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Family Carers' Experiences of Goals of Care Conversations in Acute Hospital Settings.
Vivekananda, Kitty; Jayawardene, Jayamini S; O'Connor, Moira; Watts, Kaaren J; Leonard, Anton D; Keesing, Sharon; Halkett, Georgia; Shaw, Josephine; Colgan, Valerie; Yuen, Kevin; Jolly, Renate; Towler, Simon C; Chauhan, Anupam; Nicoletti, Margherita; Johnson, Claire E.
Afiliação
  • Vivekananda K; School of Educational Psychology and Counselling, Faculty of Education, Monash University, Melbourne, VIC, Australia.
  • Jayawardene JS; School of Educational Psychology and Counselling, Faculty of Education, Monash University, Melbourne, VIC, Australia.
  • O'Connor M; WA Cancer Prevention Research Unit, School of Population Health, Faculty of Health Sciences, Curtin University, Perth, WA, Australia.
  • Watts KJ; WA Cancer Prevention Research Unit, School of Population Health, Faculty of Health Sciences, Curtin University, Perth, WA, Australia.
  • Leonard AD; Critical Care and Intensive Care, Royal Perth Bentley Group, East Metropolitan Health Service, Perth, WA, Australia.
  • Keesing S; School of Occupational Therapy, Speech Pathology and Social Work, Curtin University, Perth, WA, Australia.
  • Halkett G; Curtin School of Nursing, Faculty of Health Sciences, Curtin University, Perth, WA, Australia.
  • Shaw J; Cancer Prevention Research Unit, School of Psychology, Curtin University, Perth, WA, Australia.
  • Colgan V; WA Cancer and Palliative Care Network, WA Department of Health, Perth, WA, Australia.
  • Yuen K; Palliative Care Department, Royal Perth Bentley Group, East Metropolitan Health Service, Perth, WA, Australia.
  • Jolly R; Respiratory Medicine, Royal Perth Bentley Group, East Metropolitan Health Service, Perth, WA, Australia.
  • Towler SC; Staff Specialist, Intensive Care Unit, Fiona Stanley Hospital, South Metropolitan Health Service, Perth, WA, Australia.
  • Chauhan A; Acting State Medical Director, DonateLife, WA, MHPHDS Division, North Metropolitan Health Service, Perth, WA, Australia.
  • Nicoletti M; Clinical Lead, End-of-Life Care, WA Department of Health, Perth, WA, Australia.
  • Johnson CE; Department of Intensive Care Medicine, Rockingham Hospital, South Metropolitan Health Service, Perth, WA, Australia.
J Appl Gerontol ; 42(12): 2304-2312, 2023 Dec.
Article em En | MEDLINE | ID: mdl-37728282
End-of-life Goals of Care (GoC) discussions aim to support care that is consistent with patients' preferences and values. This study uses an exploratory qualitative design drawing upon a social constructivist epistemology to examine family carers' perspectives on GoC within acute Australian hospital settings. Twenty-five family carers of aging inpatients were recruited from six Australian hospitals to participate in recorded, semi-structured interviews. Data were transcribed and analyzed using reflexive thematic analysis. Three main themes were developed. Theme 1 explored carers' experiences of GoC discussions-identifying varying levels of preparedness and carers' hopes for open, two-way discussions initiated by empathic Health Care Professionals (HCPs). Theme 2 examined carers' unmet needs for time, space, consistency, and support to make careful decisions. Theme 3 identified carers advocating for patients' needs when they could not do it themselves. Preparing carers and normalizing GoC discussions relating to end-of-life care maximizes benefits for patients, carers, and HCPs involved.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Cuidadores / Pessoal de Saúde Tipo de estudo: Qualitative_research Limite: Humans País/Região como assunto: Oceania Idioma: En Revista: J Appl Gerontol Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Austrália País de publicação: Estados Unidos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Cuidadores / Pessoal de Saúde Tipo de estudo: Qualitative_research Limite: Humans País/Região como assunto: Oceania Idioma: En Revista: J Appl Gerontol Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Austrália País de publicação: Estados Unidos