Tourette Syndrome: A Catalyst for Operationalizing Neurodiversity.
Neurology
; 103(2): e209572, 2024 Jul 23.
Article
em En
| MEDLINE
| ID: mdl-38870461
ABSTRACT
Our goal, taking Tourette syndrome as a case example, is to introduce neurologists to, and motivate discussion on, the neurodiversity paradigm. This philosophical construct considers some neurologic conditions in diversity, instead of simply disease. Moving from philosophical idea to empirical construct draws from patient and family perspectives on (1) quality of life and discrimination, (2) disability pride, and (3) unique profiles of different patient cohorts. Listening to patient voices, attending to family, advocacy group, and societal views on neurologic disorders can strengthen precision neurology practice. Dialogs on neurodiversity, including antitherapy sentiments, offer to enhance neurologic care, patient agency, and autonomy; encourage respectful communications with patients who challenge the idea their condition is pathologic; and to set the stage for future empirical investigations and practice guidelines.
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Síndrome de Tourette
Limite:
Humans
Idioma:
En
Revista:
Neurology
Ano de publicação:
2024
Tipo de documento:
Article
País de publicação:
Estados Unidos