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Health-Related Quality of Life for Patients With Genetically Determined Leukoencephalopathy.
Mirchi, Amytice; Pelletier, Félixe; Tran, Luan T; Keller, Stephanie; Braverman, Nancy; Tonduti, Davide; Vanderver, Adeline; Pizzino, Amy; Dilenge, Marie-Emmanuelle; Poulin, Chantal; Shevell, Michael; Majnemer, Annette; Sébire, Guillaume; Srour, Myriam; Osterman, Bradley; Boucher, Renée-Myriam; Vanasse, Michel; Rossignol, Elsa; Mitchell, John; Venkateswaran, Sunita; Pohl, Daniela; Kauffman, Marcelo; Schiffmann, Raphael; Goizet, Cyril; Moutton, Sebastien; Roncarolo, Federico; Bernard, Geneviève.
Afiliação
  • Mirchi A; Department of Medical Genetics, Montreal Children's Hospital, McGill University Health Centre, Montreal, Quebec, Canada; Department of Neurology and Neurosurgery, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada; Child Health and Huma
  • Pelletier F; Department of Medical Genetics, Montreal Children's Hospital, McGill University Health Centre, Montreal, Quebec, Canada; Department of Neurology and Neurosurgery, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada; Child Health and Huma
  • Tran LT; Department of Medical Genetics, Montreal Children's Hospital, McGill University Health Centre, Montreal, Quebec, Canada; Department of Neurology and Neurosurgery, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada; Child Health and Huma
  • Keller S; Department of Pediatrics, Division of Pediatric Neurology, Emory University, Atlanta, Georgia.
  • Braverman N; Department of Medical Genetics, Montreal Children's Hospital, McGill University Health Centre, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada.
  • Tonduti D; Child Neurology Unit, V. Buzzi Children's Hospital, Milan, Italy; Child Neurology Department, Carlo Besta Neurological Institute, Milan, Italy.
  • Vanderver A; Department of Neurology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania; Division of Neurology, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.
  • Pizzino A; Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; MetroHealth Hospital, Cleveland, Ohio.
  • Dilenge ME; Department of Neurology and Neurosurgery, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, Division of Pediatric Neurology, Montreal Children's Hospital and the McGill University Health Centre, Montreal, Que
  • Poulin C; Department of Neurology and Neurosurgery, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, Division of Pediatric Neurology, Montreal Children's Hospital and the McGill University Health Centre, Montreal, Que
  • Shevell M; Department of Neurology and Neurosurgery, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada; Child Health and Human Development Program, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada; Department of
  • Majnemer A; Department of Neurology and Neurosurgery, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada; Child Health and Human Development Program, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada; Department of
  • Sébire G; Department of Neurology and Neurosurgery, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada; Child Health and Human Development Program, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada; Department of
  • Srour M; Department of Neurology and Neurosurgery, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada; Child Health and Human Development Program, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada; Department of
  • Osterman B; Department of Pediatrics, Division of Pediatric Neurology, Centre Hospitalier de l'Université Laval, Québec, Québec, Canada.
  • Boucher RM; Department of Pediatrics, Division of Pediatric Neurology, Centre Hospitalier de l'Université Laval, Québec, Québec, Canada.
  • Vanasse M; Department of Neurosciences and Pediatrics, Division of Pediatric Neurology, Centre Hospitalier Universitaire Sainte-Justine, Montreal, Quebec, Canada.
  • Rossignol E; Department of Neurosciences and Pediatrics, Division of Pediatric Neurology, Centre Hospitalier Universitaire Sainte-Justine, Montreal, Quebec, Canada.
  • Mitchell J; Department of Medical Genetics, Montreal Children's Hospital, McGill University Health Centre, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada; Child Health and Human Development Program, Research Institute of the McGill University Health Centre, Montr
  • Venkateswaran S; Division of Neurology, Department of Pediatrics, Children's Hospital of Eastern Ontario, University of Ottawa, Ottawa, Ontario, Canada.
  • Pohl D; Division of Neurology, Department of Pediatrics, Children's Hospital of Eastern Ontario, University of Ottawa, Ottawa, Ontario, Canada.
  • Kauffman M; Neurogenetics Unit, Department of Neurology, Hospital JM Ramos Mejia and CONICET, Buenos Aires, Argentina.
  • Schiffmann R; Institute of Metabolic Disease, Baylor University Medical Center at Dallas, Dallas, Texas.
  • Goizet C; Univ. Bordeaux, Laboratoire MRGM, INSERM U1211 and CHU Bordeaux, Service de Génétique Médicale, Bordeaux, France.
  • Moutton S; Univ. Bordeaux, Laboratoire MRGM, INSERM U1211 and CHU Bordeaux, Service de Génétique Médicale, Bordeaux, France.
  • Roncarolo F; Institut de recherche en santé publique de l'Université de Montréal, Montreal, Quebec, Canada.
  • Bernard G; Department of Medical Genetics, Montreal Children's Hospital, McGill University Health Centre, Montreal, Quebec, Canada; Department of Neurology and Neurosurgery, McGill University, Montreal, Quebec, Canada; Department of Pediatrics, McGill University, Montreal, Quebec, Canada; Child Health and Huma
Pediatr Neurol ; 84: 21-26, 2018 07.
Article em En | MEDLINE | ID: mdl-29859719

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Leucoencefalopatias Tipo de estudo: Clinical_trials / Observational_studies / Prognostic_studies Aspecto: Patient_preference Limite: Adolescent / Adult / Child / Child, preschool / Female / Humans / Infant / Male Idioma: En Revista: Pediatr Neurol Assunto da revista: NEUROLOGIA / PEDIATRIA Ano de publicação: 2018 Tipo de documento: Article País de publicação: Estados Unidos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Leucoencefalopatias Tipo de estudo: Clinical_trials / Observational_studies / Prognostic_studies Aspecto: Patient_preference Limite: Adolescent / Adult / Child / Child, preschool / Female / Humans / Infant / Male Idioma: En Revista: Pediatr Neurol Assunto da revista: NEUROLOGIA / PEDIATRIA Ano de publicação: 2018 Tipo de documento: Article País de publicação: Estados Unidos