Patient journey experiences may contribute to improve healthcare for patients with rare endocrine diseases.

Webb, Susan M; Kristensen, Jette; Nordenström, Anna; Vitali, Diana; Amodru, Vincent; Wiehe, Lenja Katharina; Bolz-Johnson, Matt

Webb, Susan M; Kristensen, Jette; Nordenström, Anna; Vitali, Diana; Amodru, Vincent; Wiehe, Lenja Katharina; Bolz-Johnson, Matt.

Afiliação

Webb SM; IIB-Sant Pau, Research Center for Pituitary Diseases, Barcelona, Spain.
Kristensen J; Centro de Investigación Biomédica en Red de Enfermedades Raras (CIBERER, Unidad 747), ISCIII, Spain.
Nordenström A; Department of Endocrinology, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain.
Vitali D; Department of Medicine, Universitat Autònoma de Barcelona (UAB), Barcelona, Spain.
Amodru V; ePAG & Chair of Danish Addison Patient Association, Aarhus, Denmark.
Wiehe LK; Pediatric Endocrinology, Astrid Lindgren Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.
Bolz-Johnson M; ePAG & Chair SOD ITALIA - Italian Patients Organization for Septo Optic Dysplasia and other Neuroendocrine Conditions, Rome, Italy.

Endocr Connect ; 11(12)2022 Dec 01.

Article em En | MEDLINE | ID: mdl-36228311

Palavras-chave

Addison's disease; acromegaly; congenital adrenal hyperplasia; health perception; patient journey

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: Endocr Connect Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Espanha País de publicação: Reino Unido

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