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1.
PEC Innov ; 2: 100158, 2023 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-37214527

RESUMO

Objective: To describe innovations in a clinical communication skills training (CCST) program, aimed at facilitating transfer of communication skills from classroom to clinical practice and report student's evaluations regarding this program. Methods: To facilitate transfer, we integrated CCS with medical and practical skills, and we developed simulation sessions closely resembling clinical practice in case-history's, length of consultation, and patient-population. Feedback was given on communication skills and medical knowledge and skills. Student's opinions about whether these elements were helpful, were evaluated using a questionnaire. Results: Responses of 144 students were analyzed. The majority of the respondents agreed that this CCST program helped them with transfer of CCS from classroom to clinical practice, as did the feedback on medical content and communication skills in the same session. Conclusion: Students indicate that simulations resembling clinical practice and feedback on both CST and medical content facilitate the transfer of their skills to clinical practice. Innovation: This CCST program is innovative because it integrates medical and practical skills, with elements aiming to create an educational environment resembling clinical practice as closely as possible in order to facilitate transfer to clinical practice.

3.
Health Place ; 70: 102556, 2021 07.
Artigo em Inglês | MEDLINE | ID: mdl-34214893

RESUMO

In line with World Health Organization policy (WHO, 2016; 2019), primary care services need to be adapted to effectively meet the needs of diverse patient populations. Drawing from a European participatory implementation study, we present an Irish case study. In a hybrid participatory space, migrants, general practice staff and service planners (n = 11) engaged in a project to implement the use of trained interpreters in primary care over 17 months. We used Normalisation Process Theory to analyse data from 15 Participatory Learning and Action research focus groups and related sources. While stakeholders' agency and expertise produced relevant positive results for the introduction of changes in a general practice setting, structural factors limited the range and scope for sustained changes in day-to-day practice.


Assuntos
Migrantes , Pesquisa sobre Serviços de Saúde , Humanos , Irlanda , Atenção Primária à Saúde , Pesquisa Qualitativa
4.
Patient Educ Couns ; 104(10): 2386-2392, 2021 10.
Artigo em Inglês | MEDLINE | ID: mdl-34330598

RESUMO

INTRODUCTION: This paper describes the co-creation and delivery of an integrated training programme in communication and depression assessment & management for Japanese GPs. METHODS: Experts in communication and depression from EACH and WONCA developed a framework and filled it with content. Through iterative discussions with the Japanese participants and experts during delivery, the training was further adjusted to match local needs. It included didactic and experiential training methods with an emphasis on practicing and feedback. A "train-the-trainer" component helped participants develop their own trainer skills to enhance dissemination of the training in Japan. RESULTS: Six Japanese GPs participated in two one week training-modules in May and November 2018. To aid implementation participants received online supervision on depression management and on teaching between the two modules and after the second module. Evaluation of the content of the training, the teaching methods and the participatory approach was positive. More than two years after the training, many elements of the training continue to be used in daily practice with the GPs teaching communication as well as depression management skills. CONCLUSION: The method of co-creation is promising. Research is needed to confirm that it is effective in transfer to clinical practice.


Assuntos
Medicina Geral , Saúde Mental , Comunicação , Retroalimentação , Humanos , Japão
5.
MedEdPublish (2016) ; 9: 25, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-38058874

RESUMO

This article was migrated. The article was marked as recommended. Introduction: This study investigated the self-reported take-home messages of medical students after an early training module in breaking bad news (BBN). The findings will aid the discussion on how to teach BBN. Methods:We asked 592 second year medical students at two Dutch medical schools to write down what they had learned, right after their first communication skills training in BBN. We analysed these self-reported take-home messages using a hybrid form of qualitative content analysis using SPIKES as a conceptual frame. Results:The most important take-home messages reported by students in both schools were: how to inform the patient (24,5%), how to deal with emotions (20,6%), and how to prepare for a BBN-consultation (16,9%). Additionally, students reported the professional quality "being patient-centered". Conclusions:Early communication skills training on BBN, including true stories and examples of doctors and their BBN-experiences, does not only give the students the knowledge how to break bad news to patients, but also which underlying professional qualities are needed to successfully break bad news. Good role models and realistic examples are therefore important. We propose a new mnemonic PRINSE (PReparation-INformation-Silence-Emotions) for novice learners in the design of a helical curriculum.

