[Dyadic self-care interventions in chronic heart failure in hospital settings: a systematic review].

Dyadic self-care in chronic heart failure (CHF) is key to ensure treatment continuity, reduce complications and readmissions, and minimise caregiver burden, but it requires specific strategies. The aim of the study was to identify dyadic self-management interventions in CHF in hospital settings by means of a systematic literature review conducted in the Pubmed, CINAHL and PsycInfo databases. Methodological quality was assessed according to CASPe and Joanna Briggs Institute tools. The main components of the interventions were identified: delivery format; dimensions and strategies used (cognitive-attitudinal, affective-emotional and behavioural); providers and recipients; measurement instruments used; and effectiveness. Most of the studies demonstrated improved outcomes, especially in depression and/or anxiety symptoms, adherence to treatment, diet and weight control. Innovative interventions that include components of the three dimensions identified and the use of valid, reliable and specific scales to measure outcomes are recommended.

Intervenciones de autocuidado diádico en la insuficiencia cardíacacrónica en el contexto hospitalario: una revisión sistemática / Dyadic self-care interventions in chronic heart failure in hospital settings: a systematic review

El autocuidado diádico en la insuficiencia cardiaca cró-nica (ICC) es clave para garantizar la continuidad del tra-tamiento, disminuir las complicaciones y los reingresos, yminimizar la sobrecarga del cuidador, pero demanda estra-tegias específicas. El objetivo fue identificar las intervencio-nes de autocuidado diádico en la ICC en el contexto hospi-talario mediante una revisión sistemática de la literatura enPubMed, CINAHL y PsycInfo; la calidad metodológica se valo-ró según las herramientas de CASPe y del Joanna Briggs Ins-titute. Se identificaron los principales componentes de lasintervenciones: formato de administración; dimensiones yestrategias utilizadas (cognitivo-actitudinal, afectiva-emo-cional y conductual); proveedores y receptores; instrumen-tos de medida utilizados; y efectividad. La mayoría de estu-dios mejoraron los resultados, especialmente síntomas dedepresión y/o ansiedad, adherencia al tratamiento, dieta ycontrol del peso. Se recomiendan intervenciones innova-doras que incluyan componentes de las tres dimensionesidentificadas y el uso de escalas válidas, fiables y específicaspara medir los resultados.(AU)

Dyadic self-care in chronic heart failure (CHF) is key toensure treatment continuity, reduce complications and re-admissions, and minimise caregiver burden, but it requiresspecific strategies. The aim of the study was to identify dy-adic self-management interventions in CHF in hospital set-tings by means of a systematic literature review conductedin the Pubmed, CINAHL and PsycInfo databases. Methodo-logical quality was assessed according to CASPe and JoannaBriggs Institute tools. The main components of the inter-ventions were identified: delivery format; dimensions andstrategies used (cognitive-attitudinal, affective-emotionaland behavioural); providers and recipients; measurementinstruments used; and effectiveness. Most of the studiesdemonstrated improved outcomes, especially in depressionand/or anxiety symptoms, adherence to treatment, diet andweight control. Innovative interventions that include com-ponents of the three dimensions identified and the use ofvalid, reliable and specific scales to measure outcomes arerecommended(AU)

Nivel de empoderamiento de las personas con insuficiencia cardíaca crónica hospitalizadas / Level of empowerment of hospitalized chronic heart failure patient

Fundamento: Conocer el nivel de empoderamiento de laspersonas con insuficiencia cardiaca crónica hospitalizadas es crucial para identificar a las personas con un nivelde empoderamiento más bajo y fundamentar el diseño deestrategias efectivas para mejorar su control sobre lasdecisiones y acciones que afectan a su salud y bienestar.La falta de estudio de este fenómeno en esta poblacióny contexto, sugiere que estos pacientes no están siendoatendidos adecuadamente. Material y métodos: Estudio descriptivo, prospectivo. Seutilizó el Cuestionario de empoderamiento del pacientecon enfermedad crónica, traducido y validado al español,que consta de 47 ítems, agrupados en tres dimensiones:Actitud positiva y sentido del control, Toma de decisiones compartida e informada, y Búsqueda de informacióny compartir entre iguales. Fue distribuido para su cumplimentación en las 24 horas previas al alta hospitalaria.Resultados: Se recogieron 25 cuestionarios (81%). La puntuación global media de empoderamiento fue de 165,92 ±20,9. La dimensión Actitud positiva y sentido de controlfue la peor puntuada, con una media de 3,4 ± 0,5. Se encontró una relación inversa y débil entre el nivel de em-poderamiento y la edad (rho = -0,240; p = 0,000) y una relación débil y positiva con la supervivencia a los 10 años(rho = 0,316; p = 0,01).Conclusión: El nivel de empoderamiento de los pacientesde este estudio fue medio-alto. Las estrategias para abordar la atención de esta población deberían centrarse entrabajar su actitud respecto a la enfermedad y percepciónde control de la situación e individualizarse conforme ala edad.(AU)

