers and potential employers to understand factors that hinder or facilitate their employment and to gain insight into employers' perceptions of mental disability.Materials and methods: We adopted a mixed method study design, including in-depth interviews (n = 10) and questionnaires (n = 158) with (potential) employers in Kenya to explore the barriers and facilitators of employment for persons with mental disabilities.Results: Out of the 158 employers who completed the questionnaire, only 15.4% had ever employed persons with mental disabilities. The perceptions that these persons are not productive and may be violent was associated with an unwillingness to employ them (OR: 10.11, 95%CI: 2.87-35.59 and OR: 3.6, 95%CI: 1.34-9.64, respectively). The possession of skills was the highest reported facilitator of employing persons with mental disabilities. Employers suggested that information about mental illness and the disclosure by prospective employees with mental disabilities are relevant for the provision of reasonable accommodation in the workplace.Conclusion: Possession of skills and disclosure by persons with mental disabilities could improve their employability. Information targeted at all actors including employers, employees, government, and policymakers is necessary for balancing employers and employees expectations.Implications for rehabilitationDisabled persons' organisations or mental disability programs that seek to improve the employment of persons with mental disabilities should incorporate methods that address employer expectations through dialogue to find mutual benefits.Employers require essential information about mental illness, and guidance and support in order to provide reasonable accommodation in the workplace for persons with mental disabilities.Disabled persons' organisations and inclusive employment programs should share the positive experiences of employers of persons with mental disabilities with employers who are unaware of the work abilities of persons with mental disabilities to stimulate adoption of inclusive practices.


Assuntos
Emprego , Deficiência Intelectual , Pessoas com Deficiência Mental , Local de Trabalho , Emprego/organização & administração , Emprego/psicologia , Emprego/normas , Humanos , Deficiência Intelectual/epidemiologia , Deficiência Intelectual/reabilitação , Quênia/epidemiologia , Motivação , Pessoas com Deficiência Mental/reabilitação , Pessoas com Deficiência Mental/estatística & dados numéricos , Estudos Prospectivos , Inquéritos e Questionários , Desempenho Profissional , Local de Trabalho/organização & administração , Local de Trabalho/normas
12.
J Intellect Disabil ; 24(4): 474-488, 2020 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-30803324

RESUMO

The Research in the field of mental health and educational needs of children with intellectual disabilities has increased over the years. However, the focus on milder disabilities such as mild intellectual disability and borderline intellectual functioning (MBID; intelligence quotient: 50-85) is still limited. The current study aimed at understanding peer victimization and its relationship to the self-esteem of children with MBID in regular and special schools. The study utilized a cross-sectional research design with a sample of 40 children who met the inclusion criteria. On analysis, the results showed that peer victimization was more common in regular schools (U = 51, p ≤ 0.001), wherein the peer victimization had a significant negative correlation with their self-esteem (r = -0.536, p ≤ 0.001). Overall, the findings implied the need for promotion of inclusive education in regular schools by sensitization against peer victimization of children with disabilities.


Assuntos
Bullying/psicologia , Vítimas de Crime/psicologia , Crianças com Deficiência/psicologia , Educação Inclusiva , Deficiência Intelectual/psicologia , Pessoas com Deficiência Mental/psicologia , Instituições Acadêmicas , Autoimagem , Bullying/estatística & dados numéricos , Criança , Vítimas de Crime/estatística & dados numéricos , Estudos Transversais , Crianças com Deficiência/estatística & dados numéricos , Educação Inclusiva/estatística & dados numéricos , Feminino , Humanos , Índia , Masculino , Grupo Associado , Pessoas com Deficiência Mental/estatística & dados numéricos , Instituições Acadêmicas/estatística & dados numéricos , Índice de Gravidade de Doença , População Urbana
13.
J Intellect Disabil ; 24(1): 21-34, 2020 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-29444613

RESUMO

Rehabilitation services for people with mental illnesses have been extensively researched. However, services with similar aims and specifications for patients with intellectual disabilities (IDs) have had little focus. This study describes the characteristics and outcomes of 21 patients admitted to a specialist ID rehabilitation service over an 8-year time frame. Rather that solely accepting 'step-down' referrals, some patients were referred from community settings. During the study, 20 patients were discharged, 80% to lower levels of service restriction, while 14.3% to higher levels. The study suggested that rehabilitation services have an important role within the wider service model for people with ID. Within the service studied, patients were referred from both higher and lower levels of restriction, suggesting the rehabilitation service 'bridged the gap' between inpatient and community settings, supporting the aim of caring for patients in the least restrictive setting for their needs.


