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Parents' Perspectives and Societal Acceptance of Implementation of Newborn Screening for SCID in the Netherlands.
Blom, Maartje; Bredius, Robbert G M; Jansen, Marleen E; Weijman, Gert; Kemper, Evelien A; Vermont, Clementien L; Hollink, Iris H I M; Dik, Willem A; van Montfrans, Joris M; van Gijn, Mariëlle E; Henriet, Stefanie S; van Aerde, Koen J; Koole, Wouter; Lankester, Arjan C; Dekkers, Eugènie H B M; Schielen, Peter C J I; de Vries, Martine C; Henneman, Lidewij; van der Burg, Mirjam.
Afiliação
  • Blom M; Department of Pediatrics, Laboratory for Pediatric Immunology, Willem-Alexander Children's Hospital, Leiden University Medical Center, Albinusdreef 2, 2333 ZA, Leiden, The Netherlands.
  • Bredius RGM; Centre for Health Protection, National Institute for Public Health and the Environment (RIVM), Bilthoven, The Netherlands.
  • Jansen ME; Department of Pediatrics, Willem-Alexander Children's Hospital, Leiden University Medical Center, Leiden, The Netherlands.
  • Weijman G; Centre for Health Protection, National Institute for Public Health and the Environment (RIVM), Bilthoven, The Netherlands.
  • Kemper EA; Department of Vaccine Supply and Prevention Programmes, National Institute for Public Health and the Environment (RIVM), Bilthoven, The Netherlands.
  • Vermont CL; Department of Clinical Chemistry, IJsselland Hospital, Capelle aan den IJssel, The Netherlands.
  • Hollink IHIM; Department of Pediatric Immunology and Infectious Diseases, Sophia Children's Hospital, Erasmus MC, University Medical Center, Rotterdam, The Netherlands.
  • Dik WA; Department of Clinical Genetics, Erasmus MC, University Medical Center, Rotterdam, The Netherlands.
  • van Montfrans JM; Department of Immunology, Laboratory Medical Immunology, Erasmus MC, University Medical Center, Rotterdam, The Netherlands.
  • van Gijn ME; Department of Internal Medicine, Section Clinical Immunology, Erasmus MC, University Medical Center, Rotterdam, The Netherlands.
  • Henriet SS; Department of Pediatric Immunology and Infectious Diseases, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, The Netherlands.
  • van Aerde KJ; Department of Genetics, University Medical Centre Groningen, Groningen, The Netherlands.
  • Koole W; Department of Pediatric Immunology and Infectious Diseases, Amalia Children's Hospital, Radboud University Medical Center, Nijmegen, The Netherlands.
  • Lankester AC; Department of Pediatric Immunology and Infectious Diseases, Amalia Children's Hospital, Radboud University Medical Center, Nijmegen, The Netherlands.
  • Dekkers EHBM; Department of Human Genetics, Radboud University Medical Center, Nijmegen, The Netherlands.
  • Schielen PCJI; Department of Pediatrics, Willem-Alexander Children's Hospital, Leiden University Medical Center, Leiden, The Netherlands.
  • de Vries MC; Centre for Population Screening, National Institute for Public Health and the Environment (RIVM), Bilthoven, The Netherlands.
  • Henneman L; Centre for Health Protection, National Institute for Public Health and the Environment (RIVM), Bilthoven, The Netherlands.
  • van der Burg M; Department of Medical Ethics and Health Law, Leiden University Medical Center, Leiden, The Netherlands.
J Clin Immunol ; 41(1): 99-108, 2021 01.
Article em En | MEDLINE | ID: mdl-33070266
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Aceitação pelo Paciente de Cuidados de Saúde / Triagem Neonatal / Imunodeficiência Combinada Severa / Implementação de Plano de Saúde Tipo de estudo: Diagnostic_studies / Etiology_studies / Qualitative_research / Screening_studies / Sysrev_observational_studies Aspecto: Implementation_research Limite: Humans / Newborn País/Região como assunto: Europa Idioma: En Revista: J Clin Immunol Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Holanda País de publicação: Holanda
Texto completo
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Aceitação pelo Paciente de Cuidados de Saúde / Triagem Neonatal / Imunodeficiência Combinada Severa / Implementação de Plano de Saúde Tipo de estudo: Diagnostic_studies / Etiology_studies / Qualitative_research / Screening_studies / Sysrev_observational_studies Aspecto: Implementation_research Limite: Humans / Newborn País/Região como assunto: Europa Idioma: En Revista: J Clin Immunol Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Holanda País de publicação: Holanda