Background: Establishing the level of chronic cardiac inpatient empowerment is essential. By doing so, it is possible to identify groups with a lower level. It also providesa basis for designing effective strategies to improve theircontrol over decision making and the actions that affecttheir health and wellness. The shortage of studies of thisphenomenon for this particular population and contextsuggests that such patients are not receiving proper care. Methods: A prospective and descriptive study was carried out. A validated Spanish version of the Patient empowerment in long-term conditions scale was used. Thesurvey has 47 items, grouped into three dimensions: Positive attitude and feeling of control, Knowledge in shareddecision making, and Seeking information and sharingwith other patients. It was distributed 24 hours beforehospital discharge. Results: Twenty five questionnaires were collected (81%).The mean global empowerment score of the patients was165.92 ± 20.9. The dimension Positive attitude and senseof control showed the lowest score, with a mean of 3.4± 0.5. An inverse weak relationship was found betweenthe level of empowerment and age (rho = -0.240; p = 0.000)while a positive one was found with 10-year survival(rho = 0,316; p = 0.01). Conclusion: The level of empowerment of the patients inthis study was medium-high. The strategies used to address the care of this population should focus on workingon their attitude towards the disease and perceived control of the situation, and should be individualized according to age.(AU)

[Level of empowerment of hospitalized chronic heart failure patient].

BACKGROUND: Establishing the level of chronic cardiac inpatient empowerment is essential. By doing so, it is possible to identify groups with a lower level. It also provides a basis for designing effective strategies to improve their control over decision making and the actions that affect their health and wellness. The shortage of studies of this phenomenon for this particular population and context suggests that such patients are not receiving proper care. METHODS: A prospective and descriptive study was carried out. A validated Spanish version of the Patient empowerment in long-term conditions scale was used. The survey has 47 items, grouped into three dimensions: Positive attitude and feeling of control, Knowledge in shared decision making, and Seeking information and sharing with other patients. It was distrib-uted 24 hours before hospital discharge. RESULTS: Twenty five questionnaires were collected (81%). The mean global empowerment score of the patients was 165.92 ± 20.9. The dimension Positive attitude and sense of control showed the lowest score, with a mean of 3.4 ± 0.5. An inverse weak relationship was found between the level of empowerment and age (rho = -0.240; p = 0.000) while a positive one was found with 10-year survival (rho = 0,316; p = 0.01). CONCLUSION: The level of empowerment of the patients in this study was medium-high. The strategies used to address the care of this population should focus on working on their attitude towards the disease and perceived control of the situation, and should be individualized according to age.

[Exploring the experience of living with a heart transplant: a systematic review of the literature]. / Explorando la experiencia de vivir con un trasplante cardíaco: una revisión sistemática de la literatura.

The focus of healthcare professionals is shifting from illness to health and the individual experience of each person. However, current health care continues to focus on the prevention and treatment of medical complications, leaving aside other important aspects of the experience of cardiac transplant patients. The aim of this systematic review of the literature was to explore how living with a transplanted heart affects their lives. We searched the databases Pubmed, Cinahl, Scielo, Scopus, Dialnet, Cuiden and PsyINFO, and specialized journals. Twenty-five articles were included for study. The analysis and interpretation of the results was based on the methodology by Dixon-Woods et al and by Evans. The results were grouped into seven categories: spiritual repercussions, psychological repercussions, social repercussions, relationship with the donor and the organ, repercussions in the physical environment and quality of life, coping strategies, and feelings towards the healthcare professionals. The results confirm the need for a change in the care given to cardiac transplant patients given that, although transplantation has been shown to improve the quality and quantity of life, it has multiple psychosocial implications that affect the well-being and day-to-day life of these patients.

