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1.
Asian Pac J Cancer Prev ; 24(1): 249-255, 2023 Jan 01.
Artigo em Inglês | MEDLINE | ID: mdl-36708574

RESUMO

BACKGROUND: Switzerland, with an adolescent HPV vaccination coverage at 59%, remains far from reaching the crucial swiss national goal of 80% coverage. Our objective was to implement a new information brochure in schools to increase HPV vaccination uptake. METHODS: We designed a public health quality project. A new information brochure was produced and was distributed to a test group of 9th grade students from the Canton of Vaud, in Switzerland during the 2019-2020 school year. Vaccine uptake of the test group was compared to those of all other students in 2019-2020 and of students in the same schools in 2017-2018. RESULTS: 12,143 electronic records were analyzed. 713 students were enrolled in 6 schools where the new brochure was distributed. Median age was 13 years (IQR 12-13), and 6,031 (49.7%) were female. Vaccine uptake was 52% (6,299/12,143). The new brochure did not result in increased uptake. Age ≥ 13 years (aOR 1.39, 95% CI 1.22-1.58) was significantly associated with uptake. Uptake increased between 2017-2018 (51%, 3,216/6,307) and 2019-2020 (52.8%, 3,083/5,836, p=0.04) due to increased acceptance among boys. The only determinant of uptake in 2019-2020 was uptake in the same schools in 2017-2018. CONCLUSION: The introduction of a new information brochure was insufficient to increase HPV vaccination coverage. More innovative strategies are needed.


Assuntos
Infecções por Papillomavirus , Vacinas contra Papillomavirus , Masculino , Adolescente , Humanos , Feminino , Vacinação , Infecções por Papillomavirus/prevenção & controle , Folhetos , Instituições Acadêmicas , Vacinas contra Papillomavirus/uso terapêutico , Aceitação pelo Paciente de Cuidados de Saúde
5.
BMJ Open ; 12(11): e068164, 2022 11 24.
Artigo em Inglês | MEDLINE | ID: mdl-36424116

RESUMO

OBJECTIVES: To determine the feasibility of a patient-education booklet to support patients with low back pain (LBP) to reduce paracetamol intake. DESIGN: Single group, repeated measures feasibility study. SETTING: Community. PARTICIPANTS: Adults experiencing LBP of any kind and self-reporting consumption of paracetamol for LBP weekly for at least 1 month were invited to participate. INTERVENTION: Participants received a patient-education booklet 1 week after the baseline measures were collected. The intervention was designed to change beliefs, increase knowledge and self-efficacy to deprescribe paracetamol for their LBP and create discussion with a health professional through the mechanisms of motivation, capacity and opportunity. PRIMARY OUTCOME MEASURES: Feasibility of recruitment procedures, data collection and acceptability of the intervention. SECONDARY OUTCOME MEASURES: Changes in motivation, self-efficacy, opportunity to deprescribe paracetamol for their LBP, paracetamol usage and LBP clinical outcomes at baseline, 1-week and 1-month follow-up. RESULTS: A total of 24 participants were recruited into the study within the timeframe of 3 months from study advertisement and all completed the study follow-up. There were no missing data for any outcome measure across all follow-up points, 22 (91.6%) participants were willing to participate in a future randomised control trial (RCT) and over 60% of participants responded positively to questions regarding acceptability of the patient-educational booklet. Overall, at the 1-month follow-up, approximately two thirds (15/24) of participants had an increase in motivation and self-efficacy scores and had discussed or intended to discuss their paracetamol use for LBP with a health professional. CONCLUSIONS: The results of this study demonstrate that the patient-education booklet is feasible to implement, and both the intervention and study design were well-received by participants. This study supports the undertaking an RCT to assess the effects of the patient-education booklet on deprescribing paracetamol in people with LBP.