6.
Patient Educ Couns ; 102(6): 1217-1221, 2019 06.
Artigo em Inglês | MEDLINE | ID: mdl-30661729

RESUMO

In 2017, EACH celebrated its change of name from European Association for Communication in Healthcare to EACH: International Association for Communication in Healthcare. This paper aims to present the developments and achievements of EACH over the past five years with a focus on its mission in promoting and advancing the field of communication in healthcare. Specifically, the paper focuses on how EACH, first, promotes research in the field of health communication, second, provides support, resources and sharing for healthcare communication teachers and, third, aims at influencing policy through dissemination of evidence. This paper also explores future challenges and directions for EACH to further strengthen its impact by designing activities in knowledge transfer and knowledge dissemination, engaging with patients and truly benefitting from their expertise, fostering active participation and networking among its members, targeting interventions to the needs of different countries around the world and refining knowledge-sharing and cooperation both within the membership of EACH and outside the association to as wide an audience as possible. Scholars, educators and practitioners active in the field of healthcare communication are invited to comment on this paper and to actively contribute towards the goals of EACH.


Assuntos
Comunicação em Saúde , Agências Internacionais/organização & administração , Humanos , Objetivos Organizacionais
7.
J Cancer Educ ; 34(6): 1103-1106, 2019 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-30128954

RESUMO

Feedback is a key factor in acquiring breaking bad news (BBN) communication skills and its' acceptance depends on the perceived credibility of the provider. Our aim was to investigate students' opinions on the provided feedback by different educators (surgeons, psychologists, and simulated patient (SP)) during BBN skills training. We developed a questionnaire investigating provided feedback by the surgeon, psychologist, and SP (yes or no statements), regarding (1) perceived safety of the atmosphere, (2) perceived positive feedback, (3) perceived specific feedback, and (4) perceived usefulness for improvement during BBN skills training. Five hundred twenty students returned the questionnaire after BBN skills training. Most students rated the feedback as positive, specific, and useful. Also, the atmosphere was considered safe. Feedback ratings of the SP were the same as for the surgeon and valued higher than for the psychologist. An unsafe atmosphere, or not receiving positive, specific, or useful feedback was mostly related to the psychologist's feedback. Feedback on BBN skills training by surgeons and SPs is rated equally helpful by students and is regarded specific, useful, and positive. When designing a BBN training, it is worth to consider involving SP's as well as clinicians.


Assuntos
Adaptação Psicológica , Comunicação , Educação de Graduação em Medicina/métodos , Retroalimentação , Educadores em Saúde/psicologia , Estudantes de Medicina/psicologia , Revelação da Verdade , Competência Clínica , Humanos , Simulação de Paciente , Relações Médico-Paciente , Inquéritos e Questionários
8.
Health Expect ; 21(1): 159-170, 2018 02.
Artigo em Inglês | MEDLINE | ID: mdl-28841753

RESUMO

BACKGROUND: The material practices which researchers use in research partnerships may enable or constrain the nature of engagement with stakeholder groups. Participatory learning and action (PLA) research approaches show promise, but there has been no detailed analysis of stakeholders' and researchers' experiences of PLA techniques for data generation and co-analysis. OBJECTIVES: To explore stakeholders' and researchers' experiences of PLA techniques for data generation and co-analysis. DESIGN: The EU RESTORE implementation science project employed a participatory approach to investigate and support the implementation of guidelines and training initiatives (GTIs) to enhance communication in cross-cultural primary care consultations. We developed a purposeful sample of 78 stakeholders (migrants, general practice staff, community interpreters, service providers, service planners) from primary care settings in Austria, England, Greece, Ireland and The Netherlands. We used speed evaluations and participatory evaluations to explore their experiences of two PLA techniques-Commentary Charts and Direct Ranking-which were intended to generate data for co-analysis by stakeholders about the GTIs under analysis. We evaluated 16 RESTORE researchers' experiences using interviews. We conducted thematic and content analysis of all evaluation data. RESULTS: PLA Commentary Charts and Direct Ranking techniques, with their visual, verbal and tangible nature and inherent analytical capabilities, were found to be powerful tools for involving stakeholders in a collaborative analysis of GTIs. Stakeholders had few negative experiences and numerous multifaceted positive experiences of meaningful engagement, which resonated with researchers' accounts. CONCLUSION: PLA techniques and approaches are valuable as material practices in health research partnerships.