Assuntos
Deficiências do Desenvolvimento/reabilitação , Deficiência Intelectual/reabilitação , Deficiências da Aprendizagem/reabilitação , Serviços de Saúde Mental , Avaliação de Processos e Resultados em Cuidados de Saúde , Admissão do Paciente , Pessoas com Deficiência Mental/reabilitação , Encaminhamento e Consulta , Adulto , Feminino , Humanos , Masculino , Serviços de Saúde Mental/estatística & dados numéricos , Pessoa de Meia-Idade , Avaliação de Processos e Resultados em Cuidados de Saúde/estatística & dados numéricos , Admissão do Paciente/estatística & dados numéricos , Pessoas com Deficiência Mental/estatística & dados numéricos , Encaminhamento e Consulta/estatística & dados numéricos , Adulto Jovem
14.
J Intellect Disabil Res ; 64(3): 197-208, 2020 03.
Artigo em Inglês | MEDLINE | ID: mdl-31850647

RESUMO

BACKGROUND: Workforce inclusion is an important political goal in many countries. However, nearly 70% of Norwegians registered with mild intellectual disabilities (IDs) are not registered employed or attending in day care centres. This study investigates the association between age, gender, functional level and hospital admissions with employment or attendance in public financed, community-based day care centres for adults with mild IDs in Norway. METHOD: This study is based on data from a linkage of the national population-based registries from 2013 to 2015: Statistics Norway (SSB), the Norwegian Information System for the Nursing and Care Sector (IPLOS) and the Norwegian Patient Registry (NPR). The sample consisted of 2370 adults registered with a mild ID, receiving disability pension in Norway, aged 18-67 years. Binary and multinomial logistic analyses, adjusted for age, gender, functional level and hospital admissions, were performed. RESULTS: In 2015, 45.7% and 19.6% of the samples aged 20-31 and 52-63 years, respectively, were registered as employed or in day care centres. Participation in day care is a public service registered in IPLOS, which requires registration of functional level, while attendance in employment support is registered in SSB, where functional level is not registered. Compared with people registered with a high functional level, the probability of being employed or in day care centres was lower for people without registration of functional level. People with hospital admissions were less likely to be employed, especially if they had both psychiatric and somatic hospital admissions. People were less likely to attend day care and open employment only if they had a combination of both types of hospital admissions. Attendance in day care centres was less likely for men than women. CONCLUSIONS: Older people with mild ID, without registered functional level (meaning not receiving public community-based services) and with a history of hospital admissions were significantly less likely to be employed or participate in day care centres. The clear association between not being employed or attending day care centres and not having one's functional level registered implies there is a need for increased focus on how to enhance work participation among people with mild IDs who are not within the system of receiving public services.


Assuntos
Serviços de Saúde Comunitária/estatística & dados numéricos , Hospital Dia/estatística & dados numéricos , Emprego/estatística & dados numéricos , Deficiência Intelectual/reabilitação , Admissão do Paciente/estatística & dados numéricos , Pessoas com Deficiência Mental/reabilitação , Pessoas com Deficiência Mental/estatística & dados numéricos , Sistema de Registros/estatística & dados numéricos , Adolescente , Adulto , Fatores Etários , Idoso , Feminino , Estado Funcional , Humanos , Masculino , Pessoa de Meia-Idade , Noruega , Índice de Gravidade de Doença , Fatores Sexuais , Adulto Jovem
15.
J Appl Res Intellect Disabil ; 33(3): 420-429, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31786826

