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Improvements in Walking Distance during Nusinersen Treatment - A Prospective 3-year SMArtCARE Registry Study.
Pechmann, Astrid; Behrens, Max; Dörnbrack, Katharina; Tassoni, Adrian; Wenzel, Franziska; Stein, Sabine; Vogt, Sibylle; Zöller, Daniela; Bernert, Günther; Hagenacker, Tim; Schara-Schmidt, Ulrike; Walter, Maggie C; Steinbach, Meike; Blaschek, Astrid; Baumann, Matthias; Baumgartner, Manuela; Becker, Benedikt; Flotats-Bastardas, Marina; Friese, Johannes; Günther, Rene; Hahn, Andreas; Küpper, Hanna; Johannsen, Jessika; Kamm, Christoph; Koch, Jan Christoph; Köhler, Cornelia; Kölbel, Heike; Kolzter, Kirsten; von Moers, Arpad; Naegel, Steffen; Neuwirth, Christoph; Petri, Susanne; Rödiger, Annekathrin; Schimmel, Mareike; Schrank, Bertold; Schreiber, Gudrun; Smitka, Martin; Stadler, Christian; Steiner, Elisabeth; Stögmann, Eva; Trollmann, Regina; Türk, Matthias; Weiler, Markus; Stoltenburg, Corinna; Willichowsky, Ekkehard; Zeller, Daniel; Ziegler, Andreas; Lochmüller, Hanns; Kirschner, Janbernd.
Afiliação
  • Pechmann A; Department of Neuropediatrics and Muscle Disorders, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Behrens M; Institute of Medical Biometry and Statistics, Faculty of Medicine and Medical Center - University of Freiburg, Freiburg, Germany.
  • Dörnbrack K; Clinical Trials Unit, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Tassoni A; Clinical Trials Unit, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Wenzel F; Clinical Trials Unit, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Stein S; Department of Neuropediatrics and Muscle Disorders, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Vogt S; Department of Neuropediatrics and Muscle Disorders, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Zöller D; Institute of Medical Biometry and Statistics, Faculty of Medicine and Medical Center - University of Freiburg, Freiburg, Germany.
  • Bernert G; Clinic Favoriten, Department of Pediatrics, Vienna, Austria.
  • Hagenacker T; Department of Neurology, and Center for Translational Neuro- and Behavioral Sciences (C-TNBS), University Medicine Essen, Essen, Germany.
  • Schara-Schmidt U; Department of Neuropediatrics and Neuromuscular Centre for children and Adolescents, Center for Translational Neuro- and Behavioral Sciences, University of Duisburg-Essen, Essen, Germany.
  • Walter MC; Friedrich-Baur-Institute, Department of Neurology, Ludwig-Maximilians-University of Munich, Munich, Germany.
  • Steinbach M; Department of Neurology, Christian-Albrechts-University of Kiel, Kiel, Germany.
  • Blaschek A; Department of Pediatric Neurology and Developmental Medicine and LMU Center for Children with Medical Complexity, Dr. von Hauner Children's Hospital, LMU Hospital, Ludwig-Maximilians-University, Munich, Germany.
  • Baumann M; Department of Pediatrics I, Division of Pediatric Neurology, Medical University of Innsbruck, Innsbruck, Austria.
  • Baumgartner M; Ordensklinikum Linz, Barmherzige Schwestern, Department of Pediatrics and Adulescent Medicine, Linz, Austria.
  • Becker B; Department of Neurology, School of Medicine, Technical University of Munich, Munich, Germany.
  • Flotats-Bastardas M; Department of Pediatric Neurology, Saarland University Hospital, Homburg, Germany.
  • Friese J; Department of Neuropediatrics, University Hospital Bonn, Bonn, Germany.
  • Günther R; Department of Neurology, University Hospital Carl Gustav Carus, Dresden, Germany.
  • Hahn A; Department of Child Neurology, Justus-Liebig University, Giessen, Germany.
  • Küpper H; Department of Paediatric Neurology, University Children's Hospital, Tübingen, Germany.
