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Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries.
Milne, Richard; Morley, Katherine I; Almarri, Mohamed A; Anwer, Shamim; Atutornu, Jerome; Baranova, Elena E; Bevan, Paul; Cerezo, Maria; Cong, Yali; Costa, Alessia; Critchley, Christine; Fernow, Josepine; Goodhand, Peter; Hasan, Qurratulain; Hibino, Aiko; Houeland, Gry; Howard, Heidi C; Hussain, S Zakir; Malmgren, Charlotta Ingvoldstad; Izhevskaya, Vera L; Jedrzejak, Aleksandra; Jinhong, Cao; Kimura, Megumi; Kleiderman, Erika; Leach, Brandi; Liu, Keying; Mascalzoni, Deborah; Mendes, Álvaro; Minari, Jusaku; Nicol, Dianne; Niemiec, Emilia; Patch, Christine; Pollard, Jack; Prainsack, Barbara; Rivière, Marie; Robarts, Lauren; Roberts, Jonathan; Romano, Virginia; Sheerah, Haytham A; Smith, James; Soulier, Alexandra; Steed, Claire; Stefànsdóttir, Vigdis; Tandre, Cornelia; Thorogood, Adrian; Voigt, Torsten H; Wang, Nan; West, Anne V; Yoshizawa, Go; Middleton, Anna.
Afiliação
  • Milne R; Society and Ethics Research Group, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, CB10 1SA, UK. rm23@sanger.ac.uk.
  • Morley KI; Department of Public Health and Primary Care, University of Cambridge, Cambridge, CB2 0SR, UK. rm23@sanger.ac.uk.
  • Almarri MA; RAND Europe, Cambridge, CB4 1YG, UK.
  • Anwer S; Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, SE5 8AF, UK.
  • Atutornu J; Centre for Epidemiology and Biostatistics, Melbourne School of Global and Population Health, The University of Melbourne, Melbourne, 3010, Australia.
  • Baranova EE; Wellcome Sanger Institute, Cambridge, CB10 1SA, UK.
  • Bevan P; Department of Forensic Science and Criminology, Dubai Police GHQ, Dubai, United Arab Emirates.
  • Cerezo M; Keynote IAS, New Delhi, 110060, India.
  • Cong Y; Society and Ethics Research Group, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, CB10 1SA, UK.
  • Costa A; Russian Medical Academy of Continuous Professional Education, Moscow, 119049, Russia.
  • Critchley C; Wellcome Sanger Institute, Cambridge, CB10 1SA, UK.
  • Fernow J; EMBL-EBI, Wellcome Genome Campus, Cambridge, CB10 1SA, UK.
  • Goodhand P; Medical Ethics Program, Peking University Health Science Center, Beijing, 100191, China.
  • Hasan Q; Society and Ethics Research Group, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, CB10 1SA, UK.
  • Hibino A; Department of Psychological Sciences, Swinburne University of Technology, Melbourne, 3122, Australia.
  • Houeland G; Centre for Law and Genetics, University of Tasmania, Hobart, 7001, Australia.
  • Howard HC; Centre for Research Ethics & Bioethics (CRB), Uppsala University, SE-751 22, Uppsala, Sweden.
  • Hussain SZ; Ontario Institute for Cancer Research, MaRS Centre, Toronto, M5G 0A3, Canada.
  • Malmgren CI; Department of Genetics & Molecular Medicine, Kamineni Hospitals, Hyderabad, 500 068, India.
  • Izhevskaya VL; SAAZ Genetics, Hyderabad, 500033, India.
  • Jedrzejak A; Faculty of Humanities and Social Sciences, Hirosaki University, Hirosaki, 036-8560, Japan.
  • Jinhong C; Centre for Research Ethics & Bioethics (CRB), Uppsala University, SE-751 22, Uppsala, Sweden.
  • Kimura M; Medical Ethics, Lund Universitet, Sölvegatan, 19, Lund, Sweden.
  • Kleiderman E; SAAZ Genetics, Hyderabad, 500033, India.
  • Leach B; Department of Public Health and Caring Scienec, Uppsala University, 751 22, Uppsala, Sweden.
  • Liu K; Department of Molecular Medicine and Surgery, Karolinska Institutet, 171 76, Solna, Sweden.
  • Mascalzoni D; Research Centre for Medical Genetics, Moscow, 115522, Russia.
  • Mendes Á; Independent Scholar, Warsaw, Poland.
  • Minari J; Department of Epidemiology and Biostatistics, School of Health Sciences, Wuhan University, Wuhan, 430071, China.
  • Nicol D; Institute of Innovation Research, Hitotsubashi University, Tokyo, 186-8603, Japan.
  • Niemiec E; Centre of Genomics and Policy, McGill University, Montreal, H3A 0G1, Canada.
  • Patch C; RAND Europe, Cambridge, CB4 1YG, UK.
  • Pollard J; Public Health, Department of Social Medicine, Osaka University Graduate School of Medicine, Osaka, 565-0871, Japan.
  • Prainsack B; School of Public Health, Peking University Health Science Center, Beijing, 100191, China.
  • Rivière M; Centre for Research Ethics & Bioethics (CRB), Uppsala University, SE-751 22, Uppsala, Sweden.
  • Robarts L; EURAC, Institute of Biomedicine, 39100, Bolzano, Italy.
  • Roberts J; UnIGENe and CGPP - Centre for Predictive and Preventive Genetics, IBMC - Institute for Molecular and Cell Biology, i3S - Instituto de Investigação e Inovação em Saúde, Universidade do Porto, 4200-135, Porto, Portugal.
  • Romano V; Uehiro Research Division for iPS Cell Ethics, Center for iPS Cell Research and Application (CiRA), Kyoto University, Kyoto, 606-8507, Japan.
  • Sheerah HA; Centre for Law and Genetics, University of Tasmania, Hobart, 7001, Australia.
  • Smith J; Centre for Research Ethics & Bioethics (CRB), Uppsala University, SE-751 22, Uppsala, Sweden.
  • Soulier A; Society and Ethics Research Group, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, CB10 1SA, UK.
  • Steed C; Genomics England, Queen Mary University of London, London, EC1M 6BQ, UK.
  • Stefànsdóttir V; RAND Europe, Cambridge, CB4 1YG, UK.
  • Tandre C; Department of Political Science, University of Vienna, 1010, Vienna, Austria.
  • Thorogood A; Department of Global Health & Social Medicine, King's College London, London, WC2R 2LS, UK.
  • Voigt TH; DILTEC, Sorbonne Nouvelle, 75005, Paris, France.
  • Wang N; Society and Ethics Research Group, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, CB10 1SA, UK.
  • West AV; Society and Ethics Research Group, Wellcome Connecting Science, Wellcome Genome Campus, Cambridge, CB10 1SA, UK.
  • Yoshizawa G; Centre for Research Ethics & Bioethics (CRB), Uppsala University, SE-751 22, Uppsala, Sweden.
  • Middleton A; EURAC, Institute of Biomedicine, 39100, Bolzano, Italy.
Genome Med ; 13(1): 92, 2021 05 25.
Article em En | MEDLINE | ID: mdl-34034801
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Genômica / Disseminação de Informação / Confiança Limite: Humans Idioma: En Revista: Genome Med Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Reino Unido País de publicação: Reino Unido
Texto completo
Adicionar na Minha BVS
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Genômica / Disseminação de Informação / Confiança Limite: Humans Idioma: En Revista: Genome Med Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Reino Unido País de publicação: Reino Unido