Assuntos
Dor Lombar , Adulto , Humanos , Dor Lombar/tratamento farmacológico , Estudos de Viabilidade , Acetaminofen/uso terapêutico , Folhetos , Avaliação de Resultados em Cuidados de Saúde
6.
Rev Esc Enferm USP ; 56: e20210560, 2022.
Artigo em Inglês, Português | MEDLINE | ID: mdl-36427269

RESUMO

OBJECTIVE: To test the effectiveness of the booklet, compared to the usual service care, in the increase of the knowledge of pregnant/puerperal women living with HIV, for the prevention of HIV-VT. METHOD: Pilot study of a randomized controlled clinical trial, initially with 104 pregnant women living with HIV, with a final sample of 45 women. It was held in three public maternity hospitals in Fortaleza-CE, from January/2017 to May/2018. The control group received regular care from the service and the intervention group had access to the booklet as an additive. The research was carried out in three phases: baseline; evaluation 2, in prenatal care; and evaluation 3, in the postpartum period. RESULTS: There was no intergroup difference in the women's mean knowledge score (short-term p = 0.473; long-term p = 0.151). However, in the intragroup analysis, the booklet proved to be effective in improving the pregnant women's knowledge in the intervention group, in the short term (p = 0.002) and long term (p = 0.033). CONCLUSION: There was an improvement in knowledge within the intervention group over time, but there was no difference in women's knowledge in the intergroup analysis. Thus, based on this pilot, a broader study on the use of booklet is required to prove its effectiveness (ReBEC: UTN: U1111-1191-9954).


Assuntos
Infecções por HIV , Folhetos , Gravidez , Feminino , Humanos , Projetos Piloto , Mães , Transmissão Vertical de Doenças Infecciosas/prevenção & controle , Infecções por HIV/prevenção & controle
7.
Trials ; 23(1): 840, 2022 Oct 03.
Artigo em Inglês | MEDLINE | ID: mdl-36192754

RESUMO

BACKGROUND: Job loss after a cancer diagnosis can lead to long-term financial toxicity and its attendant adverse clinical consequences, including decreased treatment adherence. Among women undergoing (neo)adjuvant chemotherapy for breast cancer, access to work accommodations (e.g., sick leave) is associated with higher job retention after treatment completion. However, low-income and/or minority women are less likely to have access to work accommodations and, therefore, are at higher risk of job loss. Given the time and transportation barriers that low-income working patients commonly face, it is crucial to develop an intervention that is convenient and easy to use. METHODS: We designed an intervention to promote job retention during and after (neo)adjuvant chemotherapy for breast cancer by improving access to relevant accommodations. Talking to Employers And Medical staff about Work (TEAMWork) is an English/Spanish mobile application (app) that provides (1) suggestions for work accommodations tailored to specific job demands, (2) coaching/strategies for negotiating with an employer, (3) advice for symptom self-management, and (4) tools to improve communication with the medical oncology team. This study is a randomized controlled trial to evaluate the app as a job-retention tool compared to a control condition that provides the app content in an informational paper booklet. The primary outcome of the study is work status after treatment completion. Secondary outcomes include work status 1 and 2 years later, participant self-efficacy to ask an employer for accommodations, receipt of workplace accommodations during and following adjuvant therapy, patient self-efficacy to communicate with the oncology provider, self-reported symptom burden during and following adjuvant therapy, and cancer treatment adherence. DISCUSSION: This study will assess the use of mobile technology to improve vulnerable breast cancer patients' ability to communicate with their employers and oncology providers, work during treatment and retain their jobs in the long term, thereby diminishing the potential consequences of job loss, including decreased treatment adherence, debt, and bankruptcy. TRIAL REGISTRATION: ClincalTrials.gov NCT03572374 . Registered on 08 June 2018.