RESUMO

BACKGROUND: People with intellectual disability (ID) experience higher mortality than the general population. This study examines factors contributing to deaths in people with intellectual disability. METHOD: Linked administrative data spanning ten years for 49,947 people with intellectual disability receiving disability services were analysed to assess the impact of demographic variables, comorbidities and health service utilization on the risk of death using Cox proportional hazard models. RESULTS: People admitted for cancer were 8 times more likely to die within the study period compared to people not admitted for cancer. Down syndrome, cerebral palsy and heart disease also increased the risk of death. Emergency department presentations and/or mental health admissions increased the risk of death 4 times. CONCLUSIONS: Our findings provide a basis for policy changes and public health interventions. Cancer screening, mental health interventions, inclusion of people with intellectual disability in health policy and improved health care are needed to meet the needs of this population.


Assuntos
Causas de Morte , Paralisia Cerebral/epidemiologia , Cardiopatias/epidemiologia , Deficiência Intelectual/epidemiologia , Neoplasias/epidemiologia , Aceitação pelo Paciente de Cuidados de Saúde/estatística & dados numéricos , Pessoas com Deficiência Mental/estatística & dados numéricos , Sistema de Registros , Adolescente , Adulto , Idoso , Paralisia Cerebral/mortalidade , Criança , Pré-Escolar , Comorbidade , Conjuntos de Dados como Assunto , Síndrome de Down/epidemiologia , Feminino , Cardiopatias/mortalidade , Humanos , Lactente , Masculino , Pessoa de Meia-Idade , Neoplasias/mortalidade , Modelos de Riscos Proporcionais , Risco , Adulto Jovem
16.
J Appl Res Intellect Disabil ; 33(3): 386-397, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31769160

RESUMO

BACKGROUND: Adults with an intellectual disability (ID) have much lower rates of employment than their counterparts without intellectual disability, which increases their risk of poverty and social exclusion. Differential treatment of people with intellectual disability in welfare and training policies suggests an expectation they will be passive welfare recipients rather than productive employees. METHODS: This paper aims to examine occupational activities by older people with intellectual disability in Ireland, exploring factors influencing outcomes using data from the IDS-TILDA study (n = 708). RESULTS: Most people were unemployed but engaged in regular occupational activity. Occupational activity was associated with better emotional/mental health. Activities of Daily Living (ADL) functioning was associated with an active occupational status, while social supports most strongly predicted high occupational engagement across a range of activities. CONCLUSIONS: A focus on the individual meaning derived from a broad range of engagement may better support people with intellectual disabilities to benefit from regular occupational activity.


Assuntos
Atividades Cotidianas , Emprego/estatística & dados numéricos , Deficiência Intelectual , Pessoas com Deficiência Mental , Trabalho/estatística & dados numéricos , Adulto , Feminino , Humanos , Deficiência Intelectual/epidemiologia , Deficiência Intelectual/psicologia , Deficiência Intelectual/reabilitação , Irlanda/epidemiologia , Masculino , Pessoa de Meia-Idade , Pessoas com Deficiência Mental/psicologia , Pessoas com Deficiência Mental/reabilitação , Pessoas com Deficiência Mental/estatística & dados numéricos
17.
J Appl Res Intellect Disabil ; 33(3): 442-456, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31746061

RESUMO

BACKGROUND: Transport is an important basis for social participation. Challenges to accessing and using transport for people with intellectual disabilities increase their risk of exclusion and loneliness. METHOD: Data from a nationally representative study of older people with intellectual disabilities (n = 708) were used to examine longitudinal changes in transport usage and factors associated with using public transport and other travel options. RESULTS: Findings confirmed that this population depends on others for transportation. The most frequently used mode, staff-supported transport, showed no significant longitudinal change. Public transport was secondary, with only moderate continued use between data collection points. Level of intellectual disability most strongly predicted public transport use, while community residence most strongly predicted using public transport to attend work or day programmes. CONCLUSIONS: Transport usage is associated with demand and supply factors linked to the person's environment, including having somewhere to go that requires transport and availability of transport options.


