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Relational, Emotional, and Pragmatic Attributes of Ethics Consultations at a Children's Hospital.
Nathanson, Pamela G; Walter, Jennifer K; McKlindon, Donna D; Feudtner, Chris.
Afiliação
  • Nathanson PG; Department of Medical Ethics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; and.
  • Walter JK; Department of Medical Ethics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; and.
  • McKlindon DD; Department of Pediatrics, Medical Ethics and Health Policy, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania.
  • Feudtner C; Department of Medical Ethics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; and.
Pediatrics ; 147(4)2021 04.
Article em En | MEDLINE | ID: mdl-33674461
BACKGROUND: Pediatric ethics consultations are important but understudied, with little known about consultations' contextual attributes, which may influence how ethically problematic situations are perceived and addressed. METHODS: We analyzed data regarding 245 pediatric clinical ethics consultations performed between 2013 and 2018 at a large children's hospital. Prespecified data elements included 17 core problematic issues that initiate consultations, 9 ethical considerations identified by the consultation service, and 7 relational, emotional, and pragmatic contextual attributes of the consultation. The main process measure was the cumulative consultation process, ranging from one-on-one discussions with the requestor, to meeting with the clinical team, separate meetings with the patient or family and the clinical team, or combined meeting with the patient or family and the clinical team. RESULTS: The most-prevalent core problematic issues were intensity or limitation of treatment (38.8%) and treatment adherence and refusal (31%). Common pertinent ethical considerations were best interest (79.2%), benefits versus harms of treatment (51%), and autonomy and decision-making (46.5%). A total of 39.2% of consults culminated with a meeting with the clinical team, 9.4% with separate meetings, and 8.2% with a meeting with all parties. Common contextual attributes were discord (43.3%), acknowledged dilemma (33.5%), and articulate disagreement (29.8%). In exploratory analyses, specific contextual attributes were associated with the core problematic issue that initiated the consultation and with how the consultative process culminated. CONCLUSIONS: Pediatric ethics consultations have contextual attributes that in exploratory analyses are associated with specific types of problems and, to a lesser degree, with the cumulative ethics consultation process.
Assuntos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pediatria / Comitês de Ética Clínica / Consultoria Ética / Hospitais Pediátricos Tipo de estudo: Prognostic_studies Aspecto: Ethics Limite: Adolescent / Child / Child, preschool / Female / Humans / Infant / Male / Newborn País/Região como assunto: America do norte Idioma: En Revista: Pediatrics Ano de publicação: 2021 Tipo de documento: Article País de publicação: Estados Unidos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pediatria / Comitês de Ética Clínica / Consultoria Ética / Hospitais Pediátricos Tipo de estudo: Prognostic_studies Aspecto: Ethics Limite: Adolescent / Child / Child, preschool / Female / Humans / Infant / Male / Newborn País/Região como assunto: America do norte Idioma: En Revista: Pediatrics Ano de publicação: 2021 Tipo de documento: Article País de publicação: Estados Unidos