The glue that keeps everybody together: Peer support in mothers of young children with special health care needs.

ABSTRACT

BACKGROUND: The first years following diagnosis may be particularly challenging for parents and peer support from other parents of children with special health care needs may buffer their stress. METHODS: This qualitative interview study sought to explore the impact of early access to parental peer support and whether it leads to positive adaptation and improved family well-being. RESULTS: Five mothers of young children with special health care needs from peer support organizations in two northern US states participated in interviews by telephone or Zoom. Themes of interest included professional scrutiny, going through the motions, someone who understands, learning and sharing, and one size does not fit all. Although most participants attributed positive changes in their emotional well-being to the support they received, they were wary of extending the impact of peer support to their child and family. CONCLUSIONS: Implications for practice include embedding peer support programmes in neonatal care units and children's hospitals, as well as the addition of mindfulness practices to facilitate parental adaptation to disability and promote family well-being.