Assuntos
Neoplasias da Mama , Aplicativos Móveis , Neoplasias da Mama/tratamento farmacológico , Quimioterapia Adjuvante , Emprego , Feminino , Humanos , Folhetos
8.
Eur J Oncol Nurs ; 61: 102190, 2022 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-36215817

RESUMO

PURPOSE: In chemotherapy process, the innovative and educational roles of nurses come to the forefront so that children can manage the symptoms they will encounter and thus increase their quality-of-life. Therefore, a tablet game was developed by the authors of this study to evaluate the effect of training children aged 10-16 who receive chemotherapy by a tablet game and a booklet on symptom management and quality-of-life. METHODS: This was a non-randomized pre and post-test control group study. The study sample consisted of 50 children (game: 25; booklet: 25) who met the inclusion criteria and hospitalized between February 2017-July 2018 in two hospitals' Paediatric Haematology-Oncology Units. Data collection tools consisted of a child evaluation form, Memorial Symptom Assessment Scale, KINDL-Cancer Module, a tablet game, and booklet. RESULTS: When groups were evaluated within themselves after the intervention, the decrease of disturbance level of symptoms at the game group was higher than the booklet group (p:.004). Before the intervention, there was not any difference in the quality-of-life mean between groups (p < .05). After the intervention quality-of-life total (p:.000), mental (p:.030), and treatment (p:.009) subscale means were statistically significantly less at game group than booklet group. CONCLUSIONS: Both interventions were effective for symptom management, and they were not superior to each other, but the quality-of-life was higher in the game group.


Assuntos
Neoplasias , Qualidade de Vida , Criança , Humanos , Folhetos , Cuidados Paliativos , Neoplasias/tratamento farmacológico , Comprimidos
10.
Artigo em Inglês | MEDLINE | ID: mdl-36231891

RESUMO

BACKGROUND: Hypertension comorbid with metabolic syndrome could increase the development of adverse cardiovascular events. Educational interventions were effective to improve outcomes in patients. METHODS: This was a secondary data analysis of participants with hypertension. The original randomized controlled trial aimed to examine the effect of app and booklet versus control among individuals diagnosed with metabolic syndrome living in the community. A 30-min health education was provided to each participant. In addition to the education, the app group received a mobile app while the booklet group received a booklet. Data were collected at baseline, week 4, week 12, and week 24. Intention-to-treat principle was followed, and generalized estimating equations was employed for data analysis. RESULTS: A total of 118 participants with hypertension and metabolic syndrome were extracted from the three-arm trial data. The sample size was 36, 42, and 40 in the app group, booklet group, and control group, respectively. Compared to the control group, the app group showed a significant reduction on body weight and waist circumference at week 24, while the total exercise and self-efficacy for exercise were increased at week 12 and week 24 but no significant findings were observed in the booklet group. CONCLUSIONS: The educational intervention supported with app was superior to the booklet support on the outcomes of body weight, waist circumference, total exercise, and self-efficacy for exercise among patients with hypertension and metabolic syndrome in the community.


Assuntos
Hipertensão , Síndrome Metabólica , Aplicativos Móveis , Peso Corporal , Análise de Dados , Humanos , Hipertensão/epidemiologia , Hipertensão/terapia , Síndrome Metabólica/terapia , Folhetos
11.
Artigo em Inglês | MEDLINE | ID: mdl-36232215

RESUMO

Cognitive impairment (CI), an intermediate phase between the decline in physiological cognition and dementia, is known to be mediated by a variety of risk and protective factors, with age being the most influential of these. The multifactorial nature of CI and the worldwide phenomenon of an aging population makes decoupling old age from disease through the concept of healthy aging (HA) a matter of major interest. Focusing on psychosocial variables and psychological constructs, here we designed and piloted a data collection booklet (DeCo-B) to assess CI and HA from a holistic perspective. The DeCo-B comprises six sections: sociodemographic factors, CI, meaning in life, psychosocial factors, health problems, and lifestyle. The estimated prevalence of CI and HA in our cohort were 24.4% and 6.6%, respectively. Spearman correlations mainly identified pairwise associations between the meaning in life domains and psychosocial variables. Moreover, age, marital status, purpose in life, resilience, chronic pain, cognitive reserve, and obstructive sleep apnea were significantly associated with an increased risk of CI. Our results showed that DeCo-B is a suitable tool for researching how modifiable risk and protective factors influence cognitive status. The complex interrelationships between variables should be further investigated and, for practical reasons, the questionnaire should be optimized in future work.