Assuntos
Hospital Dia , Readaptação ao Emprego , Deficiência Intelectual/reabilitação , Pessoas com Deficiência Mental/estatística & dados numéricos , Participação Social , Meios de Transporte , Trabalho , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Irlanda , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Pessoas com Deficiência Mental/reabilitação
18.
Diabetes Educ ; 46(1): 94-107, 2020 02.
Artigo em Inglês | MEDLINE | ID: mdl-31874589

RESUMO

PURPOSE: The purpose of this study is to examine diabetes standard of care among individuals who have diabetes with and without cognitive limitation disabilities (CLDs). Individuals with CLDs are more likely to develop diabetes and less likely to participate in diabetes standard of care services compared to those without CLDs. METHODS: We used pooled cross-sectional data (2011-2016) from the Household Component of the Medical Expenditure Panel Survey (HC-MEPS). Dependent variables were utilization of dilated eye exams, foot checks, A1C blood tests, and engagement in moderate or vigorous physical exercise 5 times per week. Our independent variable was diabetes with CLDs vs diabetes without CLDs. We controlled for predisposing, enabling, and need factors. RESULTS: Findings suggest that individuals with diabetes and CLDs were less likely to engage in moderate or vigorous physical exercise 5 times per week compared to individuals without CLDs. For other diabetes care services, individuals with CLDs are as likely to participate in health services utilization as those without CLDs. CONCLUSIONS: Our study supports research that indicates individuals with diabetes and CLDs were less likely to participate in physical exercise compared to individuals without CLDs. Conversely, individuals with diabetes and CLDs were just as likely to receive a dilated eye exam, have their feet checked, and have their A1C checked as individuals without CLDs, which is a very encouraging finding.


Assuntos
Diabetes Mellitus/psicologia , Disparidades em Assistência à Saúde/estatística & dados numéricos , Aceitação pelo Paciente de Cuidados de Saúde/estatística & dados numéricos , Pessoas com Deficiência Mental/estatística & dados numéricos , Padrão de Cuidado/estatística & dados numéricos , Adulto , Idoso , Idoso de 80 Anos ou mais , Disfunção Cognitiva/complicações , Estudos Transversais , Feminino , Gastos em Saúde/estatística & dados numéricos , Humanos , Masculino , Pessoa de Meia-Idade , Aceitação pelo Paciente de Cuidados de Saúde/psicologia
19.
Lancet Psychiatry ; 7(2): 148-161, 2020 02.
Artigo em Inglês | MEDLINE | ID: mdl-31879245