Assuntos
Pesquisa Participativa Baseada na Comunidade , Comportamento Cooperativo , Assistência à Saúde Culturalmente Competente , Pesquisa sobre Serviços de Saúde/métodos , Atenção Primária à Saúde , Projetos de Pesquisa , Comunicação , União Europeia , Saúde Global , Humanos , Migrantes
9.
Med Educ ; 51(11): 1103-1117, 2017 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-28762538

RESUMO

CONTEXT: Patient-centred communication is a key component of patient centredness in medical care. Therefore, adequate education in and assessment of patient-centred communication skills are necessary. In general, feedback on communication skills is most effective when it is provided directly and is systematic. This calls for adequate measurement instruments. OBJECTIVES: The aim of this study was to provide a systematic review of existing instruments that measure patient centredness in doctor-patient communication and can be used to provide direct feedback. METHODS: A systematic review was conducted using an extensive validated search strategy for measurement instruments in PubMed, EMBASE, PsycINFO and CINAHL. The databases were searched from their inception to 1 July 2016. Articles describing the development or evaluation of the measurement properties of instruments that measure patient centredness (by applying three or more of the six dimensions of a published definition of patient centredness) in doctor-patient communication and that can be used for the provision of direct feedback were included. The methodological quality of measurement properties was evaluated using the COSMIN checklist. RESULTS: Thirteen articles describing 14 instruments measuring patient centredness in doctor-patient communication were identified. These studies cover a wide range of settings and patient populations, and vary in the dimensions of patient centredness applied and in methodological quality on aspects of reliability and validity. CONCLUSIONS: This review gives a comprehensive overview of all instruments available for the measurement of patient centredness in doctor-patient communication that can be used for the provision of direct feedback and are described in the literature. Despite the widely felt need for valid and reliable instruments for the measurement of patient-centred communication, most of the instruments currently available have not been thoroughly investigated. Therefore, we recommend further research into and enhancement of existing instruments in terms of validity and reliability, along with enhancement of their generalisability, responsiveness and aspects of interpretability in different contexts (real patients, simulated patients, doctors in different specialties, etc.). Comprehensibility and feasibility should also be taken into account.


Assuntos
Comunicação , Relações Médico-Paciente , Inquéritos e Questionários , Humanos , Assistência Centrada no Paciente
11.
Patient Educ Couns ; 100(9): 1758-1761, 2017 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-28438364

RESUMO

OBJECTIVE: This article reports experiences and challenges encountered in a cross-cultural training project in Moldova that was undertaken by tEACH, the teaching subcommittee of EACH: International Association for Communication in Healthcare, in cooperation with local and international stakeholders. As part of a major health policy reform, the aim was to equip a group of trainers with the skills to train Moldovan professionals in skills for primary mental health care, including communication skills. METHODS: The project consisted of 3 weeks of training using mainly experiential teaching methods to allow participants to practice content and methods, including interactive lecturing, roleplay, feedback and video. RESULTS: A majority of the participants reported that they acquired key facilitation skills. They valued the opportunity to practice and receive feedback. However, some reported that there was too much focus on communication skills, which was thought to be less relevant in a Moldovan context. Furthermore our learner-centered approach was occasionally experienced as a lack of structure CONCLUSION: The tEACH expertise plays an important role in supporting trainers in cross-cultural contexts with effective communication skills methods. PRACTICE IMPLICATIONS: Teaching in a cross-cultural context is only successful through continuous dialogue with stakeholders and demands attention to cultural differences.


