Assuntos
Confidencialidade/história , Tomada de Decisões , Papel do Médico/história , Sífilis/história , Comunicação/história , Confidencialidade/legislação & jurisprudência , Revelação/história , Revelação/legislação & jurisprudência , História do Século XX , Humanos , Nebraska , Sífilis/diagnósticoAssuntos
Revelação/legislação & jurisprudência , Revelação/normas , Responsabilidade Legal , Erros Médicos/legislação & jurisprudência , Motivação , Participação dos Interessados , Austrália , Revelação/história , Família/psicologia , Pessoal de Saúde/educação , Pessoal de Saúde/organização & administração , Política de Saúde , História do Século XX , Humanos , Política Organizacional , Dano ao Paciente , Segurança do Paciente , Satisfação do Paciente , Qualidade da Assistência à SaúdeRESUMO
Este artículo pretende abordar aspectos de la historia de la divulgación científica en Brasil en el siglo XIX, a través del analisis de la circulación de algunas traducciones para el portugués de las obras del vulgarizador de la ciencia francés, Louis Figuier. Sus obras, que fueron traducidas para diversas lenguas, recibieron ediciones en Brasil y en Portugal a partir de fines de la década de 1860. En este período, ganaba terreno un modelo de divulgación de las ciencias que se alineaba con la idea de ampliación de conocimientos científicos, con énfasis en las ciencias aplicadas para no especialistas - clase trabajadora, mujeres y jovenes. Sin embargo, ese modelo fue marcado igualmente por limitaciones y discontinuidades que reflejan cuestiones sociales de fondo, en el pasaje al siglo XX. Este trabajo pretende, destacar el papel de los traductores y editores, entendidos como mediadores de las ciencias, que tenían en vista proyectos cuyo principal enfoque era la educación (AU)
This article aims to address aspects of the history of the divulgation of sciences in Brazil in the nineteenth century, through the analysis of the circulation of some translations into Portuguese of the works of French popularizer of science, Louis Figuier. His works, which were translated to different languages, received editions in Brazil and Portugal since late 1860. During this period, a model of popularization of science for non-specialists - working class, women and youth - with emphasis on applied science was gaining terrain. However, this model was also marked by limitations and discontinuities that reflect social issues in the passage to the twentieth century. This paper attempts to highlight the role of translators and editors, understood as mediators of science, whose projects of social reform was primarily focused in popular instruction (AU)
Assuntos
Humanos , História do Século XIX , História do Século XX , Revelação/história , Ciência da Informação/história , Ciência/história , Acesso à Informação/história , Tradução , Brasil/epidemiologia , Portugal/epidemiologiaRESUMO
This article reviews adoption debates about the disclosure of children's medical history in the twentieth century, noting shifts in the prescription of how much and what to tell adoptive applicants. I look at how adoption professional debates throughout the twentieth century around the disclosure of a child's medical history reveal the ways in which these professionals tried to deal with issues of predictability, risk, adoptability, and acceptability when it came to the persistent question of disability in adoptive family making. I consider how this management is similar to and different from histories of reproduction. I argue that as child eligibility gradually expanded to include children labeled disabled, and as adoption moved from a being a parent-centered practice to a child-centered one, professionals more intensely negotiated the management and communication of disability risk as a way to both mitigate the possibility of a failed placement and to facilitate a successful one.
Assuntos
Adoção , Comunicação , Revelação/história , Pais , Pessoas com Deficiência/história , História do Século XX , Humanos , Risco , Estados UnidosRESUMO
The United States and the United Kingdom ended outdoor biological warfare testing in populated areas nearly half a century ago. Yet, the conduct, health effects, and propriety of those tests remain controversial. The varied views reflect the limits of currently available test information and evolving societal values on research involving human subjects. Western political culture has changed since the early days of the American and British testing programs. People have become less reluctant to question authority, and institutional review boards must now pre-approve research involving human subjects. Further, the heightened stringency of laboratory containment has accentuated the safety gap between a confined test space and one without physical boundaries. All this makes it less likely that masses of people would again be unwittingly subjected to secret open-air biological warfare tests.
