Outcome measures for adults with down syndrome based on the international classification of functioning, disability, and health model: a systematic review
ABCS health sci
; 48: e023305, 14 fev. 2023. tab, ilus, graf
Article
em En
| LILACS
| ID: biblio-1537365
Biblioteca responsável:
BR1342.1
Localização: BR1342.1
ABSTRACT
INTRODUCTION:
Adults with Down syndrome (DS) have functional disabilities due to the extra presence of chromosome 21.OBJECTIVE:
To identify the functionality and disability assessment instruments used in research involving adults with DS and associate them with the components of the International Classification of Functioning (ICF).METHODS:
Two independent researchers analyzed articles from PubMed, Lilacs, SciELO, Science Direct, and Cochrane databases, including cross sectional and clinical studies whose results involved functionality and disability for individuals with DS (≥18 years), with no publication date limit for the studies. The methodological quality of the studies was analyzed by the Downs & Black Checklist; descriptive analysis was used for the results. This review was registered in PROSPERO (CRD42021234012).RESULTS:
15 articles were analyzed in which 48 instruments were identified for the assessment of adults with DS (36.42±10.62 years); the quality of the articles was considered "good". Of these 48 instruments, 41 were associated with bodily function, 5 instruments were associated with the activity component, one instrument was associated with social participation and one instrument was associated with the environment.CONCLUSION:
Of the 48 instruments identified to assess adults with DS, most were for the Body Function and Structure component; only the 6MWT and CAMDEX-SD have been validated for this population. LIFE-H and MQE were used to assess Social Participation and the Environment, but they cannot be considered dependable, as they have not been confirmed for individuals with DS.Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
LILACS
Assunto principal:
Classificação Internacional de Funcionalidade, Incapacidade e Saúde
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Síndrome de Down
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Modelos Biopsicossociais
Limite:
Adult
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Humans
Idioma:
En
Revista:
ABCS health sci
Assunto da revista:
MEDICINA
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SAUDE PUBLICA
Ano de publicação:
2023
Tipo de documento:
Article
País de afiliação:
Brasil
País de publicação:
Brasil