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Lessons learned: Engaging culturally diverse families in neurodevelopmental disorders intervention research.
Ratto, Allison B; Anthony, Bruno J; Pugliese, Cara; Mendez, Rocio; Safer-Lichtenstein, Jonathan; Dudley, Katerina M; Kahn, Nicole F; Kenworthy, Lauren; Biel, Matthew; Martucci, Jillian L; Anthony, Laura G.
Afiliação
  • Ratto AB; 1 Children's National Health System, USA.
  • Anthony BJ; 2 The George Washington University School of Medicine, USA.
  • Pugliese C; 3 Children's Research Institute, Washington DC, USA.
  • Mendez R; 4 Georgetown University Center for Child and Human Development, USA.
  • Safer-Lichtenstein J; 5 Georgetown University Medical Center, USA.
  • Dudley KM; 6 MedStar Health Research Institute, USA.
  • Kahn NF; 1 Children's National Health System, USA.
  • Kenworthy L; 3 Children's Research Institute, Washington DC, USA.
  • Biel M; 4 Georgetown University Center for Child and Human Development, USA.
  • Martucci JL; 4 Georgetown University Center for Child and Human Development, USA.
  • Anthony LG; 1 Children's National Health System, USA.
Autism ; 21(5): 622-634, 2017 07.
Article em En | MEDLINE | ID: mdl-27313190
Low-income and ethnic minority families continue to face critical disparities in access to diagnostic and treatment services for neurodevelopmental conditions, such as autism spectrum disorder and attention deficit hyperactivity disorder. Despite the growing cultural diversity of the United States, ethnic minority children and families continue to be substantially underrepresented across research on neurodevelopmental disorders, and there is a particularly concerning lack of research on the treatment of these conditions in low-income and ethnic minority communities. Of note, there are currently no published studies on adapting autism spectrum disorder treatment for low-income Latino communities and relatively few studies documenting adapted treatments for children with attention deficit hyperactivity disorder in these communities. This article describes methodological considerations and adaptations made to research procedures using a Diffusion of Innovation framework in order to effectively recruit and engage low-income, ethnic minority, particularly Latino, families of children with neurodevelopmental disorders, in a comparative effectiveness trial of two school-based interventions for executive dysfunction.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pesquisa / Avaliação de Programas e Projetos de Saúde / Hispânico ou Latino / Diversidade Cultural / Assistência à Saúde Culturalmente Competente / Transtornos do Neurodesenvolvimento Tipo de estudo: Evaluation_studies Aspecto: Determinantes_sociais_saude Limite: Adult / Child / Female / Humans / Male País/Região como assunto: America do norte Idioma: En Revista: Autism Assunto da revista: PSICOLOGIA / PSIQUIATRIA Ano de publicação: 2017 Tipo de documento: Article País de afiliação: Estados Unidos País de publicação: Reino Unido

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pesquisa / Avaliação de Programas e Projetos de Saúde / Hispânico ou Latino / Diversidade Cultural / Assistência à Saúde Culturalmente Competente / Transtornos do Neurodesenvolvimento Tipo de estudo: Evaluation_studies Aspecto: Determinantes_sociais_saude Limite: Adult / Child / Female / Humans / Male País/Região como assunto: America do norte Idioma: En Revista: Autism Assunto da revista: PSICOLOGIA / PSIQUIATRIA Ano de publicação: 2017 Tipo de documento: Article País de afiliação: Estados Unidos País de publicação: Reino Unido