The socioeconomic burden of facioscapulohumeral muscular dystrophy.

Blokhuis, Anna M; Deenen, Johanna C W; Voermans, Nicol C; van Engelen, Baziel G M; Kievit, Wietske; Groothuis, Jan T

Blokhuis, Anna M; Deenen, Johanna C W; Voermans, Nicol C; van Engelen, Baziel G M; Kievit, Wietske; Groothuis, Jan T.

Afiliação

Blokhuis AM; Department of Rehabilitation, Sint Maartenskliniek, Nijmegen, The Netherlands. Anna.Zielman-Blokhuis@radboudumc.nl.
Deenen JCW; Donders Institute for Brain, Cognition and Behaviour, Department of Rehabilitation, Radboud university medical center, Nijmegen, The Netherlands. Anna.Zielman-Blokhuis@radboudumc.nl.
Voermans NC; Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Radboud university medical center, Nijmegen, The Netherlands.
van Engelen BGM; Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Radboud university medical center, Nijmegen, The Netherlands.
Kievit W; Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Radboud university medical center, Nijmegen, The Netherlands.
Groothuis JT; Department for Health Evidence, Radboud Institute for Health Sciences, Radboud university medical center, Nijmegen, The Netherlands.

J Neurol ; 268(12): 4778-4788, 2021 Dec.

Article em En | MEDLINE | ID: mdl-34043041

Assuntos

Distrofia Muscular Facioescapuloumeral; Qualidade de Vida; Adulto; Efeitos Psicossociais da Doença; Estudos Transversais; Humanos; Distrofia Muscular Facioescapuloumeral/epidemiologia; Distrofia Muscular Facioescapuloumeral/terapia; Fatores Socioeconômicos; Inquéritos e Questionários

Palavras-chave

Burden; Cost; Muscle disease; Quality of life

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Qualidade de Vida / Distrofia Muscular Facioescapuloumeral Tipo de estudo: Observational_studies / Prevalence_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies Aspecto: Determinantes_sociais_saude / Patient_preference Limite: Adult / Humans Idioma: En Revista: J Neurol Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Holanda País de publicação: Alemanha

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