RESUMO

BACKGROUND: Mental disorders are among the leading causes of non-fatal disease burden in India, but a systematic understanding of their prevalence, disease burden, and risk factors is not readily available for each state of India. In this report, we describe the prevalence and disease burden of each mental disorder for the states of India, from 1990 to 2017. METHODS: We used all accessible data from multiple sources to estimate the prevalence of mental disorders, years lived with disability (YLDs), and disability-adjusted life-years (DALYs) caused by these disorders for all the states of India from 1990 to 2017, as part of the Global Burden of Diseases, Injuries, and Risk Factors Study. We assessed the heterogeneity and time trends of mental disorders across the states of India. We grouped states on the basis of their Socio-demographic Index (SDI), which is a composite measure of per-capita income, mean education, and fertility rate in women younger than 25 years. We also assessed the association of major mental disorders with suicide deaths. We calculated 95% uncertainty intervals (UIs) for the point estimates. FINDINGS: In 2017, 197·3 million (95% UI 178·4-216·4) people had mental disorders in India, including 45·7 million (42·4-49·8) with depressive disorders and 44·9 million (41·2-48·9) with anxiety disorders. We found a significant, but modest, correlation between the prevalence of depressive disorders and suicide death rate at the state level for females (r2=0·33, p=0·0009) and males (r2=0·19, p=0·015). The contribution of mental disorders to the total DALYs in India increased from 2·5% (2·0-3·1) in 1990 to 4·7% (3·7-5·6) in 2017. In 2017, depressive disorders contributed the most to the total mental disorders DALYs (33·8%, 29·5-38·5), followed by anxiety disorders (19·0%, 15·9-22·4), idiopathic developmental intellectual disability (IDID; 10·8%, 6·3-15·9), schizophrenia (9·8%, 7·7-12·4), bipolar disorder (6·9%, 4·9-9·6), conduct disorder (5·9%, 4·0-8·1), autism spectrum disorders (3·2%, 2·7-3·8), eating disorders (2·2%, 1·7-2·8), and attention-deficit hyperactivity disorder (ADHD; 0·3%, 0·2-0·5); other mental disorders comprised 8·0% (6·1-10·1) of DALYs. Almost all (>99·9%) of these DALYs were made up of YLDs. The DALY rate point estimates of mental disorders with onset predominantly in childhood and adolescence (IDID, conduct disorder, autism spectrum disorders, and ADHD) were higher in low SDI states than in middle SDI and high SDI states in 2017, whereas the trend was reversed for mental disorders that manifest predominantly during adulthood. Although the prevalence of mental disorders with onset in childhood and adolescence decreased in India from 1990 to 2017, with a stronger decrease in high SDI and middle SDI states than in low SDI states, the prevalence of mental disorders that manifest predominantly during adulthood increased during this period. INTERPRETATION: One in seven Indians were affected by mental disorders of varying severity in 2017. The proportional contribution of mental disorders to the total disease burden in India has almost doubled since 1990. Substantial variations exist between states in the burden from different mental disorders and in their trends over time. These state-specific trends of each mental disorder reported here could guide appropriate policies and health system response to more effectively address the burden of mental disorders in India. FUNDING: Bill & Melinda Gates Foundation; and Indian Council of Medical Research, Department of Health Research, Ministry of Health and Family Welfare, Government of India.


Assuntos
Carga Global da Doença/estatística & dados numéricos , Transtornos Mentais/epidemiologia , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Transtornos de Ansiedade/epidemiologia , Transtorno Depressivo/epidemiologia , Feminino , Humanos , Índia/epidemiologia , Masculino , Pessoa de Meia-Idade , Pessoas com Deficiência Mental/estatística & dados numéricos , Prevalência , Anos de Vida Ajustados por Qualidade de Vida , Fatores Sexuais , Fatores Socioeconômicos , Suicídio Consumado/estatística & dados numéricos , Adulto Jovem
20.
J Intellect Disabil Res ; 64(2): 180-184, 2020 02.
Artigo em Inglês | MEDLINE | ID: mdl-31788881

RESUMO

BACKGROUND: Adults with intellectual disabilities (IDs) have higher rates of morbidity and mortality compared with the general population, necessitating a need to identify modifiable targets for intervention to mitigate risk. While the benefits of leisure-time physical activity (PA) are well established in the general population; there is a dearth of evidence confirming its health benefits among adults with IDs. The purpose of this study was to examine the association between leisure-time PA and all-cause mortality among a population-based sample of adults with IDs. METHODS: A total of 413 adults with IDs from 17 waves (1997-2014) of the National Health Interview Survey, a U.S. nationally representative survey, were studied. Minutes per week of leisure-time PA was ascertained by self-report and classified as poor, intermediate or ideal levels of PA. RESULTS: Over a median follow-up of 7.2 years, 60 participants died. In a multivariable-adjusted model, higher levels of leisure-time PA were dose-dependently associated with a lower risk of all-cause mortality (P-trend = 0.008). The multivariable-adjusted hazard ratios (95% confidence interval) for all-cause mortality comparing participants with intermediate and ideal versus poor levels of PA were 0.43 (0.18, 1.04) and 0.30 (0.10, 0.87), respectively. CONCLUSION: These findings show that leisure-time PA confers mortality benefit in adults with IDs and should be considered as a priority target for promoting health and longevity in this population.


Assuntos
Causas de Morte , Exercício Físico , Deficiência Intelectual/epidemiologia , Atividades de Lazer , Pessoas com Deficiência Mental/estatística & dados numéricos , Adulto , Idoso , Feminino , Inquéritos Epidemiológicos , Humanos , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Estados Unidos/epidemiologia
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