Assuntos
Comunicação , Comparação Transcultural , Pessoal de Saúde/educação , Encaminhamento e Consulta , Ensino , Retroalimentação , Humanos , Saúde Mental , Serviços de Saúde Mental , Moldávia
12.
Eur J Gen Pract ; 23(1): 128-134, 2017 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-28388310

RESUMO

BACKGROUND: Migration in Europe is increasing at an unprecedented rate. There is an urgent need to develop 'migrant-sensitive healthcare systems'. However, there are many barriers to healthcare for migrants. Despite Greece's recent, significant experiences of inward migration during a period of economic austerity, little is known about Greek primary care service providers' experiences of delivering care to migrants. OBJECTIVES: To identify service providers' views on the barriers to migrant healthcare. METHODS: Qualitative study involving six participatory learning and action (PLA) focus group sessions with nine service providers. Data generation was informed by normalization process theory (NPT). Thematic analysis was applied to identify barriers to efficient migrant healthcare. RESULTS: Three main provider and system-related barriers emerged: (a) emphasis on major challenges in healthcare provision, (b) low perceived control and effectiveness to support migrant healthcare, and (c) attention to impoverished local population. CONCLUSION: The study identified major provider and system-related barriers in the provision of primary healthcare to migrants. It is important for the healthcare system in Greece to provide appropriate supports for communication in cross-cultural consultations for its diversifying population.


Assuntos
Atitude do Pessoal de Saúde , Atenção à Saúde/economia , Emigrantes e Imigrantes , Medicina Geral , Atenção Primária à Saúde , Adolescente , Adulto , Barreiras de Comunicação , Competência Cultural , Atenção à Saúde/legislação & jurisprudência , Emigrantes e Imigrantes/legislação & jurisprudência , Feminino , Grupos Focais , Grécia/etnologia , Disparidades em Assistência à Saúde , Humanos , Idioma , Masculino , Pessoas sem Cobertura de Seguro de Saúde/etnologia , Pessoa de Meia-Idade , Pobreza/etnologia , Atenção Primária à Saúde/economia , Pesquisa Qualitativa , Mudança Social , Adulto Jovem
13.
BMJ Open ; 6(7): e010822, 2016 07 22.
Artigo em Inglês | MEDLINE | ID: mdl-27449890

RESUMO

OBJECTIVES: Guidelines and training initiatives (G/TIs) are available to support communication in cross-cultural consultations but are rarely implemented in routine practice in primary care. As part of the European Union RESTORE project, our objective was to explore whether the available G/TIs make sense to migrants and other key stakeholders and whether they could collectively choose G/TIs and engage in their implementation in primary care settings. SETTING: As part of a comparative analysis of 5 linked qualitative case studies, we used purposeful and snowball sampling to recruit migrants and other key stakeholders in primary care settings in Austria, England, Greece, Ireland and the Netherlands. PARTICIPANTS: A total of 78 stakeholders participated in the study (Austria 15, England 9, Ireland 11, Greece 16, Netherlands 27), covering a range of groups (migrants, general practitioners, nurses, administrative staff, interpreters, health service planners). PRIMARY AND SECONDARY OUTCOME MEASURES: We combined Normalisation Process Theory (NPT) and Participatory Learning and Action (PLA) research to conduct a series of PLA style focus groups. Using a standardised protocol, stakeholders' discussions about a set of G/TIs were recorded on PLA commentary charts and their selection process was recorded through a PLA direct-ranking technique. We performed inductive and deductive thematic analysis to investigate sensemaking and engagement with the G/TIs. RESULTS: The need for new ways of working was strongly endorsed by most stakeholders. Stakeholders considered that they were the right people to drive the work forward and were keen to enrol others to support the implementation work. This was evidenced by the democratic selection by stakeholders in each setting of one G/TI as a local implementation project. CONCLUSIONS: This theoretically informed participatory approach used across 5 countries with diverse healthcare systems could be used in other settings to establish positive conditions for the start of implementation journeys for G/TIs to improve healthcare for migrants.


