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Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.
Hudson, Maui; Garrison, Nanibaa' A; Sterling, Rogena; Caron, Nadine R; Fox, Keolu; Yracheta, Joseph; Anderson, Jane; Wilcox, Phil; Arbour, Laura; Brown, Alex; Taualii, Maile; Kukutai, Tahu; Haring, Rodney; Te Aika, Ben; Baynam, Gareth S; Dearden, Peter K; Chagné, David; Malhi, Ripan S; Garba, Ibrahim; Tiffin, Nicki; Bolnick, Deborah; Stott, Matthew; Rolleston, Anna K; Ballantyne, Leah L; Lovett, Ray; David-Chavez, Dominique; Martinez, Andrew; Sporle, Andrew; Walter, Maggie; Reading, Jeff; Carroll, Stephanie Russo.
Afiliação
  • Hudson M; Faculty of Maori and Indigenous Studies, University of Waikato, Hamilton, New Zealand. maui.hudson@waikato.ac.nz.
  • Garrison NA; Genomics Aotearoa, University of Otago, Dunedin, New Zealand. maui.hudson@waikato.ac.nz.
  • Sterling R; Institute for Society and Genetics, University of California, Los Angeles, CA, USA.
  • Caron NR; Faculty of Law, University of Waikato, Hamilton, New Zealand.
  • Fox K; Centre for Excellence in Indigenous Health, University of British Columbia, Vancouver, BC, Canada.
  • Yracheta J; British Columbia Cancer, Michael Smith Genome Sciences Centre, Vancouver, BC, Canada.
  • Anderson J; Department of Global Health, University of California, San Diego, CA, USA.
  • Wilcox P; Johns-Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
  • Arbour L; Native BioData Consortium, Eagle Butte, SD, USA.
  • Brown A; Department of Anthropology, New York University, New York, NY, USA.
  • Taualii M; Genomics Aotearoa, University of Otago, Dunedin, New Zealand.
  • Kukutai T; Department of Mathematics and Statistics, University of Otago, Dunedin, New Zealand.
  • Haring R; Department of Medical Genetics, University of British Columbia, Vancouver, BC, Canada.
  • Te Aika B; Aboriginal Health Equity, South Australian Medical and Health Research Institute, Adelaide, SA, Australia.
  • Baynam GS; University of Adelaide, Adelaide, SA, Australia.
  • Dearden PK; Clinical Transformation, Hawaii Permanente Medical Group, Honolulu, HI, USA.
  • Chagné D; National Institute of Demographic and Economic Analysis, University of Waikato, Hamilton, New Zealand.
  • Malhi RS; Center for Indigenous Cancer Research, Roswell Park Comprehensive Cancer Centre, Buffalo, NY, USA.
  • Garba I; Genomics Aotearoa, University of Otago, Dunedin, New Zealand.
  • Tiffin N; Faculty of Medicine and Health Sciences, University of Western Australia, Perth, WA, Australia.
  • Bolnick D; Genomics Aotearoa, University of Otago, Dunedin, New Zealand.
  • Stott M; Biochemistry Department, University of Otago, Dunedin, New Zealand.
  • Rolleston AK; The New Zealand Institute for Plant and Food Research Limited (Plant & Food Research), Palmerston North, New Zealand.
  • Ballantyne LL; Genomics Aotearoa, Palmerston North, New Zealand.
  • Lovett R; Department of Anthropology, Carl R. Woese Institute for Genomic Biology, University of Illinois, Urbana, IL, USA.
  • David-Chavez D; Native Nations Institute at the Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, USA.
  • Martinez A; Computational Biology Division, University of Cape Town, Cape Town, South Africa.
  • Sporle A; Wellcome Centre for Infectious Disease Research in Africa, University of Cape Town, Cape Town, South Africa.
  • Walter M; Centre for Infectious Disease Epidemiology Research, School of Public Health and Family Medicine, University of Cape Town, Cape Town, South Africa.
  • Reading J; Department of Anthropology, University of Connecticut, Storrs, CT, USA.
  • Carroll SR; Institute for Systems Genomics, University of Connecticut, Storrs, CT, USA.
Nat Rev Genet ; 21(6): 377-384, 2020 06.
Article em En | MEDLINE | ID: mdl-32251390
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Genômica / Privacidade Genética / Disseminação de Informação / Povos Indígenas Limite: Humans Idioma: En Revista: Nat Rev Genet Assunto da revista: GENETICA Ano de publicação: 2020 Tipo de documento: Article País de afiliação: Nova Zelândia País de publicação: Reino Unido
Texto completo
Adicionar na Minha BVS
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Genômica / Privacidade Genética / Disseminação de Informação / Povos Indígenas Limite: Humans Idioma: En Revista: Nat Rev Genet Assunto da revista: GENETICA Ano de publicação: 2020 Tipo de documento: Article País de afiliação: Nova Zelândia País de publicação: Reino Unido