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Community Engagement in Health-Related Research: A Case Study of a Community-Linked Research Infrastructure, Jefferson County, Arkansas, 2011-2013.
Stewart, M Kathryn; Felix, Holly C; Olson, Mary; Cottoms, Naomi; Bachelder, Ashley; Smith, Johnny; Ford, Tanesha; Dawson, Leah C; Greene, Paul G.
Afiliação
  • Stewart MK; Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences, 4301 West Markham St, Slot 820, Little Rock, AR 72205. Email: stewartmaryk@uams.edu.
  • Felix HC; Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences, Little Rock, Arkansas.
  • Olson M; Tri County Rural Health Network, Inc, Helena, Arkansas.
  • Cottoms N; Tri County Rural Health Network, Inc, Helena, Arkansas.
  • Bachelder A; Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences, Little Rock, Arkansas.
  • Smith J; Shiloh Baptist Church and Ten Thousand Black Men, Pine Bluff, Arkansas.
  • Ford T; University of Arkansas at Pine Bluff, Pine Bluff, Arkansas.
  • Dawson LC; Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences, Little Rock, Arkansas.
  • Greene PG; Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences, Little Rock, Arkansas.
Prev Chronic Dis ; 12: E115, 2015 Jul 23.
Article em En | MEDLINE | ID: mdl-26203813
ABSTRACT

BACKGROUND:

Underrepresentation of racial minorities in research contributes to health inequities. Important factors contributing to low levels of research participation include limited access to health care and research opportunities, lack of perceived relevance, power differences, participant burden, and absence of trust. We describe an enhanced model of community engagement in which we developed a community-linked research infrastructure to involve minorities in research both as participants and as partners engaged in issue selection, study design, and implementation. COMMUNITY CONTEXT We implemented this effort in Jefferson County, Arkansas, which has a predominantly black population, bears a disproportionate burden of chronic disease, and has death rates above state and national averages.

METHODS:

Building on existing community-academic partnerships, we engaged new partners and adapted a successful community health worker model to connect community residents to services and relevant research. We formed a community advisory board, a research collaborative, a health registry, and a resource directory.

OUTCOME:

Newly formed community-academic partnerships resulted in many joint grant submissions and new projects. Community health workers contacted 2,665 black and 913 white community residents from December 2011 through April 2013. Eighty-five percent of blacks and 88% of whites were willing to be re-contacted about research of potential interest. Implementation challenges were addressed by balancing the needs of science with community needs and priorities.

INTERPRETATION:

Our experience indicates investments in community-linked research infrastructure can be fruitful and should be considered by academic health centers when assessing institutional research infrastructure needs.
Assuntos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Doença Crônica / Participação da Comunidade / Disparidades em Assistência à Saúde / Pesquisa Participativa Baseada na Comunidade / Grupos Minoritários Tipo de estudo: Clinical_trials / Etiology_studies / Prognostic_studies / Risk_factors_studies / Sysrev_observational_studies Aspecto: Determinantes_sociais_saude / Equity_inequality / Implementation_research / Patient_preference Limite: Humans País/Região como assunto: America do norte Idioma: En Revista: Prev Chronic Dis Assunto da revista: SAUDE PUBLICA Ano de publicação: 2015 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Doença Crônica / Participação da Comunidade / Disparidades em Assistência à Saúde / Pesquisa Participativa Baseada na Comunidade / Grupos Minoritários Tipo de estudo: Clinical_trials / Etiology_studies / Prognostic_studies / Risk_factors_studies / Sysrev_observational_studies Aspecto: Determinantes_sociais_saude / Equity_inequality / Implementation_research / Patient_preference Limite: Humans País/Região como assunto: America do norte Idioma: En Revista: Prev Chronic Dis Assunto da revista: SAUDE PUBLICA Ano de publicação: 2015 Tipo de documento: Article