Family Ties at End-of-Life: Characteristics of Nursing Home Decedents With and Without Family.
Palliat Med Rep
; 4(1): 308-315, 2023.
Article
em En
| MEDLINE
| ID: mdl-38026144
ABSTRACT
Background:
Little is known about nursing home (NH) residents' family characteristics despite the important role families play at end-of-life (EOL).Objective:
To describe the size and composition of first-degree families (FDFs) of Utah NH residents who died 1998-2016 (n = 43,405).Methods:
Using the Utah Population Caregiving Database, we linked NH decedents to their FDF (n = 124,419; spouses = 10.8%; children = 55.3%; siblings = 32.3%) and compared sociodemographic and death characteristics of those with and without FDF members (n = 9424).Results:
Compared to NH decedents with FDF (78.3%), those without (21.7%) were more likely to be female (64.7% vs. 57.1%), non-White/Hispanic (11.2% vs. 4.2%), less educated (<9th grade; 41.1% vs. 32.4%), and die in a rural/frontier NH (25.3% vs. 24.0%, all p < 0.001). Despite similar levels of disease burden (Charlson Comorbidity score 3 + 37.7% vs. 38.0%), those without FDF were more likely to die from cancer (14.2% vs. 12.4%), Chronic Obstructive Pulmonary Disease (COPD) (6.0% vs. 4.0%), and dementia (17.1% vs. 16.6%, all p < 0.001), and were less likely to have 2+ hospitalizations at EOL (20.5% vs. 22.4%, p < 0.001).Conclusions:
Among NH decedents, those with and without FDF have different sociodemographic and death characteristics-factors that may impact care at EOL. Understanding the nature of FDF relationship type on NH resident EOL care trajectories and outcomes is an important next step in clarifying the role of families of persons living and dying in NHs.
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Coleções:
01-internacional
Base de dados:
MEDLINE
Idioma:
En
Revista:
Palliat Med Rep
Ano de publicação:
2023
Tipo de documento:
Article
País de afiliação:
Estados Unidos