Assuntos
Guerra Biológica/história , Experimentação Humana/história , Valores Sociais/história , Guerra Biológica/ética , Revelação/ética , Revelação/história , História do Século XX , Experimentação Humana/ética , Humanos , Política , Política Pública/história , Reino Unido , Estados UnidosRESUMO
PURPOSE: Quality of care is strongly influenced by evidence-based medicine, a large part of which is based on results obtained from clinical trials. If trials are conducted in secret, patient safety is at risk. Several mandates-legal, editorial, financial, and ethical-have tried to influence the disclosure of clinical trials, first by encouraging registration in publicly accessible registers and, second, by calling for the publication of results. Not all these initiatives have reached high rates of compliance, but the succession of national and international events over a few years gave an important boost to information disclosure. This article provides a chronicle of the succession of the events, from the historical calls to the recent EMA policy and WHO statement, and public consultations requested by the NIH, and the HHS, which will inevitably change the international panorama. The path of these new policies is moving towards more supervised clinical research. Individual scientific institutions can also contribute, at the local level, to such an ethical endeavor as is improving research transparency, by disclosing information on the trials coordinated by their own researchers. RESULTS: The way is long and complex, but, if everyone contributes there could be a prompt, worldwide diffusion of the findings of clinical trials, and therefore a more possible evidenced-based medicine.
Assuntos
Ensaios Clínicos como Assunto/história , Ensaios Clínicos como Assunto/normas , Revelação/história , Revelação/normas , Ética em Pesquisa , História do Século XX , Humanos , National Institutes of Health (U.S.) , Revisão por Pares , Estados Unidos , Organização Mundial da SaúdeRESUMO
This paper examines the representations and emotions associated with disclosure and stigma in Pietermaritzburg, KwaZulu-Natal, seven years after the start of the South African government's ARV roll-out programme on the basis of in-depth oral history interviews of HIV-positive support group members. It argues that the wider availability of ARV treatment, the ensuing reduced fatality rate and the increased number of people, including men, who receive counselling and testing, may mean that HIV/AIDS is less stigmatised and that disclosure has become easier. This does not mean that stigma has disappeared and that the confusion created by competing world-views and belief systems has dissipated. Yet the situation of extreme denial and ideological confusion observed, for example, by Deborah Posel and her colleagues in 2003 and 2004 in the Mpumalanga province seems to have lessened. The interviews hint at the possibility that people living with HIV may have, more than a decade before, a language to express the emotions and feelings associated with HIV/AIDS. They were also found to be more assertive in matters of gender relations. These new attitudes would make disclosure easier and stigma more likely to recede.
Assuntos
Revelação/história , Infecções por HIV/psicologia , Grupos de Autoajuda , Estereotipagem , Feminino , Infecções por HIV/diagnóstico , Infecções por HIV/terapia , História do Século XX , Humanos , Masculino , Narração , Pesquisa Qualitativa , África do SulRESUMO
Traditional historiography of science has constructed secrecy in opposition to openness. In the first part of the paper, I will challenge this opposition. Openness and secrecy are often interlocked, impossible to take apart, and they might even reinforce each other. They should be understood as positive (instead of privative) categories that do not necessarily stand in opposition to each other. In the second part of this paper, I call for a historicization of the concepts of 'openness' and 'secrecy'. Focusing on the early modern period, I briefly introduce three kinds of secrecy that are difficult to analyse with a simple oppositional understanding of openness and secrecy. In particular, I focus on secrecy in relation to esoteric traditions, theatricality and allegory.