Assuntos
Disfunção Cognitiva , Reserva Cognitiva , Idoso , Cognição/fisiologia , Disfunção Cognitiva/epidemiologia , Humanos , Folhetos , Projetos Piloto
13.
Am J Audiol ; 31(4): 1133-1142, 2022 Dec 05.
Artigo em Inglês | MEDLINE | ID: mdl-36054847

RESUMO

PURPOSE: The purpose of this study was to examine the ease of reading cochlear implant (CI) brochures provided to parents and caregivers who are making informed decisions about the management of their child's hearing loss. METHOD: CI brochures from three Food and Drug Administration-approved CI manufacturers were examined: Advanced Bionics, Cochlear Americas, and MED-EL. Reading grade levels and ease of reading were analyzed using a commercially available computer software program, applying six readability formulas commonly used to examine hearing-related patient education materials (PEMs). RESULTS: The readability of the CI brochures exceeds the fifth- to sixth-grade reading-level guidelines. The CI brochures may be difficult for the average English-speaking adult to read with ease and requires at least a 10th-grade comparable reading level. CONCLUSIONS: Despite health literacy initiatives, audiology-focused PEMs continue to be created without full consideration of the burden for the reader. Authors of PEMs should consider the average reading level of the reader as a variable potentially influencing the decision-making process. Likewise, clinicians should consider the average reading level needed to understand PEMs when presenting information and resources to parents and caregivers for informed and shared decision making.


Assuntos
Implantes Cocleares , Folhetos , Adulto , Criança , Humanos , Estados Unidos , Compreensão , Pais , Tomada de Decisões , Internet
14.
Rev Gaucha Enferm ; 43: e20210175, 2022.
Artigo em Inglês, Português | MEDLINE | ID: mdl-36043643

RESUMO

OBJECTIVE: To describe the development and validation process of a booklet with perioperative guidelines for surgical patients. METHOD: This is a methodological, quantitative study, divided into three stages: narrative review, booklet preparation and validation with 23 judges, nurses specialized in patient safety/perioperative nursing, who answered the online Educational Content Validation Instrument. The booklet was considered valid when each item obtained a Content Validity Index equal to or greater than 0.8. RESULTS: The elaborated material was divided into four items: surgical patient safety; preoperative guidelines; the surgical center; guidelines after surgery. The overall Content Validity Index in the validation with judges was 1.0, considered gold standard. CONCLUSION: The booklet was validated by experts regarding objectives, structure/presentation and relevance.


Assuntos
Folhetos , Segurança do Paciente , Humanos , Inquéritos e Questionários
15.
CMAJ Open ; 10(3): E652-E656, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35820684

RESUMO

BACKGROUND: Off-label use of gabapentinoids is common among patients admitted to hospital medical wards, who are at risk of adverse drug events. In this study, we will assess if educational brochures can increase rates of gabapentinoid deprescription among medical inpatients, compared with usual care. METHODS: We describe the protocol for a prospective before-and-after trial that will take place on 5 medical wards of 2 tertiary care hospitals in Montréal, Canada. The study intervention will include distribution of educational brochures to users of gabapentinoids during hospital admission, as well as short educational sessions for medical staff on safe gabapentinoid prescribing practices. We will include patients with a gabapentinoid prescription before admission who are aged 60 years or older. Exclusion criteria are known seizure disorder, severe cognitive impairment, expected prognosis less than 3 months and inability to read English or French. The primary outcome is the rate of gabapentinoid deprescription at 8 weeks postdischarge. We aim to recruit 160 participants, with a 1:1 distribution between intervention and control groups. INTERPRETATION: If successful, the use of educational brochures and staff education represents a scalable intervention to reduce gabapentinoid overuse by encouraging deprescription conversations between patients and their health care providers. Results of the study will be disseminated through publication in peer-reviewed journals and presentations at conferences. TRIAL REGISTRATION: ClinicalTrials.gov, no. NCT04855578.


