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Quality of life, socioeconomic and psychological concerns in parents of children with tuberous sclerosis complex, STXBP1 and SYNGAP1 encephalopathies: a mixed method study.
Salcedo-Perez-Juana, María; Palacios-Ceña, Domingo; San-Martín-Gómez, Ana; Aledo-Serrano, Ángel; Florencio, Lidiane Lima.
Afiliação
  • Salcedo-Perez-Juana M; Research Group of Humanities and Qualitative Research in Health Science (Hum&QRinHS), Department of Physical Therapy, Occupational Therapy, Physical Medicine and Rehabilitation, Universidad Rey Juan Carlos, Madrid, Spain.
  • Palacios-Ceña D; Research Group of Humanities and Qualitative Research in Health Science (Hum&QRinHS), Department of Physical Therapy, Occupational Therapy, Physical Medicine and Rehabilitation, Universidad Rey Juan Carlos, Madrid, Spain.
  • San-Martín-Gómez A; Research Group of Humanities and Qualitative Research in Health Science (Hum&QRinHS), Department of Physical Therapy, Occupational Therapy, Physical Medicine and Rehabilitation, Universidad Rey Juan Carlos, Madrid, Spain.
  • Aledo-Serrano Á; Epilepsy and Neurogenetics Programme, Vithas Madrid La Milagrosa University Hospital, Vithas Hospital Group, Madrid, Spain.
  • Florencio LL; Research Group of Manual Therapy, Dry Needling and Therapeutic Exercise (GITM-URJC), Department of Physical Therapy, Occupational Therapy, Physical Medicine and Rehabilitation, Universidad Rey Juan Carlos, Madrid, Spain.
Front Pediatr ; 11: 1285377, 2023.
Article em En | MEDLINE | ID: mdl-38027293
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: Front Pediatr Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Espanha País de publicação: Suíça
Texto completo
Adicionar na Minha BVS
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: Front Pediatr Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Espanha País de publicação: Suíça