  • Johannsen J; Department of Pediatrics, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
  • Kamm C; Department of Neurology, University of Rostock, Rostock, Germany.
  • Koch JC; Department of Neurology, University Medical Center Göttingen, Göttingen, Germany.
  • Köhler C; Ruhr-Universität Bochum, St. Josef-Hospital, Abteilung für Neuropädiatrie und Sozialpädiatrie, Universitätsklinik für Kinder- und Jugendmedizin, Bochum, Germany.
  • Kölbel H; Department of Neuropediatrics and Neuromuscular Centre for children and Adolescents, Center for Translational Neuro- and Behavioral Sciences, University of Duisburg-Essen, Essen, Germany.
  • Kolzter K; Children's Hospital Amsterdamer Straße, Kliniken der Stadt Köln, Cologne, Germany.
  • von Moers A; Department of Pediatrics und Neuropediatrics, DRK Kliniken Berlin, Berlin, Germany.
  • Naegel S; Department of Neurology, University Hospital Halle, Martin-Luther-University Halle-Wittenberg, Halle, Germany.
  • Neuwirth C; Neuromuscular Diseases Unit / ALS Clinic, Cantonal Hospital St. Gallen, St. Gallen, Switzerland.
  • Petri S; Department of Neurology, Hannover Medical School, Hannover, Germany.
  • Rödiger A; Department of Neurology, University Hospital Jena, Jena, Germany.
  • Schimmel M; Pediatrics and Adolescent Medicine, Pediatric Neurology, University Medical Center Augsburg, Augsburg, Germany.
  • Schrank B; Fachbereich Neurologie, DKD Helios Klinik Wiesbaden, Wiesbaden, Germany.
  • Schreiber G; Department of Pediatric Neurology, Klinikum Kassel, Kassel, Germany.
  • Smitka M; Abteilung Neuropaediatrie, Medizinische Fakultät Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany.
  • Stadler C; Department of Neurology, Klinikum Klagenfurt am Wörthersee, Klagenfurt am Wörthersee, Austria.
  • Steiner E; Department of Pediatrics and Adolescent Medicine, Johannes Kepler University / Hospital, Linz, Austria.
  • Stögmann E; Department of Pediatrics, Landesklinikum Baden-Mödling, Standort Mödling, Germany.
  • Trollmann R; Department of Pediatrics, Division of Pediatric Neurology, Friedrich-Alexander-University of Erlangen-Nürnberg, Erlangen, Germany.
  • Türk M; Department of Neurology, Friedrich-Alexander University Erlangen-Nuremberg (FAU), Germany.
  • Weiler M; Department of Neurology, Heidelberg University Hospital, Heidelberg, Germany.
  • Stoltenburg C; Department of Pediatric Neurology and Center for Chronically Sick Children, Charité - University Medicine Berlin, Berlin, Germany.
  • Willichowsky E; Department of Paediatrics and Pediatric Neurology, University Medical Centre, Georg August University Göttingen, Göttingen, Germany.
  • Zeller D; Department of Neurology, University Hospital Würzburg, Würzburg, Germany.
  • Ziegler A; Department of Neuropediatrics and Metabolic Medicine, University Hospital Heidelberg, Heidelberg, Germany.
  • Lochmüller H; Department of Neuropediatrics and Muscle Disorders, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.
  • Kirschner J; Children's Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada.
J Neuromuscul Dis ; 10(1): 29-40, 2023.
Article em En | MEDLINE | ID: mdl-36565133
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Atrofia Muscular Espinal / Atrofias Musculares Espinais da Infância Tipo de estudo: Observational_studies Limite: Adult / Child / Humans / Infant Idioma: En Revista: J Neuromuscul Dis Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Alemanha País de publicação: Holanda
Texto completo
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Atrofia Muscular Espinal / Atrofias Musculares Espinais da Infância Tipo de estudo: Observational_studies Limite: Adult / Child / Humans / Infant Idioma: En Revista: J Neuromuscul Dis Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Alemanha País de publicação: Holanda