Assuntos
Confidencialidade/história , Revelação/história , Historiografia , Ciência/história , Europa (Continente) , História do Século XVI , História do Século XVII , História do Século XVIII , SimbolismoRESUMO
Freud's analogies were legion: hydraulic pipes, military recruitment, magic writing pads. These and some three hundred others took features of the mind and bound them to far-off scenes--the id only very partially resembles an uncontrollable horse, as Freud took pains to note. But there was one relation between psychic and public act that Freud did not delimit in this way: censorship, the process that checked memories and dreams on their way to the conscious. (Freud dubbed the relation between internal and external censorship a 'parallel' rather than a limited analogy.) At first, Freud likened this suppression to the blacking out of texts at the Russian frontier. During the First World War, he suffered, and spoke of suffering under, Viennese postal and newspaper censorship--Freud was forced to leave his envelopes unsealed, and to recode or delete content. Over and over, he registered the power of both internal and public censorship in shared form: distortion, anticipatory deletion, softenings, even revision to hide suppression. Political censorship left its mark as the conflict reshaped his view of the psyche into a society on a war footing, with homunculus-like border guards sifting messages as they made their way--or did not--across a topography of mind.
Assuntos
Comunicação/história , Confidencialidade/história , Teoria Freudiana/história , Política , Áustria-Hungria , Revelação/história , História do Século XVI , História do Século XVIIRESUMO
The Freedom of Information Act (FOIA) and state 'open-records' laws govern access to records in the possession of federal agencies and state entities, such as public universities. Although these laws are intended to promote 'open government' and to assure the existence of an informed citizenry capable of holding government officials accountable for their decisions, an inherent tension exists between the public's access to information and biomedical research institutions' need to ensure the confidentiality of proprietary records and to protect the personal safety of employees. Recognizing these and other conflicts, the federal FOIA and state public-disclosure laws contain express exemptions to protect sensitive information from disclosure. Although some state open-records laws are modeled after the federal FOIA, important differences exist based on the language used by the state law, court interpretations, and exemptions. Two specific types of exemptions are particularly relevant to research facilities: exemptions for research information and exemptions for personal information. Responding to FOIA and state open-records requests requires knowledge of relevant laws and the involvement of all interested parties to facilitate a coordinated and orderly response.
Assuntos
Acesso à Informação/história , Pesquisa Biomédica/normas , Confidencialidade/história , Revelação/história , Acesso à Informação/legislação & jurisprudência , Confidencialidade/legislação & jurisprudência , Confidencialidade/normas , Revelação/legislação & jurisprudência , Revelação/normas , Governo Federal , Órgãos Governamentais , História do Século XX , História do Século XXI , Governo Estadual , Estados UnidosAssuntos
Comportamento Aditivo/psicologia , Meios de Comunicação de Massa , Pinturas , Comportamento Sexual/psicologia , Comportamento Aditivo/história , Revelação/história , França , História do Século XIX , História do Século XX , História do Século XXI , Humanos , Meios de Comunicação de Massa/história , Medicina nas Artes , Pinturas/história , Política Pública , Fatores de Risco , Comportamento Sexual/história , Assédio Sexual , Estados UnidosRESUMO
This article investigates the extent of Human Immunodeficiency Virus/Acquired Immune Deficiency Syndrome Disclosures (HIV/AIDSD) in online annual reports by 200 listed companies from 10 African countries for the year ending 2006. Descriptive statistics reveal a very low level of overall HIV/AIDSD practices with a mean of 6 per cent disclosure, with half (100 out of 200) of the African companies making no disclosures at all. Logistic regression analysis reveals that company size and country are highly significant predictors of any disclosure of HIV/AIDS in annual reports. Profitability is also statistically significantly associated with the extent of disclosure.
