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Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
Middleton, Anna; Milne, Richard; Almarri, Mohamed A; Anwer, Shamim; Atutornu, Jerome; Baranova, Elena E; Bevan, Paul; Cerezo, Maria; Cong, Yali; Critchley, Christine; Fernow, Josepine; Goodhand, Peter; Hasan, Qurratulain; Hibino, Aiko; Houeland, Gry; Howard, Heidi C; Hussain, S Zakir; Malmgren, Charlotta Ingvoldstad; Izhevskaya, Vera L; Jedrzejak, Aleksandra; Jinhong, Cao; Kimura, Megumi; Kleiderman, Erika; Leach, Brandi; Liu, Keying; Mascalzoni, Deborah; Mendes, Álvaro; Minari, Jusaku; Wang, Nan; Nicol, Dianne; Niemiec, Emilia; Patch, Christine; Pollard, Jack; Prainsack, Barbara; Rivière, Marie; Robarts, Lauren; Roberts, Jonathan; Romano, Virginia; Sheerah, Haytham A; Smith, James; Soulier, Alexandra; Steed, Claire; Stefànsdóttir, Vigdís; Tandre, Cornelia; Thorogood, Adrian; Voigt, Torsten H; West, Anne V; Yoshizawa, Go; Morley, Katherine I.
Afiliação
  • Middleton A; Society and Ethics Research Group, Connecting Science, Wellcome Genome Campus, Cambridge CB10 1SA, UK; Faculty of Education, University of Cambridge, Cambridge CB2 8PQ, UK. Electronic address: am33@sanger.ac.uk.
  • Milne R; Society and Ethics Research Group, Connecting Science, Wellcome Genome Campus, Cambridge CB10 1SA, UK; Institute of Public Health, University of Cambridge, Cambridge CB2 0SR, UK.
  • Almarri MA; Wellcome Sanger Institute, Cambridge CB10 1SA, UK.
  • Anwer S; Keynote IAS, New Delhi 110060, India.
  • Atutornu J; Society and Ethics Research Group, Connecting Science, Wellcome Genome Campus, Cambridge CB10 1SA, UK.
  • Baranova EE; Russian Medical Academy of Continuous Professional Education, Moscow 119049, Russia.
  • Bevan P; Wellcome Sanger Institute, Cambridge CB10 1SA, UK.
  • Cerezo M; EMBL-EBI, Wellcome Genome Campus, Cambridge CB10 1SA, UK.
  • Cong Y; Medical Ethics Program, Peking University Health Science Center, Beijing 100191, China.
  • Critchley C; Department of Psychological Sciences, Swinburne University of Technology, Melbourne, VIC 3122, Australia; Centre for Law and Genetics, University of Tasmania, Hobart, TAS 7001, Australia.
  • Fernow J; Centre for Ethics & Bioethics, Uppsala University, Uppsala SE-751 22, Sweden.
  • Goodhand P; Ontario Institute for Cancer Research, MaRS Centre, Toronto, ON M5G 0A3, Canada.
  • Hasan Q; Department of Genetics & Molecular Medicine, Kamineni Hospitals, Hyderabad 500 068, India; SAAZ Genetics, Hyderabad 500033, India.
  • Hibino A; Faculty of Humanities and Social Sciences, Hirosaki University, Hirosaki 036-8560, Japan.
  • Houeland G; Centre for Ethics & Bioethics, Uppsala University, Uppsala SE-751 22, Sweden.
  • Howard HC; Centre for Ethics & Bioethics, Uppsala University, Uppsala SE-751 22, Sweden; Medical Ethics, Lund Universitet, Lund SE-221 00, Sweden.
  • Hussain SZ; SAAZ Genetics, Hyderabad 500033, India.
  • Malmgren CI; Department of Public Health and Caring Science, Uppsala University, Uppsala 751 22, Sweden; Department of Molecular Medicine and Surgery, Karolinska Institutet, Solna 171 76, Sweden.
  • Izhevskaya VL; Research Centre for Medical Genetics, Moscow 115522, Russia.
  • Jedrzejak A; Independent Scholar, Warsaw, Poland.
  • Jinhong C; Department of Epidemiology and Biostatistics, School of Health Sciences, Wuhan University, Wuhan 430071, China.
  • Kimura M; Institute of Innovation Research, Hitotsubashi University, Tokyo 186-8603, Japan.
  • Kleiderman E; Centre of Genomics and Policy, McGill University, Montreal, QC H3A 0G1, Canada.
  • Leach B; RAND Europe, Cambridge CB4 1YG, UK.