Explorando la experiencia de vivir con un trasplante cardíaco: una revisión sistemática de la literatura / Exploring the experience of living with a heart transplant: a systematic review of the literature

El enfoque de los profesionales de la salud está cambiando, pasando de centrarse en la enfermedad a orientarse hacia la salud y la experiencia individual de cada persona. Sin embargo, aunque esta perspectiva se considera relevante para los pacientes trasplantados cardíacos, la atención sanitaria actual se sigue centrando en la prevención y el tratamiento de las complicaciones médicas, dejando de lado otros aspectos importantes de su vivencia. El objetivo de esta revisión sistemática de la literatura fue explorar la experiencia de vivir con un corazón trasplantado y las implicaciones vitales que esto supone. Se realizó una búsqueda en las bases de datos Pubmed, Cinahl, Scielo, Scopus, Dialnet, Cuiden y PsyINFO, y en revistas especializadas y se incluyeron 25 artículos cuyo análisis e interpretación se basó en la metodología propuesta por Dixon-Woods y col y por Evans. Los resultados se agruparon en siete categorías: repercusiones espirituales, repercusiones psicológicas, repercusiones sociales, relación con el donante y el órgano, repercusiones en el ámbito físico y calidad de vida, estrategias de afrontamiento, y sentimientos hacia los profesionales. Los resultados confirman la necesidad de que haya un cambio en la atención que se presta a las personas trasplantadas cardíacas. Se ha visto que aunque el trasplante mejora la calidad y la cantidad de vida, tiene múltiples repercusiones psicosociales que afectan al bienestar y al día a día de estos pacientes

The focus of healthcare professionals is shifting from illness to health and the individual experience of each person. However, current health care continues to focus on the prevention and treatment of medical complications, leaving aside other important aspects of the experience of cardiac transplant patiens. The aim of this systematic review of the literature was to explore how living with a transplanted heart affects their lives. We searched the databases Pubmed, Cinahl, Scielo, Scopus, Dialnet, Cuiden and PsyINFO, and specialized journals. Twenty-five articles were included for study. The analysis and interpretation of the results was based on the methodology by Dixon-Woods et al and by Evans. The results were grouped into seven categories: spiritual repercussions, psychological repercussions, social repercussions, relationship with the donor and the organ, repercussions in the physical environment and quality of life, coping strategies, and feelings towards the healthcare professionals. The results confirm the need for a change in the care given to cardiac transplant patients given that, although transplantation has been shown to improve the quality and quantity of life, it has multiple psychosocial implications that affect the well-being and day-to-day life of these patients

The experience of family caregivers caring for a terminal patient at home: A research review.

INTRODUCTION: One of the key aspects of the care of terminal patients is care delivered in their own home. Increasingly, the process of dying is moving from hospitals to homes. Although this process is directly related to the support of the social health environment, the involvement of family caregivers is essential. Given the impact that caring for a terminally ill family member has on people's lives, it is necessary to comprehend their personal experience in a holistic way. OBJECTIVE: To reveal the experience of family caregivers who are caring for a terminal patient in their home. DESIGN: A qualitative systematic review of articles published from 2000 to 2015 was conducted between March and September of 2015. The following databases were consulted: CINAHL, PubMed, PsycINFO, Cochrane Library, SciELO and Dialnet. After applying the selection criteria, 12 relevant studies were identified. Subsequently, two of the reviewers jointly performed a qualitative content analysis of them. RESULTS: The analysis permitted the caregivers' experiences to be grouped into five themes: 1) Learning the diagnosis: uncertainty about the future and the prospects of death; 2) Feeling the physical and emotional burden of care; 3) Experiencing a limited life; 4) Redefining the relationship with the person being cared for; and 5) Valuing the importance of the support of the environment. CONCLUSIONS: This review shows that caring for a family member with advanced illness in the home has a great impact on the personal realm of the caregiver and in the relationship he or she maintains with the ill family member. Being involved in the process of dying translates into a prodigious physical and psychological effort, together with a substantial limitation on the normal development of their own life. Additionally, the caregiver must face and establish a new relationship with the family member, in accordance with the new ethos, without the help of a formal structure providing the necessary support. These results may help to focus attention on family caregiver needs and to develop the knowledge necessary to meet the current demands of end-of-life health care in the home.