Assuntos
Síndrome da Imunodeficiência Adquirida , Relatórios Anuais como Assunto , Comércio , Revelação , HIV , Saúde Pública , Síndrome da Imunodeficiência Adquirida/etnologia , Síndrome da Imunodeficiência Adquirida/história , África/etnologia , Comércio/economia , Comércio/educação , Comércio/história , Comércio/legislação & jurisprudência , Informação de Saúde ao Consumidor/economia , Informação de Saúde ao Consumidor/história , Informação de Saúde ao Consumidor/legislação & jurisprudência , Atenção à Saúde/economia , Atenção à Saúde/história , Atenção à Saúde/legislação & jurisprudência , Revelação/história , Revelação/legislação & jurisprudência , História do Século XX , História do Século XXI , Saúde Pública/economia , Saúde Pública/educação , Saúde Pública/história , Saúde Pública/legislação & jurisprudência , Prática de Saúde Pública/economia , Prática de Saúde Pública/história , Prática de Saúde Pública/legislação & jurisprudência , Estatística como Assunto/educação , Estatística como Assunto/históriaRESUMO
The descriptive "conventions" used on food labels are always evolving. Today, however, the changes are so complicated (partly driven by legislation requiring disclosures about environmental impacts, health issues, and geographical provenance) that these labels more often baffle buyers than enlighten them. In a light-handed manner, the article points to how sometimes reading label language can be like deciphering runesand how if we are familiar with the technical terms, we can find a literal meaning, but still not see the implications. The article could be ten times longer because food labels vary according to culturesbut all food-exporting cultures now take advantage of our short attention-span when faced with these texts. The question is whether less is moreand if so, in this contest for our attention, what "contestant" is voted off.
Assuntos
Rotulagem de Alimentos , Inocuidade dos Alimentos , Abastecimento de Alimentos , Idioma , Legislação sobre Alimentos , Saúde Pública , Revelação/história , Revelação/legislação & jurisprudência , Meio Ambiente , Rotulagem de Alimentos/economia , Rotulagem de Alimentos/história , Rotulagem de Alimentos/legislação & jurisprudência , Abastecimento de Alimentos/economia , Abastecimento de Alimentos/história , Abastecimento de Alimentos/legislação & jurisprudência , História do Século XX , História do Século XXI , Idioma/história , Legislação sobre Alimentos/economia , Legislação sobre Alimentos/história , Saúde Pública/economia , Saúde Pública/educação , Saúde Pública/história , Saúde Pública/legislação & jurisprudênciaRESUMO
During his first term as President of the United States, Dwight D. Eisenhower suffered several serious illnesses. Particularly important was the massive heart attack he experienced in the fall of 1955. Drawing on primary sources as well as prior scholarship, this article analyzes varying interpretations of Eisenhower's 1955 medical treatment in light of his previous illnesses and their management. It explores the handling of public disclosure by the White House, by Eisenhower himself, and by his medical team. And it reconsiders Republican strategists' efforts to allay public concerns about the President's health. Current understanding is called into question in several respects. Although it sharpened speculation about his fitness and willingness to run in the 1956 presidential campaign, the 1955 heart attack made Eisenhower more likely, rather than less likely, to run. Although often sick, and in several instances critically so, Eisenhower was clearly the dominant player--intentionally "behind the scenes"--both in the management of his illnesses and in the health-perceptual aspects of his drive toward a second term. These findings should lead us to a better reading of Eisenhower as a president and to a better appreciation of health's linkage to legacy in presidential politics.
Assuntos
Infarto do Miocárdio/história , Política , Revelação/história , Pessoas Famosas , História do Século XX , Humanos , Liderança , Estados UnidosRESUMO
Research on the history of medical ethics in Germany still regards the nineteenth century as the age of medical paternalism. The authoritarian manner of German physicians is particularly emphasised by assuming that patients were normally not involved in decisions about serious therapeutic measures. This paper will analyse if and how physicians dealt with the issues of medical disclosure and of patient consent concerning surgery and other painful interventions in the first half of the nineteenth century. Physicians rarely dealt with this problem in their articles on medical ethics but reflected, instead, on the issues of disclosure and consent in descriptions of risky therapeutic interventions. They devoted considerable attention to the description of the decision making process, particularly in medical case reports on life-threatening surgery. The benefits hoped for and the risks of the surgical intervention were frequently explained in detail. It was important for them not only to legitimise their adventurous course of action by obtaining patients' consent but also to demonstrate that the seriously ill patients in reality played the active, demanding part in the decision on life-threatening surgery. It is remarkable that, even where patients from lower social classes were concerned, physicians stressed the necessity of obtaining their consent for risky surgical interventions. However, it cannot be established with certainty if the patients were comprehensively informed by the physicians about the risks involved. Nevertheless, physicians' awareness of the necessity of such disclosure, as expressed by their rhetorical "self-fashioning" in the published case reports, is beyond doubt.