Assuntos
Comunicação , Assistência à Saúde Culturalmente Competente , Guias de Prática Clínica como Assunto , Atenção Primária à Saúde/métodos , Migrantes , Adolescente , Áustria , Inglaterra , Feminino , Grupos Focais , Grécia , Pesquisa sobre Serviços de Saúde/métodos , Humanos , Irlanda , Masculino , Pessoa de Meia-Idade , Países Baixos , Atenção Primária à Saúde/estatística & dados numéricos , Pesquisa Qualitativa , Adulto Jovem
14.
J Med Internet Res ; 18(7): e206, 2016 07 29.
Artigo em Inglês | MEDLINE | ID: mdl-27473173

RESUMO

BACKGROUND: The complex nature of the medical dialogue and the often emotional context in cancer care present challenges to health care professionals (HCPs) and patients. Patients are increasingly expected to be informed participants and to be able to make conscious decisions, which they often find very difficult. In an attempt to support patients with malignant lymphoma in clinical communication, we developed a stand-alone, Web-based intervention called "PatientTIME." The development of PatientTIME was based on a participatory intervention mapping framework. Its primary aim is to boost patients' self-efficacy in patient-professional communication (ie, their confidence when interacting with their HCP). Patients can use this intervention before their hospital visit to prepare for their clinical consultation. PatientTIME is fully automated and use is patient-initiated. OBJECTIVE: The aim of this study was to evaluate if and in what way patients benefit from PatientTIME and if it enhances their confidence in clinical communication. METHODS: The intervention was evaluated in a closed randomized controlled trial with continuous recruitment (using online and offline methods to reach potential participants) and data collection. In accordance with the Medical Research Council guidance, we started with a process evaluation. Subsequently, an outcome evaluation was performed focusing on the patients' perceived confidence in communication with their HCP, measured with the validated PEPPI questionnaire at baseline and at 3 months after participation. Process and outcome data were obtained through Web-based questionnaires, log files (automatically generated files mapping the interactions between program and users), and a logbook (comprising a record of actions and interactions kept by the researchers). Participants were not blinded. A total of 146 patients registered online, of whom 97 gave their informed consent and were assigned at random to the control group (N=34) or 1 of the 2 intervention groups (N=63). Ultimately 87/97 (90%) of these patients actually participated in the study, producing 87 datasets for analysis. RESULTS: More than half of the intervention group patients reported that the intervention helped them prepare for a clinical consultation; it created awareness about the importance of communication and reinforced their existing communication skills. In the postvisit test, the control group showed a small, nonsignificant improvement in perceived communication efficacy. The intervention group showed a significant improvement in perceived efficacy. However, the interaction effect was not significant, indicating that the improvement solely as a result of the intervention may not be significant. CONCLUSIONS: A considerable number of patients reported that PatientTIME did provide support. We found a trend indicating that in the long run, patients with access to PatientTIME scored better on the perceived efficacy scale than patients without access. However, at this stage we cannot conclude that PatientTIME improves patients' confidence when interacting with HCPs. CLINICALTRIAL: Netherlands National Trial Register (NTR): 3779; http://www.trialregister.nl/trialreg/admin/rctview.asp?TC=3779 (archived by WebCite at http://www.webcitation.org/6iztxJ5Nt).


Assuntos
Comunicação , Internet , Linfoma , Relações Profissional-Paciente , Autoeficácia , Adulto , Idoso , Feminino , Humanos , Modelos Lineares , Masculino , Pessoa de Meia-Idade , Países Baixos , Avaliação de Processos e Resultados em Cuidados de Saúde , Inquéritos e Questionários
15.
Patient Educ Couns ; 99(9): 1441-5, 2016 09.
Artigo em Inglês | MEDLINE | ID: mdl-27473637

RESUMO

This paper is based on the keynote lecture given at the ICCH conference in New Orleans in October 2015. With as background the observation that even though research and teaching of communication have been receiving attention for some time now, patients still encounter many problems when they visit clinicians because of health problems, it subsequently touches upon research on integration of communication with correct medical content, person centered communication and the role of placebo on outcomes. For teaching it emphasizes methods working best to teach clinical communication skills and lead to behavior changes in professionals: experiential teaching methods but taking care of a balance with cognitive methods. It then discusses the challenge of transfer to clinical practice and what is needed to overcome these challenges: learning from reflecting on undesired outcomes in clinical practice, feedback from clinicians who are open to communication and support learners with effective feedback in that specific context. It adds suggestions about where linking more between research, teaching and clinical practice could help moving communication in health care forward and builds the case for involving policymakers and members of hospital boards to help manage the necessary climate change in clinical settings.


