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What works when: mapping patient and stakeholder engagement methods along the ten-step continuum framework.
Edwards, Hillary A; Huang, Jennifer; Jansky, Liz; Mullins, C D.
Afiliação
  • Edwards HA; School of Pharmacy, University of Maryland, 220 Arch St. 12th Floor, Baltimore, MD 21201, USA.
  • Huang J; Westat, 1600 Research Blvd, Rockville, MD 20850, USA.
  • Jansky L; Westat, 1600 Research Blvd, Rockville, MD 20850, USA.
  • Mullins CD; School of Pharmacy, University of Maryland, 220 Arch St. 12 Floor, Baltimore, MD 21201, USA.
J Comp Eff Res ; 10(12): 999-1017, 2021 08.
Article em En | MEDLINE | ID: mdl-34082571
Aim: This study provides a recommended 'patient engagement translation table' that identifies evidence-based methods for meaningful patient engagement along a ten-step framework for continuous engagement. Materials & methods: We used a mixed methods research design to collect data on preferred engagement methods, including an environmental scan of available literature, interviews and focus groups with patient-centered outcomes research stakeholders to match methods with research steps and a modified Delphi process with subject matter experts to create the final translation table. Results: Evidence-based engagement methods included community partnerships, focus groups, interviews, meetings, sharing print materials, social media, storytelling, surveys and including patients as research team members. Conclusion: Our recommended patient engagement translation table is designed to assist investigators in determining appropriate engagement methods for meaningful interactions with stakeholders.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Avaliação de Resultados da Assistência ao Paciente / Participação dos Interessados Tipo de estudo: Qualitative_research Aspecto: Patient_preference Limite: Humans Idioma: En Revista: J Comp Eff Res Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Estados Unidos País de publicação: Reino Unido

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Avaliação de Resultados da Assistência ao Paciente / Participação dos Interessados Tipo de estudo: Qualitative_research Aspecto: Patient_preference Limite: Humans Idioma: En Revista: J Comp Eff Res Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Estados Unidos País de publicação: Reino Unido