Quality of life in children with sickle cell disease in Amsterdam area
Ned Tijdschr Geneeskd
; 143(41): 2049-53, Oct. 9, 1999.
Artigo
em Inglês
| MedCarib
| ID: med-759
Biblioteca responsável:
JM3.1
Localização: JM3.1
ABSTRACT
OBJECTIVE:
To determine the differences in quality of life between children with sickle cell disease and healthy immigrant children.DESIGN:
Descriptive, comparative.METHOD:
The quality of life of children with sickle cell disease between 5 and 15 years old being treated in the Emma Children's Hospital AMC in Amsterdam, the Netherlands, was assessed by using a questionnaire for parents (TNO-AZL Children's Quality of Life Questionnaire (TACQOL) parent form) if the child was between 8 and 15 years old. The study period was April-October 1998. The questionnaires were completed by 45 (parents of) patients. The results were compared with a healthy reference group of immigrant children. Statistical analysis was performed using the Student t-Test.RESULTS:
Children with sickle cell disease as well as their parents scored signifcantly lower on the items general physical, motor and independent daily functioning and on occurrence of negative emotions. No significance was observed for the items cognitive functioning and school performance nor for social functioning or occurrence of positive emotions.CONCLUSIONS:
In children, sickle cell disease leads to compromised physical and possibly also psychological wellbeing, as well as the experience of decreased independence in daily functioning, but not to compromised cognitive or social aspects of the quality of life. (AU)
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Base de dados:
MedCarib
Assunto principal:
Qualidade de Vida
/
Talassemia beta
/
Anemia Falciforme
Tipo de estudo:
Estudo observacional
/
Pesquisa qualitativa
/
Fatores de risco
Aspecto:
Preferência do paciente
Limite:
Adolescente
/
Criança
/
Feminino
/
Humanos
/
Masculino
País/Região como assunto:
África
/
América do Sul
/
Caribe Inglês
/
Europa
/
Suriname
Idioma:
Inglês
Revista:
Ned Tijdschr Geneeskd
Ano de publicação:
1999
Tipo de documento:
Artigo