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Expanding sexual and gender minority research in movement disorders: More than awareness and acceptance.
Lin, Chi-Ying Roy; Rosendale, Nicole; Deeb, Wissam.
Afiliação
  • Lin CR; Department of Neurology, Columbia University Medical Center, New York, NY, USA.
  • Rosendale N; Department of Neurology, University of California San Francisco, CA, USA.
  • Deeb W; Department of Neurology, University of Massachusetts Memorial Medical Center, Worcester, MA, USA. Electronic address: Wissam.Deeb2@umassmemorial.org.
Parkinsonism Relat Disord ; 87: 162-165, 2021 06.
Article em En | MEDLINE | ID: mdl-34088617
Culturally competent and inclusive care is slowly becoming the standard throughout healthcare institutions. Awareness, acceptance, and inclusion of the sexual and gender minority (SGM) groups in medicine and neurology are progressing. Research in SGM health, although increasing, remains remarkably scant in parkinsonism and other movement disorders, a community whose patient population is on the rise. Most SGM health research in movement disorders only focuses on the symptoms associated with infection by the human immunodeficiency virus and the acquired immunodeficiency syndrome. Multiple clinical and epidemiological research questions remain unaddressed when considering the intersection of movement disorders and SGM health. In this article, we highlight gaps in the care of SGM individuals with movement disorders. First, the prevalence and phenomenology of movement disorders could be different, considering the different rates of risk factors and the use of gender-affirming hormones. Also, the effect of creating a safe environment in healthcare institutions to disclose sexual orientation and gender identity on seeking care, access to resources, and quality of services remains unknown. Moreover, many individuals with movement disorders would require services from multidisciplinary teams or long-term care facilities, which might not consider the needs of SGM patients in their models of care. Last, the effect of social isolation and self-perception (or misperceptions) in the SGM populations on the non-motor and motor symptoms of movement disorders and the treatment plans is not understood.
Assuntos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Seleção de Pacientes / Pesquisa Biomédica / Minorias Sexuais e de Gênero / Transtornos dos Movimentos Tipo de estudo: Prognostic_studies / Qualitative_research / Risk_factors_studies Aspecto: Determinantes_sociais_saude Limite: Humans Idioma: En Revista: Parkinsonism Relat Disord Assunto da revista: NEUROLOGIA Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Estados Unidos País de publicação: Reino Unido

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Seleção de Pacientes / Pesquisa Biomédica / Minorias Sexuais e de Gênero / Transtornos dos Movimentos Tipo de estudo: Prognostic_studies / Qualitative_research / Risk_factors_studies Aspecto: Determinantes_sociais_saude Limite: Humans Idioma: En Revista: Parkinsonism Relat Disord Assunto da revista: NEUROLOGIA Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Estados Unidos País de publicação: Reino Unido