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Developing comparative effectiveness studies for a rare, understudied pediatric disease: lessons learned from the CARRA juvenile localized scleroderma consensus treatment plan pilot study.
Li, Suzanne C; Fuhlbrigge, Robert C; Laxer, Ronald M; Pope, Elena; Ibarra, Maria F; Stewart, Katie; Mason, Thomas; Becker, Mara L; Hong, Sandy; Dedeoglu, Fatma; Torok, Kathryn S; Rabinovich, C Egla; Ferguson, Polly J; Punaro, Marilynn; Feldman, Brian M; Andrews, Tracy; Higgins, Gloria C.
Afiliação
  • Li SC; Joseph M. Sanzari Children's Hospital, Hackensack University Medical Center, Imus PC337, 30 Prospect Ave, Hackensack, NJ, 07061, USA. suzanne.li@hackensackmeridian.org.
  • Fuhlbrigge RC; Hackensack Meridian School of Medicine at Seton Hall University, Clifton, NJ, USA. suzanne.li@hackensackmeridian.org.
  • Laxer RM; University of Colorado- Denver and Children's Hospital Colorado, Denver, CO, USA.
  • Pope E; University of Toronto and The Hospital for Sick Children, Toronto, Canada.
  • Ibarra MF; University of Toronto and The Hospital for Sick Children, Toronto, Canada.
  • Stewart K; Children's Mercy, Kansas City, MO, USA.
  • Mason T; Texas Scottish Rite Hospital and UT Southwestern, Dallas, TX, USA.
  • Becker ML; Mayo Clinic, Rochester, MN, USA.
  • Hong S; Duke University School of Medicine, Durham, NC, USA.
  • Dedeoglu F; University of Iowa Stead Family Children's Hospital, Iowa City, IA, USA.
  • Torok KS; Boston Children's Hospital, Boston, MA, USA.
  • Rabinovich CE; UPMC Children's Hospital of Pittsburgh, Pittsburgh, PA, USA.
  • Ferguson PJ; Duke University School of Medicine, Durham, NC, USA.
  • Punaro M; University of Iowa Carver College of Medicine, Iowa City, IA, USA.
  • Feldman BM; Texas Scottish Rite Hospital and UT Southwestern, Dallas, TX, USA.
  • Andrews T; University of Toronto and The Hospital for Sick Children, Toronto, Canada.
  • Higgins GC; Rutgers School of Public Health, Rutgers University, Newark, NJ, USA.
Pediatr Rheumatol Online J ; 17(1): 43, 2019 Jul 15.
Article em En | MEDLINE | ID: mdl-31307476
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Esclerodermia Localizada / Escleroderma Sistêmico / Metotrexato / Antirreumáticos / Pesquisa Comparativa da Efetividade / Glucocorticoides Tipo de estudo: Clinical_trials / Guideline / Observational_studies / Prognostic_studies / Risk_factors_studies Limite: Adolescent / Adult / Child / Female / Humans / Male Idioma: En Revista: Pediatr Rheumatol Online J Ano de publicação: 2019 Tipo de documento: Article País de afiliação: Estados Unidos País de publicação: Reino Unido
Texto completo
Adicionar na Minha BVS
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Esclerodermia Localizada / Escleroderma Sistêmico / Metotrexato / Antirreumáticos / Pesquisa Comparativa da Efetividade / Glucocorticoides Tipo de estudo: Clinical_trials / Guideline / Observational_studies / Prognostic_studies / Risk_factors_studies Limite: Adolescent / Adult / Child / Female / Humans / Male Idioma: En Revista: Pediatr Rheumatol Online J Ano de publicação: 2019 Tipo de documento: Article País de afiliação: Estados Unidos País de publicação: Reino Unido