Assuntos
Competência Clínica , Comunicação , Pesquisa , Ensino , Humanos , Relações Médico-Paciente
17.
Health Policy ; 120(5): 495-508, 2016 May.
Artigo em Inglês | MEDLINE | ID: mdl-27080344

RESUMO

There is a growing interest in the health of migrants worldwide. Migrants, particularly those in marginalised situations, face significant barriers and inequities in entitlement and access to high quality health care. This study aimed to explore the potential role of primary care in mitigating such barriers and identify ways in which health care policies and systems can influence the ability of primary care to meet the needs of vulnerable and marginalised migrants. The study compared routinely available country-level data on health system structure and financing, policy support for language and communication, and barriers and facilitators to health care access reported in the published literature. These were then mapped to a framework of primary care systems to identify where the key features mitigating or amplifying barriers to access lay. Reflecting on the data generated, we argue that culturally-sensitive primary care can play a key role in delivering accessible, high-quality care to migrants in vulnerable situations. Policymakers and practitioners need to appreciate that both individual patient capacity, and the way health care systems are configured and funded, can constrain access to care and have a negative impact on the quality of care that practitioners can provide to such populations. Strategies to address these issues, from the level of policy through to practice, are urgently needed.


Assuntos
Política de Saúde , Acessibilidade aos Serviços de Saúde , Migrantes , Europa (Continente) , Humanos , Atenção Primária à Saúde/estatística & dados numéricos , Pesquisa Qualitativa , Qualidade da Assistência à Saúde
18.
Ann Hematol ; 95(7): 1177-83, 2016 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-27091348

RESUMO

Many patients with haematological malignancies experience barriers in clinical communication. Reaching effective communication is of great importance as it has been linked to a range of improved patient outcomes such as satisfaction, compliance to treatment, perceived quality of life and physical and mental health. To get a better understanding how communication in haematological consultations can be improved, the current study focussed on patients' preferences and perceived performances regarding the communicative behaviour of their health care professional. Secondly, the mediation of an online communication tool for patients was analysed. Within a controlled pre- post-test design, 78 datasets of clinical consultations could be analysed. Patients considered both affective and instrumental communication aspects important. The affective communication behaviour of the health care professional met the patients' pre-visit preferences well. In the information exchange, more variability and discrepancies were found. Overall, the online intervention did not seem to influence the patients' perceived communication performance of their health care professional much. To further improve the communication during clinical consultations, health care professionals should inquire about patients' expectations, especially during the exchange of information and advices. At the same time, patients should be supported to express their preferences at the start of the consultation. The study was registered in the Netherlands Trial Register, number 3779.


Assuntos
Comunicação , Pessoal de Saúde/normas , Doenças Hematológicas/epidemiologia , Preferência do Paciente , Papel Profissional , Relações Profissional-Paciente , Feminino , Seguimentos , Doenças Hematológicas/diagnóstico , Doenças Hematológicas/terapia , Humanos , Masculino , Pessoa de Meia-Idade , Países Baixos/epidemiologia , Encaminhamento e Consulta/normas , Inquéritos e Questionários
19.
Eur J Gen Pract ; 22(2): 119-25, 2016 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-26966968

