What Factors Explain Family Quality of Life in Neurodegenerative Diseases?
J Gerontol Soc Work
; 66(7): 960-980, 2023 10.
Article
em En
| MEDLINE
| ID: mdl-37070848
ABSTRACT
Neurodegenerative diseases (NDs) are a major cause of dependency among elderly and affect the entire family unit. However, the literature has paid little attention to Family Quality of Life (FQOL) and focused on the patient and the main caregiver. The aim was to analyze the FQOL of people with NDs from a systemic perspective and to identify associated factors. A sample of 300 family caregivers from the cross-border region of Spain-Portugal completed the FQOLS - ND, which collected FQOL global and domain-level scores in terms of attainment and satisfaction. The highest rates of FQOL were obtained for the domain Family relations and the lowest for Support from services. The level of perceived barriers to social-health services emerged as the strongest predictor of global FQOL in all models. It is essential to reduce the obstacles to access social-health services and provide the family with resources according to their needs, especially in rural areas.
Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Qualidade de Vida
/
Doenças Neurodegenerativas
Tipo de estudo:
Prognostic_studies
Aspecto:
Patient_preference
Limite:
Aged
/
Humans
Idioma:
En
Revista:
J Gerontol Soc Work
Ano de publicação:
2023
Tipo de documento:
Article
País de afiliação:
Espanha