  • Liu K; Public Health, Department of Social Medicine, Osaka University Graduate School of Medicine, Osaka 565-0871, Japan; School of Public Health, Peking University Health Science Center, Beijing 100191, China.
  • Mascalzoni D; EURAC, Institute of Biomedicine, Bolzano 39100, Italy; Centre for Ethics & Bioethics, Uppsala University, Uppsala SE-751 22, Sweden.
  • Mendes Á; UnIGENe and CGPP (Centre for Predictive and Preventive Genetics), IBMC (Institute for Molecular and Cell Biology), i3S (Instituto de Investigação e Inovação em Saúde), Universidade do Porto, Porto 4200-135, Portugal.
  • Minari J; Uehiro Research Division for iPS Cell Ethics, Center for iPS Cell Research and Application (CiRA), Kyoto University, Kyoto 606-8507, Japan.
  • Wang N; Medical Ethics Program, Peking University Health Science Center, Beijing 100191, China.
  • Nicol D; Centre for Law and Genetics, University of Tasmania, Hobart, TAS 7001, Australia.
  • Niemiec E; Centre for Ethics & Bioethics, Uppsala University, Uppsala SE-751 22, Sweden.
  • Patch C; Society and Ethics Research Group, Connecting Science, Wellcome Genome Campus, Cambridge CB10 1SA, UK; Genomics England, Queen Mary University of London, London EC1M 6BQ, UK.
  • Pollard J; RAND Europe, Cambridge CB4 1YG, UK.
  • Prainsack B; Department of Political Science, University of Vienna, Vienna 1010, Austria; Department of Global Health & Social Medicine, King's College London, London WC2R 2LS, UK.
  • Rivière M; Diltec, Sorbonne Nouvelle, Paris 75005, France.
  • Robarts L; Society and Ethics Research Group, Connecting Science, Wellcome Genome Campus, Cambridge CB10 1SA, UK.
  • Roberts J; Society and Ethics Research Group, Connecting Science, Wellcome Genome Campus, Cambridge CB10 1SA, UK.
  • Romano V; Centre for Ethics & Bioethics, Uppsala University, Uppsala SE-751 22, Sweden; EURAC, Institute of Biomedicine, Bolzano 39100, Italy.
  • Sheerah HA; Public Health, Department of Social Medicine, Osaka University Graduate School of Medicine, Osaka 565-0871, Japan.
  • Smith J; Wellcome Sanger Institute, Cambridge CB10 1SA, UK.
  • Soulier A; Centre for Ethics & Bioethics, Uppsala University, Uppsala SE-751 22, Sweden.
  • Steed C; Wellcome Sanger Institute, Cambridge CB10 1SA, UK.
  • Stefànsdóttir V; Landspitali, the National University Hospital of Iceland, Reykjavík 101, Iceland.
  • Tandre C; Centre for Ethics & Bioethics, Uppsala University, Uppsala SE-751 22, Sweden.
  • Thorogood A; Centre of Genomics and Policy, McGill University, Montreal, QC H3A 0G1, Canada.
  • Voigt TH; Institute of Sociology, RWTH Aachen University, Aachen 52062, Germany.
  • West AV; Indiana University Maurer School of Law, Bloomington, IN 47405, USA.
  • Yoshizawa G; Work Research Institute (AFI), Oslo Metropolitan University, Oslo 0130, Norway.
  • Morley KI; RAND Europe, Cambridge CB4 1YG, UK; Institute of Psychiatry, Psychology & Neuroscience, King's College London, London SE5 8AF, UK; Centre for Epidemiology and Biostatistics, Melbourne School of Global and Population Health, The University of Melbourne, Melbourne, VIC 3010, Australia.
Am J Hum Genet ; 107(4): 743-752, 2020 10 01.
Article em En | MEDLINE | ID: mdl-32946764
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Genoma Humano / Análise de Sequência de DNA / Genômica / Disseminação de Informação / Confiança Tipo de estudo: Qualitative_research Limite: Adult / Female / Humans / Male País/Região como assunto: Asia / Europa / Oceania Idioma: En Revista: Am J Hum Genet Ano de publicação: 2020 Tipo de documento: Article País de publicação: Estados Unidos
Texto completo
Adicionar na Minha BVS
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Genoma Humano / Análise de Sequência de DNA / Genômica / Disseminação de Informação / Confiança Tipo de estudo: Qualitative_research Limite: Adult / Female / Humans / Male País/Região como assunto: Asia / Europa / Oceania Idioma: En Revista: Am J Hum Genet Ano de publicação: 2020 Tipo de documento: Article País de publicação: Estados Unidos