The Development of a New Questionnaire to Measure the Burden of Immunoglobulin Treatment in Patients with Primary Immunodeficiencies: The IgBoT-35.

Jones, Georgina L; Williams, Kate; Edmondson-Jones, Mark; Prevot, Johan; Drabwell, Jose; Solis, Leire; Shrimpton, Anna; Mahlaoui, Nizar

Jones, Georgina L; Williams, Kate; Edmondson-Jones, Mark; Prevot, Johan; Drabwell, Jose; Solis, Leire; Shrimpton, Anna; Mahlaoui, Nizar.

Afiliação

Jones GL; Department of Psychology, School of Social Sciences, Leeds Beckett University, Leeds, UK.
Williams K; PAREXEL International, London, UK.
Edmondson-Jones M; PAREXEL International, London, UK.
Prevot J; International Patient Organisation for Primary Immunodeficiencies, Downderry, Cornwall PL11 3LY, UK.
Drabwell J; International Patient Organisation for Primary Immunodeficiencies, Downderry, Cornwall PL11 3LY, UK.
Solis L; International Patient Organisation for Primary Immunodeficiencies, Downderry, Cornwall PL11 3LY, UK.
Shrimpton A; Clinical Immunology and Allergy Unit, Northern General Hospital, Sheffield Teaching Hospitals and NHS Foundation Trust, Sheffield, UK.
Mahlaoui N; French National Reference Center for Primary Immune Deficiencies (CEREDIH), Necker Enfants Malades University Hospital, Assistance Publique-Hôpitaux De Paris, Paris, France.

Patient Prefer Adherence ; 14: 1567-1584, 2020.

Article em En | MEDLINE | ID: mdl-32982185

Palavras-chave

intravenous immunoglobulins; patient preference; primary immunodeficiency; quality of life; subcutaneous immunoglobulins; treatment burden

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Tipo de estudo: Prognostic_studies / Qualitative_research Aspecto: Patient_preference Idioma: En Revista: Patient Prefer Adherence Ano de publicação: 2020 Tipo de documento: Article País de afiliação: Reino Unido País de publicação: Nova Zelândia

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