Assuntos
Desprescrições , Folhetos , Ácido gama-Aminobutírico , Assistência ao Convalescente , Humanos , Alta do Paciente , Participação do Paciente , Estudos Prospectivos , Ácido gama-Aminobutírico/efeitos adversos
16.
Rev Bras Enferm ; 75(5): e20210243, 2022.
Artigo em Inglês, Português | MEDLINE | ID: mdl-35894409

RESUMO

OBJECTIVES: to build and validate an educational booklet to promote the involvement of parents in labor and birth. METHODS: methodological study developed in five stages: situational diagnosis; bibliographic survey; construction of illustrations, layout, design and texts; content and appearance validation by judges (25 experts) and calculation of the Flesch Readability Index; and validation with the target audience (12 parents). A minimum Content Validity Index of 0.80 was considered. RESULTS: the booklet was entitled "Father Presence" and was developed in 11 topics. In Content and Appearance Validation, the Validity Index obtained an overall score of 0.97. Cronbach's alpha was 0.92, indicating excellent reliability of its content. A global score of 74% for readability was obtained, considered easy to understand. CONCLUSIONS: the material was successful in the validation process, and it can be recommended for parents to use it during the prenatal period, promoting the inclusion of the partner and preparing them for labor and birth.


Assuntos
Folhetos , Parto , Tecnologia Educacional , Pai , Feminino , Humanos , Masculino , Gravidez , Reprodutibilidade dos Testes , Inquéritos e Questionários
17.
PLoS One ; 17(7): e0271100, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35802643

RESUMO

Shared decision-making (SDM) provides patient-centered care. However, the limited consultation time was the main factor hindering the application. Patient education is crucial in the process of SDM. The use of visual aids as health education materials is an effective way to improve patients' health literacy and medication adherence. This study aimed to determine the effectiveness of the clinician-created educational video of acne, accessed by patients during the waiting time, including knowledge level and satisfaction. This study was conducted in dermatology outpatient clinics and collected patient responses through electronic devices. During the waiting time, patients with acne would read educational pamphlets and complete the test first. Then, a clinician-created 8-minute educational video, as a patient decision aid (PDA), was accessed by patients using their own mobile smart devices, followed by a test and questionnaire about the satisfaction of the pamphlet and video. We enrolled 50 patients with acne, including 33 males and 17 females. The mean age is 25.55 ± 6.27 years old, ranging from 15 to 47 years old. About the patients' knowledge, the test score improved significantly after watching the video (P < .001). The same findings were observed in the subgroup analysis of gender and different age groups. A higher proportion of patients preferred the educational video over the pamphlet in both genders and different age groups. All patients agreed with the video helped them to understand the educational information and impressed them more than reading pamphlets. The application of clinician-created educational videos in patient education seems to be an efficient solution to implement SDM in the daily clinical work. Besides, we could remind patients to watch the video anytime when they were not sure about the treatment choices, side effects, or the precautions of medications.


Assuntos
Acne Vulgar , Letramento em Saúde , Acne Vulgar/tratamento farmacológico , Adolescente , Adulto , Tomada de Decisões , Tomada de Decisão Compartilhada , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pacientes Ambulatoriais , Folhetos , Participação do Paciente , Adulto Jovem
18.
J Am Pharm Assoc (2003) ; 62(5): 1528-1530, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35672207

RESUMO

Medication product package labels (MPPLs) and patient information leaflets (PILs) are sometimes the last source of information for patients before they take their medications. They provide a setting in which patients can immediately inform themselves about the medication they are taking or reread any content provided by physicians or pharmacists, as needed. Despite the growing number of people who are at risk of vision impairement, some pharmaceutical companies print MPPLs and PILs in fonts that patients cannot read. Problems arising from MPPLs and PILs have been identified as remarkable sources of medication errors and fatalities. As a result, the purpose of this article is to emphasize the need for patient-centered MPPLs and PILs to protect public health.