RESUMO

BACKGROUND: Mental health problems are highly prevalent amongst undocumented migrants (UMs), and often part of their consultations with general practitioners (GPs). Little empirical data are available of how GPs and UMs engage around mental health in Greece, a country with a lack of balance between primary and secondary care and limited healthcare provisions for UMs. OBJECTIVES: To acquire insight in the barriers and levers in the provision of mental healthcare for UMs by GPs in Greece. METHODS: This was a qualitative study using semi-structured interviews with 12 GPs in Crete, Greece with clinical expertise in the care of UMs. All interviews were audio-taped and transcribed verbatim and were analysed using thematic content analysis. RESULTS: Greek GPs recognized many mental health problems in UMs and identified the barriers that prevented them from discussing these problems and delivering appropriate care: growing societal resistance towards UMs, budget cuts in healthcare, administrative obstacles and lack of support from the healthcare system. To overcome these barriers, Greek GPs provided UMs with free access to care and psychotropic drugs free of charge, and referred to other primary care professionals rather than to mental healthcare institutions. CONCLUSION: Greek GPs experienced substantial barriers in the provision of mental healthcare to UMs and political, economic and organizational factors played a major role.


Assuntos
Clínicos Gerais/organização & administração , Transtornos Mentais/terapia , Serviços de Saúde Mental/organização & administração , Migrantes , Feminino , Clínicos Gerais/economia , Grécia/epidemiologia , Acessibilidade aos Serviços de Saúde , Humanos , Entrevistas como Assunto , Masculino , Transtornos Mentais/economia , Transtornos Mentais/epidemiologia , Serviços de Saúde Mental/economia , Política , Psicotrópicos/economia , Psicotrópicos/provisão & distribuição , Encaminhamento e Consulta
20.
BMC Health Serv Res ; 16: 25, 2016 Jan 20.
Artigo em Inglês | MEDLINE | ID: mdl-26792057

RESUMO

BACKGROUND: Communication problems occur in general practice consultations when migrants and general practitioners do not share a common language and culture. Migrants' perspectives have rarely been included in the development of guidelines designed to ameliorate this. Considered 'hard-to-reach' on the basis of inaccessibility, language discordance and cultural difference, migrants have been consistently excluded from participation in primary healthcare research. The purpose of this qualitative study was to address this gap. METHODS: The study was conducted in the Republic of Ireland, 2009 - 2011. We developed a multi-lingual community-university research team that included seven established migrants from local communities. They completed training in Participatory Learning & Action (PLA) - a qualitative research methodology. Then, as trained service-user peer researchers (SUPERs) they used their access routes, language skills, cultural knowledge and innovative PLA techniques to recruit and engage in research with fifty-one hard-to-reach migrant service-users (MSUs). RESULTS & DISCUSSION: In terms of access, university researchers successfully accessed SUPERs, who, in turn, successfully accessed, recruited and retained MSUs in the study. In terms of meaningful engagement, SUPERs facilitated a complex PLA research process in a language-concordant manner, enabling inclusion and active participation by MSUs. This ensured that MSUs' perspectives were included in the development of a guideline for improving communication between healthcare providers and MSUs in Ireland. SUPERs evaluated their experiences of capacity-building, training, research fieldwork and dissemination as positively meaningful for them. MSUs evaluated their experiences of engagement in PLA fieldwork and research as positively meaningful for them. CONCLUSIONS: Given the need to build primary healthcare 'from the ground up', the perspectives of diverse groups, especially the hard-to-reach, must become a normative part of primary healthcare research. PLA is a powerful, practical 'fit-for-purpose' methodology for achieving this: enabling hard-to-reach groups to engage meaningfully and contribute with ease to academic research. PLA has significant potential to become a 'standard' or generic approach in building community-based primary health care. Community-university partnerships have a significant role to play in this, with capacity to radically influence the shape of healthcare research, expanding the research agenda to incorporate the views and needs of hard-to-reach and vulnerable populations.


Assuntos
Pesquisa sobre Serviços de Saúde/métodos , Atenção Primária à Saúde , Migrantes , Populações Vulneráveis/etnologia , Adulto , Comunicação , Serviços de Saúde Comunitária , Feminino , Medicina Geral , Humanos , Irlanda , Masculino , Pessoa de Meia-Idade , Atenção Primária à Saúde/normas , Pesquisa Qualitativa , Encaminhamento e Consulta , Pesquisadores , Características de Residência
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