Clinical manifestations and quality of life in hidradenitis suppurativa patients: survey of participants from an internet support group
An. bras. dermatol
; 94(3): 298-303, May-June 2019. tab, graf
Artigo
em Inglês
| LILACS
| ID: biblio-1011122
Biblioteca responsável:
BR1.1
ABSTRACT
Abstract Background:
Hidradenitis suppurativa is a complex and infrequent autoinflammatory disease that impacts on quality of life. Its pathogenesis is not fully understood, which limits the development of curative treatments.Objectives:
To evaluate clinical and quality of life aspects of hidradenitis suppurativa patients from a social group on the Internet.Methods:
A cross-sectional, Internet-based survey study among participants in a discussion group (Facebook) of individuals with hidradenitis suppurativa. Patients were asked to answer a questionnaire about clinical-demographic aspects and quality of life (DLQI-BRA).Results:
A total of 390 individuals agreed to participate in the study, 82% of them female, median age (p25-p75), of 31 (25-37) years old, disease onset at 15 (13-23) years, family member affected in 20% of cases, overweight (BMI 29 [25-33]) kg/m2 and severe impact on quality of life (DLQI 20 [13-25]). Regarding Hurley's classification, the participants provided information that enabled classification into I (19%), II (52%) and III (29%). More severe cases were associated with males (OR = 1.69), higher weight (BMI OR = 1.03) non-white color (OR = 1.43) and higher frequency of other autoinflammatory diseases (OR = 1.37). Studylimitations:
Voluntary adherence survey with self-completion of the questionnaire by 390 from about 1600 group members.Conclusions:
Hidradenitis suppurativa patients who participated in a social network group had onset of the disease after puberty, with a predominance in females and overweight people, with great impact on the quality of life.
Texto completo:
Disponível
Coleções:
Bases de dados internacionais
Contexto em Saúde:
Agenda de Saúde Sustentável para as Américas
Problema de saúde:
Objetivo 5 Medicamentos, vacinas e tecnologias sanitárias
Base de dados:
LILACS
Assunto principal:
Qualidade de Vida
/
Hidradenite Supurativa
/
Pesquisa Participativa Baseada na Comunidade
/
Mídias Sociais
Tipo de estudo:
Estudo observacional
/
Estudo de prevalência
/
Pesquisa qualitativa
/
Fatores de risco
Aspecto:
Preferência do paciente
Limite:
Adulto
/
Idoso
/
Feminino
/
Humanos
/
Masculino
Idioma:
Inglês
Revista:
An. bras. dermatol
Assunto da revista:
Dermatologia
Ano de publicação:
2019
Tipo de documento:
Artigo
País de afiliação:
Brasil
Instituição/País de afiliação:
Universidade Estadual Paulista/BR