Assuntos
Rotulagem de Medicamentos , Médicos , Humanos , Folhetos , Assistência Centrada no Paciente , Farmacêuticos
19.
Braz J Phys Ther ; 26(3): 100402, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35569258

RESUMO

BACKGROUND: Diabetes mellitus (DM) and diabetic peripheral neuropathy (DPN) compromises the structures of the musculoskeletal system, especially in the foot-ankle complex. Foot-related exercises can be a promising tool to be incorporated in health care programs to manage and prevent musculoskeletal complications resulting from DM and DPN progression. OBJECTIVE: To present the development, validation, and usability evaluation of a booklet that directs training and personalizes the progression of a home-based program of foot-ankle exercises. METHODS: The booklet containing a foot-ankle exercise program developed in a previous clinical trial was validated using the Delphi technique, with a multi-professional jury of experts who assessed the content of the material, language, individual education, exercise execution, exercise quality, and material implementation. The validated version was evaluated through telephone interview by a convenience sample of 10 individuals with DPN regarding its relevance, health education, comprehension, and usability. RESULTS: The validation process with experts was performed in two rounds achieving 100% agreement in the second round. During the usability evaluation process the main complaint of users was that performing all the exercises was very tiring and took too much time out of their daily routine. Thus, the number of repetitions for each exercise was changed from 30 to 12. CONCLUSION: The booklet is a material for prevention and management of the impacts of DM and DPN progression by improving the musculoskeletal function of the foot-ankle. This material provides an exercise regime with a personalized progression based on the perceived effort of the users.


Assuntos
Diabetes Mellitus , Neuropatias Diabéticas , Tornozelo , Articulação do Tornozelo , Terapia por Exercício/métodos , Humanos , NAD , Folhetos
20.
PLoS One ; 17(5): e0268898, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35609047

RESUMO

INTRODUCTION: Complete and understandable information is vital for informed consent and this includes how and when potential participants can expect to receive trial results. Informing participants during informed consent about the sharing of trial results is important for addressing participants' needs, ensuring adherence to regulatory guidance, and in fulfilling a moral obligation. METHODS: Patient Information Leaflets (PILs) were collated from across the UK and Ireland. Trial characteristics and data on disseminating trial results was extracted. Analysis included descriptive statistics and a directed content analysis approach. The content analysis framework was informed by regulatory guidance on PIL content and existing research on dissemination of trial results. Results were analysed using descriptive statistics and presented as a narrative summary as appropriate. RESULTS: 238 PILs from 178 trials were analysed. Of the 238 PILs, 74% (n = 176) provided information on sharing results with participants, 70% (n = 123) of which described passive methods of disseminating results that require active engagement from the trial participants, i.e., effort required by the participant to seek the results. The majority (90%) of PILs included more than one proposed mode of dissemination that largely targeted healthcare professionals rather than participants. Only 8% of PILs specified a time period for when results could be expected, 47% did not specify a time period (e.g. at end of trial), and 45% included no information on when trial results would be available. CONCLUSION: This study found that majority of the PILs included did include some information about dissemination of trial results. However, modes of dissemination tended to target researchers and clinicians rather than participants and information on when results would be available was often lacking. The findings highlight the need for further research that includes stakeholder input to identify what information on results summaries participants need at the point of making a decision about trial participation.


Assuntos
Consentimento Livre e Esclarecido , Folhetos , Ensaios Clínicos como Assunto , Humanos , Disseminação de Informação , Irlanda , Publicações , Reino Unido
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